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Hard to sleep

Posted , 8 users are following.

jayne24241
jayne24241

Hi does anyone find it hard to sleep I try to lie flat but my breathing start playing up I really don't know how much of this poxy Bronch I can take 😂

1 like, 19 replies

19 Replies

  • BookNut
    BookNut jayne24241

    Posted

    I only have trouble when I am in an exacerbation or am on prednisone.  Melatonin helps me in both instances.  However - when I am in an exacerbation, I have to play around with sleeping positions.  Personally, my breathing is better at those times when I sit up perfectly straight, or lay down almost flat on my stomach.  I use a pillow lenghtwise under the left side of my body to prop me up just enough so that my face is not planted on the mattress or pillow.  This works most of the time.  But - there have been times where nothing works except what I call the "baby sleep position".  You know the one.  Facing downward with knees tucked under chest and butt in tihe air.  Not a pretty sight - but works when desperate. cheesygrin
    • jayne24241
      jayne24241 BookNut

      Posted

      I haven't even got no meds yet I don't get much phelm so I'm glad for that but it's just my breathing thanks for the tips 
  • david_25160
    david_25160 jayne24241

    Posted

    hi Jayne, thankfully I sleep pretty good most nights, I do'nt know if it's relevant or not but a year or so ago somebody advised me to raise the head end of my bed by 4-6 inches for a good nights sleep.......... seems to work for me! you nailed it in one with poxy bronchy, mine is doing my head in big time. cheesygrin
    • jayne24241
      jayne24241 david_25160

      Posted

      Great idea David I just want yo see the specialist now and get my life back to near enough normal .Should here this week . Take care 
  • mo_69
    mo_69 jayne24241

    Posted

    You say you have no phlegm?? Maybe the phlegm you are not producing is sitting in your lung as it does with bronchi. Until you expel this your breathing will surely suffer. Have a look at the discussions on here as to how to get rid of it. There are also some You Tube videos which may help.
  • cynthia61971
    cynthia61971 jayne24241

    Posted

    I did not sleep well last night...I had to do my Nebulizing Machine take meds and go back to sleep...I just got up 1:00 in the afternoon..I do not work so it is not a problem..I feel better...Yes sleeping is a big problem of this disease...you lie down you wheeze...
  • charles60050
    charles60050 jayne24241

    Posted

    Drink plenty because it keeps the sputum more liquid.Learn to take deep breaths in and breath out until you cant breathe out any more(you get a rattle )then do some huffs. Having a steam shower sometimes helps.If you have  an affected side then lie on that side so that your good lung is uppermost.
    • cynthia61971
      cynthia61971 charles60050

      Posted

      charles it is funny but I find it hard to breath on my left side...I have told my doctor about this and he had no answer...I don't feel so dumb anymore...so glad you said that...
    • charles60050
      charles60050 cynthia61971

      Posted

      I have mine localised to left side so I sleep on that side so that the muck, sputm does not drain into the right side and also I get good ventilation in the good lung.I have sometimes tried to sleep on opposite side but I turn back.I am not as good at doing physio as others on this forum.I think they must be finding it hard.
  • cc17
    cc17 jayne24241

    Posted

    Jayne, you def need a acapella or flutter device.  I bought a flutter which Twas hard for me to use so have acapella now and its great.  My hospital gave me a deck chair type back rest that is portable and I can put it up in a minute if I can't sleep.  I have a great sofa that has hard upright sides so most nights prior to getting the back rest I was sleeping downstairs.  TV isn't good in the night!!!!!!!!!!!! All suggestions on here are great.  Only a couple of weeks, to see your specialist but start now making a list and make sure he answers all your concerns.   I am in UK and I have been given some medication which releases the phlegm.  Its really good. 
    • jayne24241
      jayne24241 cc17

      Posted

      Well thank you I will mention it all too him , how much phelm do you get I don't get that much I get pain in my back and chest so I don't really know what's going on .
    • jayne24241
      jayne24241 cc17

      Posted

      Cc what questions do I really need to ask the specialist I'm so confused could you give me a few tips thanks so much 
    • cc17
      cc17 jayne24241

      Posted

      Oh Jayne, it depends on your symptoms.  Are you UK?? You need to say you can't get up the phlelgm and you can't sleep and can you have meds.  UK is Carbocistene that brings up phlegm..Ask about an Acapella device to help too.  Have you had a CT scan if not see if he will do that to see the extent of your problem.  The MOST important is to take a sample of your phlegm preferably from the day of your appointment.  You can buy a sterile pot at the chemists/pharmacy.  Must be sterile.  Then take it with you and ask them to test it. My phlegm production varies, because I have other issues.  You must have you phlegm tested often and do not let them give you anti biotics without they test the sputum to ensure you get the correct one for your result.  You also need an appointment quite soon after for follow up
    • cc17
      cc17 jayne24241

      Posted

      I get pain sometimes and its due to an infection normally ie the phlegm isn't moving either.  You need a CT scan and a sputum test to see whats going on.
    • jayne24241
      jayne24241 cc17

      Posted

      Yes cc I have mild Bronch but I think it's on both lungs hopefully I'll be nearly back to my normal self soon God bless 
    • cc17
      cc17 jayne24241

      Posted

      Mine is both, but worse in one than the other.  I am in the North East and go to Freeman Hospital, Newcastle where the help is first class. 
    • jayne24241
      jayne24241 cc17

      Posted

      I am East Anglia I think I'm going to the new Norfolk & Norwich to see the specialist 
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