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GS

Posted , 2 users are following.

Guest
Guest

My friends son has just been diagnosed with GS and seems to be cold all the time, plus he is always tired and gets stomach aches requently. Is there anything she can try to lesson these attacks as he is losing a lot of time off school (He is 13) and she is worried. He also seems very down a lot of the time and has a lack of confidence is this all related to GS?

0 likes, 6 replies

6 Replies

  • Guest
    Guest

    Posted

    Yes, that's right often we have slightly lower BP making us feel cold. Lots of us have shaky hands (essential tremor) due to poor liver function and fluctuating blood sugars (there is a link with GS and the hormones regulating insulin). The young chap needs to look after himself with a good diet - slow burning GI foods and protein to give him strength. I think it's a bit of a difficult time during teenagehood with all the competing hormones and things can get a bit dark for a while. Advise him to hang on in there, not to skip meals (it makes us dizzy and yellow). The best approach to life is to see the humour in situations and to be open with your friends about your difficulties. You can have a normal life, ( in a few years time you can still go out on the raz with your mates (as long as you find your tolerance level) it isn't disabling. Im now 46 work full time in health and Im a mum too. Ive had a great life and especially enjoyed my younger wilder years. Hope things go well for him.
  • Guest
    Guest

    Posted

    Funny, when I was a teen I had no problems like that at all - it's only in my 30s I started noticing anything wrong, but it was in the background really. And it's only the last month or so that I've really been having problems finding that balance.

    Anyone else found it gets worse with time?

  • Guest
    Guest

    Posted

    [quote:35f01c1f53=\"DB\"]Funny, when I was a teen I had no problems like that at all - it's only in my 30s I started noticing anything wrong, but it was in the background really. And it's only the last month or so that I've really been having problems finding that balance.

    Anyone else found it gets worse with time?[/quote:35f01c1f53]

    my son has just been told he has gs he also has diabeties type 1 does anyone know if it is related

  • Guest
    Guest

    Posted

    when i was a teenager i had similar symptoms except for feeling cold. Althought GS effects people differantly.
  • Guest
    Guest

    Posted

    My sone, who is 17, was diagnosed with GS at 13. It was very bad at the beginning, with strong abdominal pains, dramatic loss of weight, fatigue, nausea, insomnia, brain fog, irritability. The advice I can give is: first, do not worry, it gets better as hormones settle which are particularly volatile at that age and growth hormones add to the pressure on liver's function (also they learn to cope and adjust to the condition and symptoms); second, diet makes a lot of difference - we found that organic meat and milk reduce janudice (our GP suggested to switching to organic meat and milk after prolonged bout of very high billirubin levels) - residual steroids and antibiotics in meat and milk add to the pressure on the liver; third - moderate exercise helps reduce jaundice (such as walking to school or cycling daily); fourth, drinking plenty of water helps flush the toxins out (we make sure our son has plenty of bottled water in his room). We now treat our son's GS not as a disease but rather like his hay fever (which is also very bad); finally sunshine (I do not know why, but sunbathing makes the eyes less yellow). It will definitely get better and easier, unitl they start partying (which is why I am back on support sites for GS). Good luck to your friend
  • MinL
    MinL

    Posted

    Just found this site and was quick to register as I can find little about GS anywhere. Most Healthcare providers seem to be very dismissive of GS.

    Like your son I also suffer from stong abdominal pains, dramatic loss of weight, fatigue, nausea, insomnia, but also lack of motivation. However I am a 64 year old woman so in my case I don't think it is hormones. Maybe stress - quite a few family and work related problems over the past 2 & a half years. This is definitely the worst and longest episode so far.

    The strong abdominal pains are a pig! I could cope with the rest if I wasn't creased up all the time. Does anything ease them?

    Am going to try a liver supplement to strengthen my liver which has worked in mild episodes before, hope it works this time. The only thing is I have to wait until it can be shipped from USA as the company my nutrition clinic used to deal with has stopped making it.

    Luckily, I don't get the yellowness.

    Hope your son finds his balance o.k. He is lucky having such a supportive parent. Best wishes to you both

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