HAPPY EASTER everyone and then 'Guidance' please.
Posted , 6 users are following.
I did a daring thing yesterday - I uped my pred from 7 to 9 - that's the first time I have done that, off my own bat, in all the four years!
I have been hovering around 6/7 for a few months, but I have never really got rid of the pain. I put up with pain. So many people have the most awful, incurable, illnesses that I feel guilty moaning about my discomfort.
The thing I want to know is: how many of the a-typical PMR patients on this forum have similar difficulties after so long. My blood results yo-yo, never completely in what is considered the 'normal' range.
Thanks, in advance, for any advice.
Constance
0 likes, 19 replies
margaret22251 constance.de
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MrsO-UK_Surrey constance.de
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EileenH constance.de
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I'm at 4mg now, been down to 3mg and an ache came back so I went bact to 4mg. Pretty much pain-free there. The question now is whether the PMR is (nearly) gone and it is just getting rid of the pred. I do feel different somehow although I can't really explain it.
EileenH
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pauline36422 EileenH
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more a little achy. but my knees are not good but i think that is a bit of athritis. as 10 years a go i took celery seed as i have explained before and the pain went. so am a bout to go back to that, give it anothere go. you did say why not eat celery instead. not that keen lol
EileenH pauline36422
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One lady on another forum has osteoarthritis and her GP was adamant that the pain she had was OA so she should be using paracetamol rather than sticking with her very low dose of pred. Paracetamol really didn't do her liver any good (raised blood tests that made her GP panic) so she had a hip replacement done and then reduced steadily - a few people have found it easier to reduce once a hip has been done. Maybe the pain aggravates the PMR since it is stress. Now she just has some hand pain I think - which was better when she was on pred.
So yes - if the pain you have is definitely different from PMR pain it isn't a good idea to increase the dose just to be comfortable - I just mean it when it is PMR pain that isn't being properly managed with the dose you are on. Lots of people expect to be back where they were pre-PMR, forgetting they are a few years older and probably not as fit either.After all, everybody has the odd ache or pain, PMR or not.
It was MrsO who commented why not eat celery - I'm with you, dislike it intensely! Not sure which is worse, celery or green peppers - love red, yellow, orange whether they're raw or cooked. Green - why pick them? And the bags of peppers almost always have a green one in!
MrsO-UK_Surrey EileenH
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pauline36422 MrsO-UK_Surrey
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constance.de pauline36422
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constance.de pauline36422
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MrsO-UK_Surrey constance.de
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EileenH MrsO-UK_Surrey
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MrsO-UK_Surrey EileenH
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EileenH MrsO-UK_Surrey
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pauline36422 MrsO-UK_Surrey
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margaret22251 MrsO-UK_Surrey
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constance.de margaret22251
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MrsO-UK_Surrey margaret22251
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margaret22251 MrsO-UK_Surrey
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