Graves’ disease hyperthyroid question semi urgent

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I have two issues hyperthrypidism

and Graves disease. I’ve been treated for the last seven months and hyperthyroidism is responding to the medication. The Graves’ disease has not shown much sign of antibodies at 486 luck getting any lower. I have been very weak and tired every afternoon for a while now definitely not myself mentally also. Expressed all my concerns to the doctor and he feels that would be the time to radioactively kill the thyroid. I’ve been reading up on this but I need to make a decision real soon… Afraid this might affect my product syndrome that is in remission … Meaning the medication for hypo thyroid I would have to take afterwards for the rest of my life… Please let me know if anyone has had her thyroid removed Killed with radio activity? Long-term effects? On the rest of the body thanks Jack

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  • Posted

    Actually your two issues are one. All Graves patients initially are hyperthyroid before treatment. My sister-in-law had the radiation and she says you never feel the same again. Others have posted to this Board who feel okay with that method of treatment. Personally for me, I did not want to go there. I don't want to remove or destroy an organ that is not malignant. What I found for myself is that when you have been running hyperactive, you are deficient in a lot of vitamins, minerals and amino acids. I got tested and was deficient and took these supplements in addition to medication. It made a huge difference. I have been off medication for almost a year and my antibodies were non-detectable when I went off medication. Before that I was on a very low dose of Methimazole and supplements. Felt fairly normal.

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    • Posted

      thank this helpful ! i dont want to rush into destroying the fire route either as I know one thing always leads to another… Plus the medication that I have to be on May affect something but it’s been seven months and I feel really crappy… Weak and tired in the afternoon no motivation… I’m sure I’m deficient in vitamins and amino acids but how do I get tested for that… And what supplements are the best I know liquid nutrients are The best absorbed any suggestions

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    • Posted

      hi..are you male? ive been treated with methimazole for 4 mos already..my bloodtest all in normal range..all symptoms almost gone..only the dizzyness lightheaded nauseous symptoms still there..

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    • Posted

      yes male age 55 /

      treated for almost 7 months… Down to 2.5 mg methamazole day Still feeling lousy and the doctor says it’s because of the antibodies that the Graves’ disease is producing… He’s not pushing for killing the thyroid radioactivity he just said it’s an option that I could take or go months and months more feeling lousy

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    • Posted

      Vitamin D is VERY important for good thyroid functioning. I was deficient in it. I also got tested for Total and Free Carnitine and was deficient in that. You can take this supplement (Regular L-Carnitine) as capsules or by prescription in liquid form although the liquid form was expensive at the dose I took which was 3,000 mg per day but luckily I had a drug plan. At one point I took 1,000 mg of Regular L-Carnitine and 1,000 mg of Acetyl L-Carnitine but this latter one is very sensitive so you have to watch your results carefully and make adjustments. I also take 200 mg of Magnesium because I was low in that as well. I work in a hospital and at that time I worked for Genetic Metabolic specialists so they were obliging when I asked for testing. My family doc also cooperates in doing this as well.

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    • Posted

      This is very helpful! Do you remember the name of the test that they did for vitamin mineral deficiency? Name a blood test?… Also working in a hospital did many medical professionals advise against killing off the Thyroid?… Trying to get somewhat of a second opinion without running g around to doctors…!

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    • Posted

      Most endocrinologists push for the radioactive iodine treatment because they are trained that way. I did not want something done that I could not reverse. At least with meds, you can adjust dosages or not take it at all. I took Total Carnitine, Free Carnitine, Vitamin D and Magnesium testing.I believe the Acetyl-L-Carnitine that I took combined with a low dose of Methimazole helped to lower my antibodies and normalize my labs.

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    • Posted

      thank you! this is consistant woth other info i have been getting

      what dosages of theses do i start with or diid you start with? 500 mg Acetyl-L-Carnitine? how many x day?

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