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haemochromatosis

Posted , 6 users are following.

sue93252
sue93252

i got dx yesterday with haemo will i now have to have tests to see if there has been any damage caused??

1 like, 4 replies

4 Replies

  • Chris8968
    Chris8968 sue93252

    Posted

    Sane thing here. They want me to come in for a liver biopsy.
    • ruth51315
      ruth51315 Chris8968

      Posted

      Sorry to but in... just wanted to let you know that there is an alternative to lover biopsy.  When I was diagnosed with haemo the gastroenterologist tried to force a biopsy onto me, too.  I really hate needles so refused.  Then it transpired that an MRI scan is available, and a Fibroscan.  The biopsy only looks at a tiny piece of liver tissue so the margin for error is bigger than for the other 2 methods, where a much larger area of liver is looked at.  If you can avoid the pain of the biopsy, why put yourself through it?  My gastroenterologist thried to bully me without telling me that there were other options.

      Good luck.

  • zach76568
    zach76568 sue93252

    Posted

    If your ferritin is over 1000 then possibly, but it's wonderful that they caught it and now you will start to feel better!

  • jan93765
    jan93765 sue93252

    Posted

    I think it depends on what symptoms you have been exhibiting prior to the diagnosis.� In my case, it turned out that many of the individual issues for which I had been treated were later found to be attributed to HH.� Wish I had read this string a year ago as I have been through two liver biopsies, three CT scans�and numerous blood tests.�That all said, since I have started treatment, many of these issues have gone away.� Take care!�
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