Half my thyroid was removed 20 years ago.
Posted , 3 users are following.
Half thyroid removed
Lab numbers normal
Trouble sleeping some nights
Tired
If half the thyroid is gone do normal numbers really reflect how the thyroid is performing
1 like, 4 replies
Sketchy dor95888
Posted
dor95888 Sketchy
Posted
jen00 Sketchy
Posted
You are saying that not putting people with lobectomy on hormonal replacement/supplement therapy is alarming. I totally agree with you! But what can we do to convince doctors who have that ultimate power to issue a prescription?
Half of my thyroid was removed nearly two years ago and my life has not been the same since then. I have seen 3 different GPs and they all say that that my blood tests are within the normal range.
My personal experience with NHS (I am overseas originally) is that the system's motto (at least at GP's level) is to fobb the patients off if they present their health problems the treatments of which would cost any money. Something which is totally imcompatible with the mission of this profession: to treat and cure. So I am trying to preserve the leftovers of my energy and concentrate on roundabout ways to get my life back. I am saying "roundabout" because the only sustainable way to get replacement hormone therapy is via doctor's prescription. At the moment I am looking into alternative route: buying ThyroGold supplement from the USA. There is a lot of positive feedback from people with similar conditions and it is my main hope at the moment.
Sketchy jen00
Posted
You are in the United Kingdom I asume! I am in Australia. I had my thyroid lobectomy 28 years ago .. I weighed about 60kg at the time and was put on 100mcg of Oroxine when I left the hospital. I was told that on that dose my thyroid would get the message to 'go to sleep' it did not have to work any more as the tablet would do all the work for the rest of my life. I took it dutifully for 27 years and did not have a problem .. I felt ok. I was tested yearly and told I was within the range and all was well. I did not even know what a tsh reading was as I had not looked into anything thyroid as I felt well. I think body weight has something to do with the thyroid dosage eg. 100mcg Oroxine for a 60kg person but some doctors have disputed this. You could perhaps look this up. I only started learning about thyroid problems a year ago when a doctor lowered my dosage and I became very ill. So although I have been on thyroid meds for 28 years I feel like a newbie at this as I have learned so much over the past year while trying to get back to normal myself.
I don't know how the NHS works but if you spoke to your doctor and
offered to pay for the medication yourself would they then write you a script? I don't know how much it would cost in that case but I think it would be safer than having to buy medication over the internet especially if you asked the doctor to help you with advice on dosage and monitoring.