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Could anyone who has experienced protruding eyes with Graves Disease tell whether of not their eyes have returned to normal?
After two thyroid storms 10 mos. ago, I was diagnosed with Graves Disease 8 mos. ago. and prescribed Methimazole 10 mg. and Propranolol. That same month, one of my eyes began orotruding/eyelids retracting. I had upper and lower eyelid surgeries 2 mos. ago, which improved my appearance but my eyes are still asymmetrical. 😢
Since my diagnosis, I have been doing everything in my power to try and get it under control: Riding bike 15 mi./day, cutting out gluten and dairy from my diet, taking all meds, and reducing stress. However, my Graves Disease has remained out of control since the first thyroid storm. Blood levels are "approaching" normal range but I have not yet attained them. My hair has been falling out by the handsful for 10 mos. as well. Besides my eyes, my Graves Disease is accompanied by a blistering rash on my face which occurs nearly every other week: Prednisone and Benadryl knock it out pretty effectively. Many mornings I wake up drenched in sweat. Some days I lose hope that this disease will go into remission.
My surgeon brought up orbital decompression but the thought of that terrifies me, and I have no confidence that the symmetry of my eyes will be restored. I've put off further surgery for 6 mos. to see if my eyes further change.
Is there any chance that my eye will stop protruding? Thank you for your input.
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