Had a colonoscopy on friday worst experience in my life

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I had this operation done on friday it was the most dreadful experience ever still yet I have severe back and groin pain it just wont go away anyway had a lot of polyps burnt off and sent off for pathology and histology.  I still think my pain is due to my fibroids and ovarian cysts so why the hell am i being sent from a gynae to a gastroenterologist ive had enough of living in constant pain I cannot lay down therefore I never get any sleep......when i went to the doctor a month ago about this pain ive had since january he said i quote "what do you want me to do about it" in a very angry tone....i left very upset but did complain....now yet again my doctors are on the front page of our local newspaper with a girl saying they ruined her life they have a very bad history and no other doctors are taking on new patients the girl in the newspaper has been chucked off her doctors list for complaining!  The doctor I saw was very moody seemed angry with me for having a private scan and when i asked if I could have a hysterectomy (as if anyone would want such an awful operation by choice) he laughed at me!  What to do where to go I just want to know what is causing this severe lower back pain travelling around my waist into my groin area i have read on google that it can be caused by cysts or fibroids the cysts pressing on nerves that would explain why its most severe when i lay down for a while i wake up at least every hour all night long yet nobody can find out whats wrong with me im starting to give up on life as living with this pain is unbearable........helpppppp x

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  • Posted

    Melissa,

    Good you had the procedure even if it isn't the real issue. Polyps gone is a good thing. They did put you under fir the procedure right?

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    • Posted

      Hiya Beenthere Sr......awful procedure no they didnt put me under even though I asked for sedation I had a bit of gas and air which was whipped away from me pretty quickly the pain of the op was excruciating when he put the camera round the corner of where my colon bends it was like no other pain i felt in my life.....they gave me some pethidine but it didnt touch me......they didnt even give me any pain killers to go home with and they have written on the report they want to do a rescope still waiting for my biopsy results.  Went to the dentist yesterday and she was very concerned about some lumps on my tongue she said it looked like cancer so to keep an eye on it.......it just goes on and on and on .......I cannot lay down any more I have to sleep sitting up which is impossible as soon as I lay down my spine feels like its snapping and my hip feels like its dislocated....god knows what it is cant see my doctor any longer as there are only two decent ones there and I always get the rude dismissive doctor and if I mention anything I have diagnosed myself with they get angry with me I have left my doctors feeling much worse than when i went in....I totally give up Ive been in A&E more times than I can remember but still suffering.  My daughter rubbed some deep heat into my back last night and I managed to get around 4 hours sleep it was an actual god send to get that amount of sleep in one go.  Have you ever had a colonoscopy?  And if so did they put you under?  Ive given up on doctors they doctor doing it wouldnt answer my questions as I watched him burning off polyps but he did answer this i said is this what is causing me pain he said NO and that was that I never saw him again after the procedure if they think they are doing this to me again they can stick it where the sun doesnt shine!  Thanks for your response smile

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    • Posted

      OMG you poor thing! A: my doctor said polyps don't hurt, unless they create a blockage and the pain is then caused by the pressure caused by material trying to get by.

      I've had a sigmoidoscopy, no anesthesia. Also a colonoscopy with anesthesia. The gasteroenterologist said it was BARBARIC before anesthesia became part of the procedure. That bend on the upper left side is very tight and creates serious pain during the procedure. Let alone the air they use.

      Does NHS assign the GP practice you must use? I've dealt with dismissive Drs. before but had the luxury of switching. Or are you in a small town with no options?

      I am appalled they gave you no anesthetic. I woke from mine rested, comfortable and no discomfort. I become more grateful to be on this side of the pond when I read these posts. I'm of English heritage and would love to visit but I think I'm lucky my grandparents immigrated. Did your GP do the procedure?

      And what's with the dentist?!!? No biopsy, no referral, no treatment? What's with diagnose and ignore??? Oral cancer is not to be fooled with.

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    • Posted

      hiya just tried to sign in here this site is very confusing.....however I must say it is one of the worst procedures I have ever experienced.......the pain was off the scale off 10 more like 100 they kept telling me to turn on my back but i was hanging onto the rails in total agony they should have this done as procedure then they might get how much pain you are in...absolutely disgraceful.  No anasthetic just gas and air a bit of pethidine which didnt work.........they blow this horrible air into you plus you have to drink two litres of this drink within two hours two days running and its like drinking cleaning fluid you clean your floors with but worse!!!.....i nearly threw up many many times especially as you have to starve yourself day before at 1 in afternoon....you end up in a right state........my GP didnt even refer me for this as he couldnt give a damn if i drop down dead on the chair next to him lol!!!  seriously.........The dentist (have had a few tears tonight) has scared the utter crap out of me saying that but i did get round to googling had to get the guts up and what I have on my lower left tongue area and below my tongue does look like oral cancer so now I know something is going on inside its as if my body is attacking itself I havent had a tooth removed since I was a kid yet I kept getting teeth infections really bad ones wisdom tooth removed then huge infection then she said I think you have tongue cancer and said to me keep an eye on it!  No advice didnt tell me to see my doctor just said the CANCER word to me then I was off goodbye see you in six months????
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    • Posted

      Melissa,

      Your need a referral to a Gynaecologist/Oncologist as well as an Oral Surgeon.

