Had GA since I was 21 years old now 39! Frustrating!
Posted , 6 users are following.
First sign of GA was after a terrible sunburn when I was 21. Spots started to form from a pimple into a ring like structure. It itched terribly! I immediately got a biopsy because I thought I got ringworm. Biopsy came back GA. I usually get spots on elbows, knees, behind knees, buttocks, groin and armpits. This is followed by fatigue and seems like I I get sick easily. Best I felt was when I was pregnant. No GA during my whole pregnancy! It comes and goes with stress trying to relate it to diet as well. I plan on doing a gluten, dairy, sugar, caffeine free diet for 30 days to see if it makes a difference. In my eyes I believe that GA is a blanket diagnosis for anyone that is having this rash due to their "own" bodies immune response that's trying to tell us something is going wrong inside of us. After all our skin is our largest organ and our first line of defense! I definitely think triggers are food that causes inflammation or medication that causes inflammation even daily soap and cream products that triggers a flare up. Even if these are not the underlying cause I believe they still can cause a sort of allergic reaction because our bodies are trying to protect it from some underlying disease or disorder. I believe that we all have our own underlying problem that may be different from one another therefore treatment may be different for each case. I have not tried any treatment except steroid cream. I do not believe in trying to cover up what is a cause by taking medications that are only temporarily patching the problem and may cause another one. I know that when I catch the spots as soon as they start ( like a pimple) before they become ring shaped with .05% Clobetasol Propionate they fade in couple days. If I wait it does not work as well or at all. Hope this helps! Overall I am pretty active and have no other health issues that I am aware of.
0 likes, 8 replies
ros64441 shannon78
Posted
You're very sensible in my eyes Shannon. I am 60. When I was in my 20s I remember getting weird spotty rashes but it was never diagnosed - always put it down to allergies back then. However, through my life, my GA was finally diagnosed when I went in to have a hip replacement and a skin specialist happened to be doing his rounds. ~Thanks for the tip of 0.5% Clobetasol Propionate - i will give this tip to my son who is 34 and is unfortunate that his GA only breaks out on his face - left cheek only and also flares up when he is stressed. My other son also has GA and it was evident on his hands when he was a teenager but we never got a diagnosis (in Ireland! some doctors still do not know about GA) - anyway, we consider ourselves lucky to have this form of auto immune as my daughter was not so lucky and her AI disease is related to her thyroid (Hashimotos) - so her efforts to keep her system cleansed and manage the disease has had a great effect on all of us in the family - the main focus for us is to keep inflammation at bay anywhere in the body by keeping a clean and healthy gut and balancing emotions/stress/lifestyle - most of all we support each other and understand that the rash is only the tip of the iceberg - anyway, thanks again for posting that info x
cheryl09489 shannon78
Posted
I agree that there are triggers and am thinking of trying to eliminate certain foods.
I was a child that always had allergic reactions to poison ivy, bee stings anything involving the skin. When I became pregnant I ceased to have allergic reactions and even to get poison ivy. With my second child I got poison ivy so bad my face blew up and eyes closed. With my third child born I have not gotten it for 42 years, so what is the link.
Keep posting as I will especially after I see my dermatologist in June. I will also tell you that I was on antibiotics for 3 years once a month which worked the first year and 6 mo after I stopped came back with a vengeance. It no longer works so I intend on discontinuing when I see the dr.
nora94022 cheryl09489
Posted
cob cheryl09489
Posted
My GA is so widespread. Both calves are covered and have huge dark brown plaques (that's what my derm calls them). It's also on my face. I play lots of golf and continue to wear shorts even though my legs look awful. I try to ignore how awful my legs and arms look from it. The Clobesterol didn't do a thing for me. It's interesting how different things work for some and not others.
shannon78 cob
Posted
nora94022 shannon78
Posted
Shannon, your post on GA is one of the most accurate that I have read on this forum. I am glad that someone else has finally mentioned Clobetasol cream as a way to manage GA. I have been mentioning it on this forum for over a year. I never noticed a "pimple" as the start of the GA rings, but I will be on the lookout for this from now on. I too had a type of burn followed by sunlight exposure which I believe started my GA about 20 years ago. However, my experience with GA differs from yours in that I find Clobetasol helps me eveb after the rings form. You just have to have more patience while waiting for results and use it persistently. It takes time but does work. For example, I had a large patch of GA on both of my upper thighs, front and back. I really wanted to wear a bathsuit but was embarrassed by the GA so I used Clobetasol morning and night for 2 weeks on and 2 weeks off as directed by my dermatologist and repeated this treatement for two cycles. Evenually, the GA rings faded to the point where they are barely noticeable and they have not come back yet. I used this treatment over 3 months ago. I also had a very, very large red patches of GA behind my knees. I had my dermaologist inject steriod into those patches. Again, the GA faded within 2 weeks, however, I discovered that GA can leave the skin discolored after treatment. So now, although the GA is gone behind the knees, the skin in that area is a darker color than before. I hope this will eventually fade as well.
shannon78 nora94022
Posted
I find that with GA if you use a very small amount of Clobetesol apparently goes a long way. The key for me is apply and reapply 2-3 times a day until completely gone, even the dark coloration/ stain you see at the aftermath. I also find that I need to do this in the very beginning stage. In my original comment I said it looks like a pimple when it actually reminds me more of a mosquito bite. Even though the steroid cream works only in the beginning at least it appears to be working, you got to remember it is a small amount at a very low dose .05% BUT remember most of us been suffering from these awful spots for years and the exposure to the
Steroids does all add up over time. I stress little amounts. I would not recommend putting it over a large area, face, or bends in the pits, or anywhere where there is complete friction....although I got to tell you the truth my flare up is worse then ever and I have been applying to my armpits. Guess you get frustrated and desperate at the same time! I also want to mention if I catch the spot before it morphs into c-shaped spots. It completely or seems to complete go away. I also want to let you all know I am going to do a 30 day program to better health and wellness which incorporates a cleanse at the 3rd week, no peanut or anything that may cause inflammation such as gluten, dairy, caffeine, sugar, alcohol etc. I will definitely report my results. I hope this jump starts my immune system! I know overall it takes 1/2 year for complete health makeover, but at least I will see if any these things will trigger an immune response when I start incorporating them back into my diet. I hope I don't starve to death since all the above is part of my daily needs and wants, stay tuned for update!
nora94022 shannon78
Posted
I did use Clobetasol all over large area and it worked and I'm thrilled that it did. I would do it again if I had to. I did this with doctor supervision. And approval – actually I had two Very good dermatologists' approval so I wasn't worried. I also tried UV light therapy in my dermatologist's office. I did this 3 times a week for six weeks and it didn't do a thing. I'm writing this using my phone's dictation feature so if you see all sorts of misspellings – Typos, I apologize.