Had Psoriasis for 22 years, Now on Enbral

Hi

I'm 44 and have psoriasis for approx 22 yrs also and have also tried all the same treatments as you have, some worked a little and some made me feel awful!!

I took enbrel for the first time October 2007 and was on 2 25ml injections per week and after 6 months was almost totally clear, just a few patches left on my knees. I stopped taking it for 6 months and it started to come back slowly. Now back on them again and hopefully fingers crossed it will do the same (must say I did have a problem getting specialist to give it to me the second time as someone using it had had some bad affects). I have had no side affects at all and it works!!!

How have you got on??

Tigs

:cry:

I entered a research a double blind study comparing Enbrel with a new biologic called ustekinimab (?) and, self injected either a placebo, or Enbrel twice weekly for 12 weeks.

After 12 weeks and then a two week respite, they gave me two injections of the newly developed (uste). Within two weeks every lesion had vanished along with all other symptoms of P, and I thought I'd be cured forever. PRAISE THE LORD!!!!!!!!

What they didn't tell me was that my P would return within 6 weeks and progressively become more severe than when I was first diagnosed.

[b:ce8cd5eaf0]Ever get caught by the \"pull my finger\" joke?[/b:ce8cd5eaf0]

Believe me, there exists NO silver bullet, or cure as yet but come Jan '09, (FDA approval) you can get the injections from your doctor. Now here's the downside. The cost without insurance is approx $1,000 per injection, and you'll require 3 each year. Most insurance plans will NOT approve this so you're on your own. Secondly, there exists NO long range history of use so it might be BLACK BOXED LABELED by the FDA if there are any deaths over the next 5+ years.

If you're a senior citizen, take a chance as you'll be dead within 20 years in any event, and if you're young and brave...then go for it!

good luck!!!!!!!!

I was on enbrel and it almost cleared my psoriasis in 12 weeks. I was on it for about six months and then was told I had to have a break. My psoriasis came back slowly at first and then I was as I had been before treatment. Managed to talk the consultant into putting me back on it but it didn't work anything like as good the second time around. I was gutted. Now back on for a third time as it does calm things down but being clear was fantastic. It's almost worse having been there than not having been there at all if you know what I mean. Fingers crossed research keeps looking for the cure.