1. Community
  2. Bones, joints and muscles
  3. Polymyalgia Rheumatica and GCA

had enough of pain cant take no more please can someone help

Posted , 6 users are following.

HOTpicks99
HOTpicks99

Well its back to the docs tomoz i really am suffering now the pain is too much i feel like crying sooo depressed even withmy anti depressents

4 likes, 28 replies

28 Replies

Next
  • EileenH
    EileenH HOTpicks99

    Posted

    Take someone with you and make sure the doctor gets the message how bad you feel - if he doesn't do something useful he needs to send you to someone who will make a decision.
    • HOTpicks99
      HOTpicks99 EileenH

      Posted

      Hi thank you for your reply its nice to know there people out there that i can ask for help appreciatedx
  • gwendoline333
    gwendoline333 HOTpicks99

    Posted

    Hello, have you been diagnosed and put on Predisone or any others medication?   I have only just been diagnosed myself just over a week ago and the Pred although it helped at first at 25 mg was not enough to knock out all the pain.   For so long we go through all this pain and useless GPs just ignore us.

    What have you got PMR.  Do you have the GCA too.  

    Is there anyone there with you to help?  What kind of doctor do you have an appointment with tomorrow?

    I should have answered others on the forum but was down in the dumps myself and didn't know where to start with all the horrors I have wrong with me. 

    Take care of yourself, call a friend or a carer.  You can get help with taxi rides etc.   We must not give up no matter what.

    Gwendoline  

    • HOTpicks99
      HOTpicks99 gwendoline333

      Posted

      Thank you im seeing another gp im not going to go on more painkillers unless they know what ive got ive been prescribed that many lately none have helpedsad appreciated xx
  • pat38625
    pat38625 HOTpicks99

    Posted

    Hi, am so sorry that you are feeling low.  Please take Eileens advice and if you can take someone with you.  If you can get paper and pen and write down how you are feeling, don't worry about spelling or grammer, just get it down.  Sometime the very fact of writing it all down can help your mood, because you are taking it out from your mind and actually looking at it in black and white.

    There is light at the end of the tunnel and sometimes the tunnel really isn't that long, believe me I am sure we have all been there one time or another.  So take heart because you will get through this.  There are a great bunch of people on here who can give you advice, support and loads of information.  You take care and the best of luck for tomorrow.       Pat

    • HOTpicks99
      HOTpicks99 pat38625

      Posted

      Thank you the pain is unbearable hoping they will sort it out for me tomoz need the help of someone xx
    • pat38625
      pat38625 HOTpicks99

      Posted

      Anyone will tell you on this site that there is no painkiller (I was prescribed co-codomol) that will take the pain away.  The only pain relief is from steroids (pred).  I could not go back to that pain.  Yes I have still got a few aches and pains but nothing like it was.  I can live with that.  Hope you get sorted out vey soon.        Pat
    • HOTpicks99
      HOTpicks99 pat38625

      Posted

      I just to have a pain free time its depressing to know its going to be the same every day sad
    • pat38625
      pat38625 HOTpicks99

      Posted

      I understand, I was in constant pain every minute, every hour, every day.  I couldn't turn in bed.  Mornings were worse, I was like this for approx 6 months.  You will be able to function again and be pain free, once you get sorted out at drs.   
  • Mrs.Mac-Canada
    Mrs.Mac-Canada HOTpicks99

    Posted

    I am sorry you are in such awful pain.  PMR is such a nasty thing but you'll be better with the right care. 

    I agree with Eileen that you should take someone with you tomorrow and also, if you can, either refer the doctor to the link on the PMR-GCA UK North East Support group site which Eileen can send to you if hope. If the GP is not familiar with PMR  this should help him/her.

    If it is indeed PMR that you have and the doctor gives you the recommended dose of prednisone and you respond like many of us have, you will feel at least 70% better within a day I think.   I, like a few others, felt 90% pain relief within 8 hours of my initial dose of prednisone. 

    Best of luck tomorrow and "this to shall pass" smile

    Hugs, Diana

    • tina-uk_cwall
      tina-uk_cwall HOTpicks99

      Posted

      Hi hotpicks, I am not sure if you have been diagnosed with PMR yet but if you haven't ask you Dr if he will agree to a short course of prednisone. 15 mgs for 2 weeks. A short course like that will do no harm at all and if it helps your pain then there's the diagnosis your Dr requires to keep you in the drug providing your symtoms fit the condition, well they can be as long as a piece of string! Good luck for today. Christina 
    • HOTpicks99
      HOTpicks99 tina-uk_cwall

      Posted

      Awww thank you hope i do have good news today u know when u reached the point u have had enough well ive got to that point
  • HOTpicks99
    HOTpicks99

    Posted

    Seen doc changed my tabs going to see rheumatologist after scan hopefully then some answers
    • tina-uk_cwall
      tina-uk_cwall HOTpicks99

      Posted

      Hi hotpicks, do you have a date for your scan and rheumatologist appointment, also what medication, which I presume is for the pain, has he now given you? Christina 
    • HOTpicks99
      HOTpicks99 tina-uk_cwall

      Posted

      Feb no date til after then naproxen paracetamol and strong dose of tramadol
    • tina-uk_cwall
      tina-uk_cwall HOTpicks99

      Posted

      Hi hotpicks, let's hope you get both your scan and a rheumatologist appointment asap in February then get this pain sorted out once and for all, do let us know how you get on. All the best christina
    • Mrs.Mac-Canada
      Mrs.Mac-Canada HOTpicks99

      Posted

      Did you suggest PMR to your GP?  If so why would he not try prednisone to see if you respond to it?  Taking a 15mg to 20mg dose for a short time wouldn't hurt you unless you're on other meds that don't work well with prednisone.  February seems like a long time away if you're in unbearable pain,  I hope the drugs will relieve some of that for you but prednisone seems so much easier.  I don't know what your current health situation is and so these are just my thoughts on it.

      wishing you relief and rest

      Diana

    • pat38625
      pat38625 HOTpicks99

      Posted

      Its good to hear that you got some things sorted out.  Hopefully you will get some ease now.  Take care and keep in touch.     Pat
    • HOTpicks99
      HOTpicks99 pat38625

      Posted

      Si will thanx for your replies appreciated first time today in avery long time i had a couple of hours painfree will let u know what they diagnose me for
    • pat38625
      pat38625 HOTpicks99

      Posted

      I am so glad that you had some pain free time.  Please keep in touch and update us all on your diagnosis.  Take care.    Pat
    • HOTpicks99
      HOTpicks99 Mrs.Mac-Canada

      Posted

      Thanx for your replies and help i appreciate finally asaw doc who referred me the painkillers she prescribed for the first time in a long time i had a couple of hours pain free will let u know what happens
Back to top
Next

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.