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Haemochromatosis and frozen shoulder is there a link?

Posted , 5 users are following.

marie86421
marie86421

Hi All

Having recently seen a rheumatologist and having to give a brief medical history to him, I was surprised to learn that the two frozen shoulders that I have had are linked to haemochromatosis. 

I am interested to see if any of you have had a frozen shoulder.

Not only have I had 2 frozen shoulders but carpel tunnel release in both my wrists as well.  I thought that the carpel tunnel was due to the fact that I used a computer all day at work.  The first carpel tunnel release was done in 2000 on my right wrist (I am right handed) and about 2 years later my left shoulder became frozen.  So dibilitating and painful and a long recovery.  It took 2 years for it to free completely.  In 2008 my right shoulder froze and this one took 4 years to release.  During that time, in 2009, I had carpel tunnel release on my left wrist.  Both these ailments were before I was diagnosed with ferroportin disease.  I was diagnosed in 2011.

At the time of my second frozen shoulder my friend was wondering if the ferroportin disease had anything to do with it.  I just didn't know and didn't think to ask my consultant but I shall do on my next visit.

Look forward to receiving your comments.

Marie

2 likes, 22 replies

22 Replies

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  • sunni13905
    sunni13905 marie86421

    Posted

    My mum and my brother are going to go get levels checked.  I was discussing the different symptoms with mum and some that i mentioned she had besides the ones I knew about. 
  • Flangies
    Flangies marie86421

    Posted

    Wow I too have hemochromatosis and have had both shoulders operated on due to arthritis and frozen shoulders
    • marie86421
      marie86421 Flangies

      Posted

      Hi Flangies

      Sorry for late reply, I have been away for a few days.

      I find this very interesting.  I have had only one medical professional tell me that there is a link between haemochromatosis and frozen shoulder, and that was the rheumatologist I saw at the end of last year.

      Have you ever had a repeat episode of frozen shoulder?  I have had both shoulders freeze up at different times once.  Both of these episodes my ferritin was quite high.  I am hoping that I never have a recurrence of frozen shoulder as it was soooooooo debilitating and painful.

      Best wishes

      Marie

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