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groin lymph node pain is it conected to my ulcerative colitis

Posted , 4 users are following.

kathlav
kathlav

Hi all am having a flare of UC and have noticed my groin aches ie: tops of my legs around where the lymph nodes are could the inflammation of my lower bowel be causing this?

0 likes, 9 replies

9 Replies

  • steph63308
    steph63308 kathlav

    Posted

    I couldn't verify this for sure, but I get that pain too, and like a low belly period pain, I've always presumed inflammation was to blame, and lots of loo visits gives added pressure in that region. Not much help I'm afraid but at least you know you're not alone in that!
    • kathlav
      kathlav steph63308

      Posted

      Hi steph63308,

      i say a flare but actually it seems more of a brief interlude, last week it looked like it was going to become a full blown flare even went to doctors who has ordered a whole barrage of blood tests including inflamation markers for UC.I have asked my endo about this pain and she seems to think i would have to have inflammation below the nodes ie legsor nether regions!

      It seems strange to me that when i had an endoscopy the scope showed inflamed regions in the right and left bend of the lower intestine directly above these nodes.

      It was just a thought as i have had this pain often when having tummy problems, and when my antibodies have been high with graves disease also.Coinsidence?

      It does help knowing i am not the only one , Thanks.

  • Bejaysus
    Bejaysus kathlav

    Posted

    I have similar symptoms but not in what I'd call a flare up... Ie no other bad symptoms of UC. I have been wondering for a while if it's a signal of one on its way but it comes and goes and if I'm slack with meds seems mores likely to occur. I get an ache or a tenderness and a visible swelling along what I think is the line of the lower bowel. I did try to raise this with the specialist early in the process - less than a year ago - but wasn't very clear about the symptoms... I will do so at next check up now you've brought it up. 
    • kathlav
      kathlav Bejaysus

      Posted

      Hi Bejaysus,

      I only take meds when i feel symptomatic and have gone for nearly 3 years without any major problems, this has been the first sign of uc since then.Hoping its just a blip. But i was diagnosed with thyroid disease soon after my last major flare 3 years ago, and have only recently (july) come off meds for Graves in trial of remission.....also seems wierd that since then little niggles of tummy problems have been coming back.

      Maybe i am just confusing the burning pain in my bowels with lymph node pain?

      i would be interested to hear what your gastro says about it, please do post his opinion on the board when he tells you.

      Thanks

  • steph63308
    steph63308 kathlav

    Posted

    You know, I think it's hard for the Docs to pinpoint things too and you have to trust what you feel in your body and I'm not by any means dismissing what they tell us, I wouldn't be here now if it wasn't for them, but I have had two GP`s that didn't spot I had bowel cancer and more recently my heath centre (has 5 Dr`s and I tend to see the same one now) after many trips knowing something felt wrong and kept being told its the UC one of them decided to test the liver and eventually Autoimmune Hepatitis and PSC. we're found, so it's obvious some Docs are more informed than others on this awful disease and all the others that go along with it. My consultant said on my last visit that if he didn't know me he would think there was nothing wrong by looking at me, and I think GP`s tend to judge on appearance too, so unless you walk in looking like death it throws them. On the plus you have had a lot of tests done so hopefully something will show, well not hope that you have a problem but hope you get answers, I should say!!
    • kathlav
      kathlav steph63308

      Posted

      I know what you mean steph, lucky for you at least one of those doctors was on the ball, and i always look upon any type of procedure now in a different light, colonoscopy meh! radioactive iodine scan meh! Biopsies meh meh!!

      I hope things are looking on the up for you now, and that your treatment was successful.......kind of puts things into perspective does,nt it?

      wishing you well K

  • Bejaysus
    Bejaysus kathlav

    Posted

    Lots of things to think about there... I have access to specialist nurses over the phone so will ring them to discuss it. They're very good and will think/talk through the possibilities. I know what you mean about looking well.  I do and like many tend to present as tho I am  fine (because I want to be) but this can mean I collude in dismissing symptoms. I will let you know what they say anyway. 
  • Maryjo
    Maryjo kathlav

    Posted

    Yes u can have discomfort in this region if uc misbehaving . I just think if bowel is inflamed its swollen and puts pressure on lower regions . 
    • kathlav
      kathlav Maryjo

      Posted

      Just `what i was thinking Maryjo, thanks for that.
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