hair falling out due to alopecia, need a friendly chat and some advice please :)

Hi All

i have just come on for a moan...I was feeling positive that my hair had started to grow again then last night my mum found another patch at the back of my head, it's the size of a 50p at the moment but finding lots of hair everywhere again. Not sure I can cover this one. Sorry to come on and just grumble. Hope everyone ok

Bev x

hi everyone!

hi bev, so sorry to hear that my hair is always everywhere too, my patch has also got bigger.. have been emailing vanessa, our patches are very similar. its so difficult to keep positive when this is happening but if we are down it'll only get worse! you've got my email if you ever need a chat, my emails come through to my phone so i can always reply! take care x

Hi everyone

Aw Bev I'm sorry to hear that too! It's normally a stress thing so try ad keep yourself as relaxed as possible and I know it's easy to say but try not to worry about it, at least you have us all here too talk to who are going through/have gone through the same thing!

Thought I'd let you all know too that I've got an appointment in January to see a specialist so ill let you know how that goes (was going to email you again Alexandra but I guess you'll read this on here anyway)

Hope everyone's ok!

Vanessa x

Hi.

Thanks for your replies. I had actually stopped worrying about my hair and learnt to live with it so cant think what is causing it at the mo. Im also away from home and work so very relaxed.

Sorry to hear yours is getting bigger Alexandra.

Yes it is nice to know there are others we can talk to who understand.

Thanks for all your support

Bev x

Hi All,

I've read through all the posts, I've had hair loss for about twenty years, but it's only recently has it become debiltatingly bad! This after my usual colouring - nearly had a panic attack!!

Now at a loss what to do - too frightened to wash it !! Even felt 'crushed' with the doctor's diagnosis -

'male pattern baldness' - what's the point any more!

Hi Alexandra31, I don't know whether your problem has resolved itself yet, but just thought I would make you aware of a new treatment for Alopecia Areata. It was featured on the TV programme 'Embarrassing Bodies',

don't know whether you watch this programme, but it was the one where the team of doctors were in Australia. It showed a very effective treatment regime where the patient has a course of steroid treatment injected in to the area on the scalp with hair loss, and it apparently works very well. I am sorry I haven't got a link for this treatment, but you could more than likely google it and find appropriate information.

If you still need help and you are still looking at the forum may be this might help. Your GP may be able to give you advice or point you in the right direction for help with the above too. I don't know whether this treatment is just operational in Australia or whether it is done here too.

Hi Alexandra,

I'm currently also suffering from alopecia areata, I've got one spot in front of my head like 9 months. I woke up in a morning with a spot on my head, after a stress. At the beginning was very slow, but it started to extend very quicly. I've done a lot of analyses and I advise you also to follow them. Those are:

Thyroid- TSH, T4, T3, T2 hormones

Pancreas analyses- amylase and lipase. The pancreatis can cause hair falling and alopecia.

Differential blood count, HB, HT, Indices, ESR

Intestinal microflora

Serum Calcium

Serum Iron

Zinc

Doppler test

Encephalogram test

Spine radiography

The last 3 test will show if there is any blood perifical circulation problem.

In my case, revealed problems with the pancreas(high amylase and lipase), low hemoglobin and bad blood periferical circulation.

I made an intensive threatment with homeopatic injections advise by my dermatolog, some pills for liver detoxification and pancreas normalization, pills to improve the blood circulation+ calming pills. Additional to this I made a few therapies: Corticosteroid therapies (which include intralesional injections); darsonvalization and  Cryotherapy With Liquid Nitrogen. On a daily use, morning and evening I used Minoxidil solution of 2%. All this threatment helped me, and in 1,2 weeks since starting it, my hair started to grow. Also it stopped falling so heavy.

The most precious advise (the doctor migh indicate it), keep a good diet for a few moths.

Now my spot is all cover with hair, some of it is big and colored, other white and small by the moment.

I hope my advise helps you.

My story is I'm 21 female. And have been losing my hair for a week. I've been diagnosed with alopecia areata and had a thumb sized patch last week. Now I have lost a significant amount , I am not one to preach as I am probably the least experianced person on here when it comes to this subject matter but I find the more I speak with people the more it is helping me deal with it. Maybe ask doc for some steroid cream as mine is convinced it's the best option but certainly doesn't infinately promise hair regrowth but maybe. 

I've ordered a wig ") and wear headscarfs all the time. You can find some beautiful designs on YouTube so that of it is more noticeable like it is for me , you can hold your head u p a little. I find it hard especially right now but if you need someone to speak to please message me on here ") I dont mind ranting with you about how annoying it is ") and if I get anymore tips I will let you know. 

Hope you are well xxx

I too have two bald patches at the back of my head also first noticed by my hairdresser.It is very upsetting but I've had for 2 years now and have tried so many things.Sometimes it appears to be growing back but then falls out again.

It has been diagnosed by a dermatologist as alopecia areata.She explained their is no cure as such and they think it is caused by the immune system attacking the hair follicles.

It did start when I had a lot of stress in my life but I've reduced the stress but still have the problem.So far Ive tried the prescribed cream a type of immune suppressant cream.Seemed to make it worse?Now have a steroid cream to try from the dermatologist.Have also tried a multivitamin for hair.Garlic and rosemary hair oil.Follicle shampoo and conditioner.

Thinking of trying Minoxidil lotion which is used for female pattern baldness but have been told that this just produces the fine type of hair you get on your arms?

I have also bought a wig just incase it all falls out but haven't worn it as it doesn't suit me and feels hot and itchy !

Anyone found anything that works ?I think maybe it is better when I don't look at it ! Perhaps not worrying about it is the first step?But so hard!

Hi ale alexandra, I am experiencing the same thing, I noticed your post was written over a year ago, I was wondering how you got on / what you tried. I am a 23 year old female and having a very tough time with it only being diagnosed 3 weeks ago with two patches one large one slightly smaller.

Thank you!

ust signed up to this never been a forum type of person but i must insist onsaying something, as an ex derm nurse, and the husband of a wife who had this problem,for 20 years  we think we have cracked it,we have been to derm doc, who as usual will give steroid, oh and would you like a wig, she has tried meat free, non alcohol, and all sort of homeopathic nonsence

but i can tell what has worked , keep off bread, pizza , pasta , its gluten she also gets very bad stomach ache from leading up to the patches appearing

the problem only comes back if she goes particularly back on pasta,

3 years on her hair has maintained and all areata has gone, all grown back, but as soon as she tries pasta a small hairless formation starts about 8  days later, along with stomach problems.

i have advised a patient in hospital 18 months agowho was only 20, she also had the samesymtoms andnow she has followed the same as my wife, guess what, yep all hari back no stomach problems0 Report this Reply[darren62159] ★1

darren62159 peter49784 • 25 minutes agoo and by the way she doesnt have coeliac disease, she has been tested but it is a very sensative test so my advice would be to ignore it and have a strict gluten ffree diet for at least 3 months,

also look at the evidence of the link between glten free and hair loss, many times it mentions the stomach flora being unbalanced due to gluten

Hi Alexandra I've just been diagnosed with alopecia. I'm going for blood tests next week. Reading your story is like how I'm feeling right now, scared and alone. How is your hair growth now and do you have any advice you can share

Regards laura

Hi I'm jack I'm 17 and I'm experience alopecia could u give me some advice plz I feel down