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had a PE for 17 months and in the last few days Should I worry? Am on

Posted , 4 users are following.

KMRC
KMRC

i was misdiagnosed in 2014 ( had a pe, assigned a cardiologist in ER.  Nothing was wrong with my heart but the right side of my chest was painful and I felt lots of pressure.  Saw 3 docs the next year, complaining about this horrible pain and got no help at all.  Finally found a internist who listened to me and with a ct, found the clot.  That was Xarelto bec of side effects.  Last few days the pain has seemed to worsen and sharpen.  See a hemotologist for 2nd time in 3 weeks.  Should I see her sooner?

 

1 like, 6 replies

6 Replies

  • barbaraG
    barbaraG KMRC

    Posted

    Sure you should see the hemotologist sooner.  Why not?  Tell them you feel it is an emergency and that you are feeling terrible.  If it was me I would also see a pulminologist    
    • -.a-way_forward
      -.a-way_forward barbaraG

      Posted

      barbaraG, do you know of any pulminologist? I would like to see one, and share my experience. I've had a few clots, large and small, and maybe some little ones undiagnosed.
    • barbaraG
      barbaraG -.a-way_forward

      Posted

      Where are you located?

      Look up on the internet the nearest teaching hospital

      See the chief of staff pulminologist at that hospital

      see a Pulminarary Vascular Hypertesnsion specialist

    • KMRC
      KMRC barbaraG

      Posted

      Sometimes we are limited by our insurance company as to whom we can see.  I have seen several pulmonologists in the past for another reason and I felt like I was on trial with all of them.  I think I will stick to my internist and hematologist but thanks for the answer.
  • peter54321
    peter54321 KMRC

    Posted

    The short answer is "yes" see someone now rather than later.

    Couldn't make out if you were on anticoagulants or not, but sounds like you should be. If you have had trouble with Xarelto (I did) then try warfarin (coumadin).

    HTH

    Peter

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