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I'm a 41 year old female and was just diagnosed with LS. The feelings I have are anger and relief. I know I've had this for as long as I can remember, but 1) I didn't realize that something was "off" and 2) no doctor ever noticed the symptons.
The skin above my clitoris and my clitoris have fused on and off for years. I've had the white, crinkly skin as well as the itching. Fortunately, my vaginal opening seems to be unaffected.
I'm angry because I can't believe all those doctors never noticed and the ONLY reason why they diagnosed it now is because I told them that I think I have this.
Anyway, it has been confirmed and they started me on the Clob. I've been reading through the posts here and I'm looking for clarification on a few things:
1) My doc advised me to apply the Clob 2x a day and come back in 4 weeks to see how it is going. I've read different things about 1x a day vs 2x a day. I really don't want to make things worse, so should I stick with 2x or switch to 1x a day?
2) I've read different things about reversing the fusion/adhesion. Does the Clob do this? Will I always be fused or is there a way to un-fuse my clitorial hood and the surrounding skin?
3) I've read different things about coconut oil and baking soda. What is the purpose of these two items? How is it used? How often it is used?
I know that there seems to be a connection with autoimmune diseases and LS, so I figured I would mention that I do have Hashimoto's (thyroid disease). I'm sure I had the LS first because like I said I remember my vagina being like this on and off forever. The Hashimoto's is a relatively recent thing. Dianosed withing in 2009-10. It has been under control since then.
I've never really had issues with sex and I had a baby 3 years ago without knowing about the LS.
Due to other circumstances in my life, I haven't had sex in almost 4 years, but now that I know this and am actively trying to have sex (not successful yet!) will using the Clob be a problem?
Anyway, I'm so glad that this forum exists because the information out there is confusing and lacking.
Thanks for reading and hope you have a great day.
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