Graves disease
Posted , 5 users are following.
ive had graves disease fir almost 2 years now. i was unable to get it under control, so i had surgery to remove my thyroid 6 months ago. i have still been running a little on the hyper side. since i was diagnosed with graves ive suffered from extreme muscle pain in my upper back, neck and shoulders. anybody else experiencing the same? also im extremly tired all the time even since my thyroid removal. just wondering if this is normal as im starting to think i have fibromyalgia now as my symptoms mimic that.
0 likes, 16 replies
Guest BrendaJR
Posted
Hi Brenda, muscle pain caused by abnormal thyroid hormone levels subsides after your thyroid levels normalize. It is a gradual process, in my case it took about 3 months.
If you have not done it already then I would recommend discussing it with your endocrinologist and GP. It is not normal to have continuous muscle pain while your thyroid levels are ok. Btw, thyroid surgery can sometimes affect the parathyroid glands. If your Calcium levels are off, it could cause muscle pain as well. Best to have it checked.
BrendaJR Guest
Posted
HI SAM, my calcium levels have been checked and are in normal range. It has been 6 months since my thyroid surgery, i have yet to level out, however, my TSH is the closest its been to normal in 2 years .306. I still cant understand the muscle pain and extreme fatigue.?? I do not like to think this but I am beginning to think possible fibromyalgia?
BrendaJR
Posted
unfortunately doctors dont seem to understand all the symptoms that go along with thyroid disease, i have found i have to be my own doctor at times even with my levothyroxine dose. in APRIL my TSH was 4.230 so increased thyroid meds and in just 4 weeks TSH was .138 and my doctor told me to stay on same dose and check again in 3 months!!! i was having symptoms of hyper, anxiety, headaches, dizziness and TOLD him i need to decrease me dose and would like bloodwork checked again in a month due to my extreme sensitivity to thyroid medication. doctors make me more frustrated as they have no answers to my symptoms!
arlea13920 BrendaJR
Posted
I had graves and was going all over the place. i did not have my thyroid removed. i am afraid to have my neck cut open, but i did have my thyroid shut down. i am not taking any medication. i am having the same symptoms you are having. i also have copd, so I really know what you are going through. Hang in there and consult with your endocrinologist, he needs to know what's going on. I pray things get better for you!
Arlea
BrendaJR arlea13920
Posted
thank you ARLEA!! god bless you and what you are going through! why are you not on any thyroid medication?
jack41577 BrendaJR
Posted
i have had grave a year now .... major symptom is tired and weak all time even though the meds are working on the hyperthyroid im just not the same
gaining weight feel so blah ... i know my testosterone is low and trying to raise it ... if you you syptoms it seams like im enemic oy a host of other syptptom ... so frustrated
arlea13920 jack41577
Posted
Do you see an Endocrinologist? If you are, I suggest you find one who will help you.
iIt is ridiculous that you've suffered this long. GOD bless, and prayers you find a good one!
jack41577 arlea13920
Posted
thanks yes , i see an endo even went to a new one last week for a second opinion ... according to the regular bloodwork they do every three months everything seems to be improving but I still feel Iike different person the regular bloodwork they do every three months everything seems to be improving but I still feel I’ll get different person... lets see … As I said the new doctor thinks testosterone level might be low and put me on a medication for that hopefully it makes a difference in the energy level… Nothing after two weeks though
BrendaJR jack41577
Posted
HI JACK, i totally understand your frustration! i had problems with weight gain myself and seems doctors to care to address this or make excuses such as getting older not enough sleep etc. i have never had a problem with weight gain til graves disease (in the beginning i initially lost weight of course) i have put that back on and then some. i have had to decrease my calories to 1000-1300 a day and i have started to bike about 3-4 times a week, totaling 25ish miles a week to just MAINTAIN!
jack41577 BrendaJR
Posted
Brenda!… Yes sounds exactly like me never had a problem with weight stayed the same up-and-down one or 2 pounds my whole life! Now yes have put on the initial 11 pounds I lost and a few more! Really bothers him… A Brenda!… Yes sounds exactly like me never had a problem with weight stayed the same up-and-down one or 2 pounds my whole life! Now yes have put on the initial 11 pounds I lost and a few more! Really bothersome… And yes Dr. say the same thing about the age thing ! you hang in there as well .... yes doing the same thing with diet and exercise but it really It’s not easy for a person who never had to watch anything
jack41577 arlea13920
Posted
ILL PRAY FOR YOU AS WELL ... GODS PLAN ,,, not ours
BrendaJR arlea13920
Posted
i have been to 2 endocrinologists along with my primary doctor, unfortunately none have been much help. i've been doing alot of research myself. a very frustrating disease to say the least as you know as well. my bloodwork says i'm still hyper(slightly) but still tired and cold all the time
arlea13920 BrendaJR
Posted
i am freezing all the time! At least i am not alone...
jack41577 BrendaJR
Posted
i have had grave a year now .... major symptom is tired and weak all time even though the meds are working on the hyperthyroid im just not the same
gaining weight feel so blah ... i know my testosterone is low and trying to raise it ... if you you syptoms it seams like im enemic oy a host of other syptptom ... so frustrated
jack41577 BrendaJR
Posted
i have had grave a year now .... major symptom is tired and weak all time even though the meds are working on the hyperthyroid im just not the same
gaining weight feel so blah ... i know my testosterone is low and trying to raise it ... if you you syptoms it seams like im enemic oy a host of other syptptom ... so frustrated
BrendaJR jack41577
Posted
JACK, i kinda feel i lost who i was and settling for the new me, more tired, unmotivated, have to watch closely what i eat ect..... not how i want to be but trying to make the best out of the situation i am given. good luck to you and god bless!