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Graves' disease and itching

Posted , 5 users are following.

jan.h
jan.h

hi, I take carbimazole for my hyperthyroid.

i itch madly, wriggling as if I've fleas, and spots down my torso.

its awful

any ideas or advice please? X

0 likes, 8 replies

8 Replies

  • suzanne03002
    suzanne03002 jan.h

    Posted

    I completely understand the itchy skin. I itch all over my body. I don't know if the meds cause it or just the dry skin that hyperthyroidism brings along with it. In the summer it gets horrible but I take oatmeal baths and try to keep my skin soft as possible which does help. I carry aound a big metal spoon too lol. Works wonders on the back smile
  • linda187
    linda187 jan.h

    Posted

    I usually hear this from people who are on high dosages.  What dose are you on?  Do you have Graves Disease or Hashimoto's or both?  Do you know your last lab results for TSH, Free T3 and Free T4?
  • christine57219
    christine57219 jan.h

    Posted

    Hi again Jan,

    as stated in our previous discussions, I itched from head to toe when I first started taking Carbimazole, it was terrible BUT I didn't get any rashes or spots etc just excessive itching even through the night in bed.  It eventually wore off but some people are allergic to Carbimazole and after going to see their GP regarding the itching, they were prescribed the alternative to Carbimazole which I think has the shortened name of PTU, I think Linda187 will know the name.  My dose of Carbimazole was and still is 40 mgs which I believe is classed as a high dose.  Obviously your itching problem is very bad, so I would go and see my GP (or ring them) and explain that you can't cope with the itching and ask them about the alternative medication.

    Christine

    • jan.h
      jan.h christine57219

      Posted

      Hi...I'm ok in the day but, man, ain the evening I'm scratching...like I've fleas!!! 

      I get on well generally with the carbimazole but I am speaking to my GP today.....

      thanks x

    • jan.h
      jan.h linda187

      Posted

      Ok, trying to decipher garbled blood test printouts....

      T3 started at 30.8 ,

      T4 was 41 in January, settling a little at 19

      my TSH is at 0.02

      these any help?

      states my thyroid antibodies are extremely high at 971 ku / L 

      lim trying to settle my levels, I still feel awful but am reassured by the support I've received  here....others, like GPs etc aren't so supportive, it's like

      ok, you've got a problem, here's some tablets, go away and deal with it, we don't know any more than that!!!!!

      im hoping to feel better, eventually ! Xx

       

  • kylie59034
    kylie59034 jan.h

    Posted

    I have been on carbiazole for 3 months now .

    At first got really itchy.. for me it went away .

    Its really hard not to itch .

    My medication got dropped down within first month from 30mg to 20mg . So must be doing its job.

    • kylie59034
      kylie59034

      Posted

      Im actually feeling really lethargic and tired lately and vertigo. Starting to think im going under active . : ( last bloods my levels were pretty much on par as almost normal
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