      You must find the strength to fight and demand appropriate care.  This living in constant pain with your body rebelling needs to stop.  I don't get what the heck is going on where you live.  Women seem to get swept under the rug.  This stiff upper lip crap is for the birds.  The Drs. wouldn't let things lag if they were in your kind of pain!

      If it means a referral in another town take it, you need to fight until you are treated.

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    • Posted

      Hiya BeenthereSr,

      I have no option of changing doctors and my fear of them now which has developed into a total phobia of them is ruining my life.....after my last visit when I was in total agony still since end of january the nasty moody doctor said "what do you want me to do about it"  those words still ring in my ears im terrified I will end up seeing him or one of the other useless idiots up there......you can never get an appointment anyway as they have taken on too many patients im going to end up having to go to A&E again with the pain in my back unfortunately though they try to refer you back to your doctor to get a referral back to them which makes no sense at all.....ive been passed from pillar to post for months im sick of it and now my dentist tells me this!  I have had a look at the back of my tongue and I can see why she thinks its cancer....my mum is such a bitch she said oh maybe its just ulcers!!!  She doesnt give a damn about me.  Im terrified I cant sleep as it is what I dont understand is why she said she is quite sure its cancer and then didnt give me any further advice she didnt tell me to see my GP she didnt say she would see me again quicker to see if they had got bigger she just said for ME to keep an eye on it all!!  I can hardly see the back side of my tongue let alone keep an eye on it how the hell do i know whats going on inside my mouth thats for her or a doctor to do tests surely.......i feel like im falling apart now.  I literally have no energy and wonder if it has spread as I always feel the need to clear my throat as if there is something stuck there but there is nothing there.....thanks for your response I will try and get to see a doctor but no doubt it will be another fob off quack they have up there maybe all this time I have been seeing the cleaner lol I text my mum last night what am I going to do she ignored me as she only cares about herself in fact when I had the colonoscopy she couldnt wait to get rid of me she hates company and wants to be on her own I was as quiet as a mouse as I was in pain but she made me go on my own do shopping even though I was meant to be driving a car and said "oh you will be ok" in other words eff off she is not a liked woman.....I havent even told any of my friends as they are quite self absorbed wish I had some decent people in my life but decent people are hard to find.  thank you anyway I will try to fight for my life but I have a feeling it wont get me anywhere 

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    • Posted

      Melissa,

      I know how hard it is. If the idiot asks you what do you want me to do. Say refer me to the Lead Clinician of gynecological surgery. Basically do you job. Pain like this is not normal a you need a root cause.

      Dentist, call her office and tell her you need a referral for an Oral Oncologist.

      Don't let them intimidate you. It sounds like the entire system is overloaded and only the squeaky wheel gets help. Adhesions an be treated, twisted cysts can be treated. A life being hobbled by pain is not acceptable. You deserve better but you must request it. Be respectful but insistant. You deserve to be healthy!

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    • Posted

      Ok I will do when i eventually get to see a different doctor I have a feeling they are taking it out on me as I didnt turn up for one appointment in years!  It was too early and having no sleep all night does not help.  Im sick of being fobbed off and reading stories on the internet of people being ignored then dying some time later the doctors never get struck off for basically murdering their patients.  My gynae problems have been totally ignored no further action Im still waiting for a referral from the pain clinic I saw a consultant 9 months ago nothing in the post no referral....every time they refer you it takes about two months for the referral to come through and then you get ten minutes with this person and they fob you off...I need an MRI scan on my lower back I know there is something very wrong with me especially as there is a huge lump the size of a fist at the bottom of my spine.....at my GPs surgery they say you are only allowed to go to the doctor with one ailment at a time otherwise you have to make 3/4 separate apppointments bearing in mind i will only see two doctors up there as the rest are useless.  Im sick of living in pain and now why did my dentist tell me I have cancer in my mouth then left me like this she didnt even tell me to take it further or to see my GP she just said bye!!!  What kind of a dentist tells you you have cancer but no follow up!???  Im sick of the lot of them I may as well dig my grave now Im always respectful probably too respectful thats why i get treated like utter rubbish......ive seen many people leave my surgery angry and annoyed Ive watched them shout at the doctors and at the receptionists.  They dont seem to care about my fibroids and cysts instead they send me for a horrible colonoscopy which was probably unnecessary as I dont feel any different since I had it done......my doctors dont want to know the cause they work for the pharmaceutical companies not the general public and they want to put me on pain medication even offering me an anti depressant I dont need nor want anti depressants I have all the evidence Im in pain for a reason yet they are trying to mental me off!  They do this to everyone.....they cannot say this is all in my mind any longer as I have paperwork from the hospital to prove it so they dont like that one bit....thank you so much for your advice when i finally do get an  appointment im going to force them to do the above and if they dont I will take it further Ive already complained about them on their website so im even less liked than i was before!
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