Graves Disease, Carbimizole and Supplements

It's me again, I understand that changing my diet can help and I think I eat quite healthily, high protein, low carb, lots of veg, fruit and 2 litres of water a day, so it is supplementation not diet I'm interested in. Thanks 

Thanks Alasdair80006, will check any supplements I take with Endocrinologist.

Hello Jan,

I've been on carbimazole and thyroxine for 18 months - am due to come off both in two weeks.  I didn't know about the zinc but make sure you don't take anything containing aspartame!! 

 

I have heard that coconut oil is NOT good for Graves patients.  From what you describe, I don't think you are strictly a Graves patient.  It sounds like you might have both Graves and Hashimoto's.  If so, you need to ask your doctor to check for antibodies for both.  If you have both, prescribed meds are going to be very difficult to take as the Carbimazole causes hypothyroidism very rapidly and replacement Synthroid causes hyperthyroidism very rapidly.  So before you take any supplements confirm your diagnosis and that you don't have Hashimoto antibodies as well.  Also, when you get any lab tests at all, ask your doctor for a copy of the results and keep your own file on them.  If you have any questions about them and post to this Board, always post your results along with the normal range for your lab.  If you have Hashimoto's at all, then regular L-Carnitine, 3,000 to 4,000 mg is better to take.  If you have Graves only, then Acetyl--L-Carnitine is best to take starting at the lowest dose.  Most patients are deficient in vitamin D so vitamin D3 nd Omega 3 fish oil is good to take.  For your eye problem Selenium is good along with pads soaked in Witch Hazel placed over closed eyelids.

Thanks Stephania3 and Linda187..... I will ask for Hashimoto antibodies test as well.

Hashimoto's is that just hypothyrodism and is it unusual to have both Hashimotos and GD? Yes my doctor wanted to have me on Carbimizole to get blood pressure and pulse down, as well as to treat the other symptoms, she wanted to get me back to hypothyrodism as better than having heart issues.  

I think as so many different variations of autoimmune diseases, that not all doctors know how to treat. She also said ok to exercise, but I am thinking if blood pressure and pulse rate high before I start an aerobic session, I might just conk out, thought I'd stick to walking and swimming

Also doctor has not put me on Propranolol, thinks Carbimizole should sort my high blood pressure and pulse rate!

I'm in an experimental stage with meds! They just put me on PTU 50 mg twice daily which I hate but was losing hair with methimizole so we are seeing if this works but with such a big number of PTU it really worries me! I do take vit D and Vit b complex and fish oil and biotin and starting l cartinine today ! I will let you know as I go how things works for me! Are you losing your hair? It's really nerve racking to lose so much daily! I wash every 2-3 days now but still lose during the days I don't wash! Hopefully this stops soon! That will make me feel better right there if my hair stays in my head!

Good luck with everything, this is a great site to get info!

Hello again,  I've been on carbimazole (or it's related equivalent) for 18 months twice now and have never had any hair loss, on the contrary, it's thicker than ever!  I've heard that if you get a sore throat and it lasts more than 3-4 days, then go straight to A&E, as it indicates your immune system is down, but I never had that problem.  Don't think any drug is without potential side effects......