Had ME for 7 years, remission break of 4 years now also have heart problems

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Hi, I had Glandular Fever when 19, And came down with ME 7 years ago managed to get it under control but due to various things lost control last year and am now quite ill with it. I also have Prinzmetal angina - macro and micro varients and have intermittant arrhythmia. I contribute and read mainly on the heart forums here but thought I would like any feedback that can be given to anyone on the ME side... Also realising i should be on here too and thoughts and ideas would be very helpful. Also just being retired early due to ill health.   

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  • Posted

    Hi Andrew, I am very sorry that your varous problems brought you here. Of course that is true for all of us on this forum. My basic problem was a poluted environment. I moved house and carfully investigated all food to discover any that upset me. It was a slow process but it worked,

    Wishing you successing in again beating ME.

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  • Posted

    Hi Andrew,

    I am really sorry to hear about your health issues.  M.E is a terrible illness anyway but to have other issues on top.  My CFS/ME I am sure was brought on by getting very stressed and trying to achieve the unachievable to which I have now paid the price.  My thoughts would be go with what your body is telling you and rest, rest, when you have to.

    Take good care

    Tina

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    • Posted

      Thank you Tina, i understand what you mean by the cause of stress here, i have been through it twice  and yes some things cant be done even if they should be possible with the right people trying...  I think the ME came back and the heart was casued by trying too hard to do the right things. Thank you for your thoughts. 
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  • Posted

    I think you're right that we can get stressed by trying to do the right things. Everything becomes a worry, have I done this, have I done that and the sheer amount of energy things take. Sometimes I get so fed up of taking supplements I don't bother for several days.

    I think we have to strike a balance between doing what's good for us and relaxation, and not thinking about being ill. I hope you get better!

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  • Posted

    Hi  Andrew sorry to hear your unwell.

    I think ME either masks or adds to medical conditions.

    You can’t exercise because of ME/cfs and if you don’t exercise you put your heart at risk?

    The heart after all is a big muscle and is effected by fatigue like any other muscle in the body I guess.

    I too suffer with heart issues and ME its not easy is it.

    Staying positive and plenty of goals and lists...

    all the very best.

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    • Posted

      Thank you and you!!! this is a good place for us all to gather to pool our meidcal experience... who knows ond day some one will havea eureeka moment!
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