1. Community
  2. Women's health
  3. Uterine Fibroids

Had enough going under the knife

Posted , 5 users are following.

julie51050
julie51050

Hi everyone  Im 53 and a year ago a scan revealed I have  2 large fibroids and apparently too many to measure in the vagina. Taken 1 course of Esmya which relieved some of the symptoms but still getting shooting pains in lower tummy. However the scan revealed no shrinkage at all so my gyno once again offered hysterectomy  yes he offered it on my first visit. Stupidly I said I will give Esmya another try but that hasn't happened as my period came a week early when I was away so couldnt start the course so now I have another 3 weeks to wait with this sickness feeling shooting pains and the worst backache ever ! On a positive note I do not have heavy periods like alot of people so I guess I am lucky. Made a decision today that on Monday I'm  going to bring the gyno appointment forward from November and get these things moving towards riding these things  from my body . 

Anyone else considering this option and what was the last straw for you?

0 likes, 14 replies

14 Replies

  • barbara91702
    barbara91702 julie51050

    Posted

    Hi, I have decided to have hysterectomy too, I have tried Esmya for several months and am ok while on them (few side effects) but in agony during the break! Gyno thinks no shrinkage so have made decision that enough is enough, I want my life back.....these blooming fibroids that are taking over my life have to go!

    Do you have a date for your hysterectomy yet! I am scared witless but feel I have run out of options, just want to feel normal again, not have to plan around good weeks etc!!

    I wish you well, hope you are pain free soon!

    Barb xx

    • julie51050
      julie51050 barbara91702

      Posted

      No date yet got to bring my November appointment with him nearer so I can discuss it I wish now I said yes when I saw him in June instead of accepting the Esmya . No Patricia never been given any other options other than hysterectomy or Esmya , oh to be a woman lol
    • barbara91702
      barbara91702 julie51050

      Posted

      I think I will come back in my next life as a man!! These fibroids really are no fun, the sooner I get rid the better! I do wish there were more options on the table, but having asked it would seem that this one is the best one for me.......I had hoped to wait for menopause but mother nature seems to not want to comply!

      Wishing you all the best, let's hope we are all pain free by Christmas!!

      Barb xx

  • patricia27802
    patricia27802 julie51050

    Posted

    Hi Julie

    Have you considered UFE? It doesn't work for everyone but it's less invasive than a Hysterectomy and if it doesn't work could you not have a Myomectomy. If you don't want the UFE Gynocolgy will try to stop you . But I have had it and its definitely worth a try when you could be so close to Menopause. Gynocology are quick to offer only Hysterectomy ask to speak to a laprascopic Gynologist if you decide to go for a Hysterectomy (at least then it's only keyhole). Not all Gynocolgist are able to perform Laprascopic procedures and they won't refer you to a more experienced colleague.

    My advice do a lot of research before you make such a drastic decision. If you want to know more about UFE there is loads of info online but Gynocolgy will tell you it doesn't work cos THEY want you to have only Hysterectomy cos it is technically easier for them to perform.

    Good luck 😉

  • christel_30529
    christel_30529 julie51050

    Posted

    Hi I'm2 thirds of my way through my first course of esmya it has really helped with the bleeding which was horrendous it has almost stopped for the first time in a year and have just got the date for my hysterectomy which I can't wait for just want my life back agreeing to the hysterectomy was like a weight being lifted

    • patricia27802
      patricia27802 christel_30529

      Posted

      Hi Christel

      Can I ask did you ask for a Hysterectomy or were you offered one? Did you ask for a Myomectomy or UFE and got refused. The reason I am asking is that I am going to ask for.a Myomectomy. I will probably be refused due to being 50 but I am still going to ask.

      I don't want a Hysterectomy of any kind as my periods have now gone so light they are not a problem. I just want rid of the pregnancy belly.

      Anyhow thought I would ask.

      Good luck to you

    • christel_30529
      christel_30529 patricia27802

      Posted

      Hi Patricia

      I asked for a hysterectomy the reason being I am so scared that If i have anything less I'll have to go through this all again I've been in hospital 3 times once with pain and twice for heavy bleeding was kept in for 3 days cause it wouldn't stop I stood up once in a&e and gushed so much I was stood in a puddle of blood and clots (sorry for being descriptive) don't think I could go on with this any longer mentally as well as physically hope this helps xx

    • julie51050
      julie51050 christel_30529

      Posted

      I was offered a hysterectomy in January but was pinning my hopes on the Esmya tablets working instead as my gyno said it has an 80% sucsess rate which I thought were pretty good odds
    • patricia27802
      patricia27802 julie51050

      Posted

      Hi Julie

      I did one round of Esyma and same thing it did not shrink. When I told Gynocology I was told that it takes 4 rounds to see a difference. I did not want to take anymore as it made me very tired and I suffered bad headaches.

      Finished Esyma at the end of April. Periods were the same 2 heavy ones but my last one was very light. So that is either the Menopause Esyma or UFE don't know which. Don't even know if my next period will be light. Here's hoping. I have a friend who suffers from health problems since hers was done so I am very reluctant to have a Hysterectomy.

      I still think Myomectomy is better. But that is my choice.

      The only time I suffered flooding was after Endo Ablation so I know how bad that is. Just get the feeling Gynocology want what's best for them rather than what is best for me. I have met a few Gynocologists and that is my experience of them. That's not to say they are all bad but if you got a good one then great. Women should be able to choose what happens.

      Anyway good luck

    • patricia27802
      patricia27802 christel_30529

      Posted

      Hi christel

      I am so sorry for you. I had flooding brought on after failed Endo Ablation. But I never had to go into. Hospital for it. In your situation maybe I would think differently.. it is more serious than what I had. UFE stopped my flooding issues by shrinking it from

      11cm to 7.5cm.

      I now have had a really light period. However I still look pregnant so I still have that to consider.

      Hope it goes well for you.

      Good luck

    • barbara91702
      barbara91702 christel_30529

      Posted

      Hi Christel,

      I really wish you well for your op, it is so draining dreading and dealing with this condition, it is never far from your mind and I totally understand why you would want it to be over once and for all. I had a conversation with the gyno about all the options and many were not an option due to size and location, others were not a permanent fix and run the risk of them returning at some point and having to deal with it all again. I do understand how some people are in a position to "try" things to see if they work, but equally think when you are in excruciating pain this does not feel like a good option. When you are bleeding, in pain and scared I think you make the choice that is right for you.

      I wish you a successful op and really hope this starts the next chapter in your life free of pain, bleeding.......and all of this being a distant memory.

      Barb xx

    • julie51050
      julie51050 barbara91702

      Posted

      I think you covered it Barbara everything you said is true we try out different ways to be pain free . Got my November appointment changed to Aug 14  to see my gyno and on that day I'm hopefully going to get the ball rolling to have a hysterectomy. I have tried for a year next month, firstly losing 2 stone then taking Esmya ,so not putting up with this crap any longer and its not taking any more of my life so cut the critters out and move on xx

    • barbara91702
      barbara91702 julie51050

      Posted

      Hi Julie, good luck, I will post again after my op on the 17th and am hoping by Christmas to be wearing white trousers!!

      All the best

      Barb xx

    • julie51050
      julie51050 barbara91702

      Posted

      Good luck Barbara for the 17th I'm sure you will feel much better and get your life back. Looking forward to hearing you again . 

      Best Wishes x

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.