1. Community
  2. Brain and nerves
  3. Neurological Disorders

Guillain-Barre Syndrome GBS

Posted , 62 users are following.

Guest
Guest

I was struck down by GBS seven months ago. I just collapsed in the street. No warning. I didn't know what was happening. I was scared. Got myself to the doctors straight away where he admitted me to hospital straight away. Just had over a week in hospital (I was lucky) but then as I came home, I was on my own to cope with this condition or should I say inconvenience. That's when the fun started. I had to have carer's come and see to my every need. Also had to have meals on wheels. (Only in my 50's, I found it so degrading). I have always been independant, now I was forced to be looked after. It's like starting all over again. Learning to talk, walk and do things. Almost going back in time when I was a baby. But, here I am back on the computer, talking, walking (very slowly, still with a stick) but getting there. It's almost like I was doing too much at the time, and it's slowed me down. But, now I take each day at a time. Life's so presious.

For anyone out there just starting to get back to normal. Just keep going and never look back.

5 likes, 274 replies

274 Replies

Prev
  • sarah38221
    sarah38221 Guest

    Posted

    Hi everyone. I am really concerned I may have this, Pls excuse typos, I cant type with my left hand.  Ok end of June I had my wisdom teeth out. (unsure if there is a connection). On july 6th I noticed tingling in my left hand - thumb and pinky, and down the outside of my hand.  there was alsso tingling in my left foot.  By july 9th i wass in the er with reduced sensation from my armpit down to the bottom of my foot. from 6-9th, it was slowly creeping up from my leg.   i had no weakness - just the reduced sensation.  

    fast forward to july 12th.  back in the er because the numbness is getting worse. still no weakness but muscles on the left are SO tight, bending my fingers is really hard and painful.  moving my arm is becoming a chore.  cant hold or grip anything.  er cant help again, sd its a pinched nerve and come back if its worse,

    july 17th - worse.  my arm is now almost impossible to lift, my shoulder and left flank and leg are at 90% reduced sensation.  i have no control over my fingers and wear a sock on my hand so my pinky doesnt get caught on things and break.  I can walk ok, feel off bal since my leg is just about numb.   addition:  my right foot (bottom) - and right hand start to tingle (middle, ring and pinky - outside of right hand.

    today - SCARED.  right side is now progressing like my left did - and i feel almost paralyzed in my left arm.   i cant get in to see a neurologist until aug 2nd.   i feel like going to the er is pointless as they keep refusing to do any test but cbc blood.  they keep insisting its a oinched nerve and tell me to come back if worse,  - so now my left arm is useless.  

    is thiss gbs and should i demand they test me for it?

  • caroline70988
    caroline70988 Guest

    Posted

    You demand them to test u for it I would I had it . You don’t feel naushious ? Feel wiered inside your body? If you had some kind of infection in your tooth or any thing? 
  • Lion123
    Lion123 Guest

    Posted

    is this forum still in existence as some of these post 12yrs & 5yrs old

Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.