HAD TO GO BACK TO 10mg TODAY
Posted , 5 users are following.
Last night my nech, shoulder back of neck and behind ears all started to hurt, then started with awful headaches, went to bed early, this morning had to take my pred 2 hours earlier than normal the pain and aches were so bad.
Went for my bloods doctor said go basck to 10mg till you feel well enough to reduce, so thats what i am doing, was doing so well i did the dead slow method, 2 weeks long with going on holidays, so will have another go when i feel better.
Got a copy of my DEXA SCAN
limar spine T Score -1.2 Z Score 0.6
Rt Total hip -0.4 Z-Score 0.9
Lt FemoralNeck T Score -1.1 Z Score 0.4
Lt total hip T Score -0.2 Z Score 1.1
Osteopenic. Degenerative changes in the spine, a wide range of BMD values in the spine, the significance of this is unclear.
Investigations FBR,ESR,U AND E,LFT, BONE PROFILE SERUM ELECTROPHORESIS.
CONSIDER BISPHOSPHONATES.
Rescan advice in 2 years
I still feel as though i do not want to go on the Bisphosphonates, cannot see the doctor again for 3 weeks, so will have a word with her.
0 likes, 15 replies
EileenH margaret22251
Posted
However - it sounds as if they are concerned about the fact you have very mixed readings in the spine and it is possible to have the odd vertebra that has very low readings that could compress at a later date. I might be wrong - but I didn't think there was a lot of evidence for bisphosphonates doing much in the spine. I believe Forteo has been seen to rebuild spinal bone.
Why not call the National Osteoporosis Helpline - I've been told they are really very good at talking you through what it all means and your options.
EileenH
Posted
margaret22251 EileenH
Posted
I will try and ring the Osteoporosis helpline.I feel better now after speaking to you.
EileenH margaret22251
Posted
margaret22251 EileenH
Posted
EileenH margaret22251
Posted
pauline36422 margaret22251
Posted
thats if its the wakefield margaret
margo25238 margaret22251
Posted
margaret22251 margo25238
Posted
pauline36422 margaret22251
Posted
but the knees are still bad, will ask for xrays when i see doc on wednesday.
EileenH pauline36422
Posted
margaret22251 pauline36422
Posted
When i was on ten full time the temple pain was a lot worse, but when reducing to nine this was 80 per cent better,started reducing on the 7th June on the 7th July finally 9mg full time kept to it on holiday, but when i came home it got worse(SHOULDERS AND NECK ETC) so went back to 10mg and now giving another go at 9.
Ater i take my pred it takes about 2hrs for the aching to ease, but i put this down to withdrawls system.
Had some bloods done this week so will see what they say, i know people dont set store by them but i will know if the results are either the same or higher than my last one in april.
Take care. Mags
pauline36422 margaret22251
Posted
EileenH pauline36422
Posted
pauline36422 margaret22251
Posted