Hardened skin, loss of sensation and pitting on finger tips?

Posted , 2 users are following.

Although previously diagnosed with RA my diagnosis changed last year to one of primary Sjogren's. However my ANA is nucleolar and my ENA panel was negative so I was diagnosed by a very positive lip biopsy and symptoms last year. 

My fingertips have been tingling and itching for about six months. I thought this related to pompholyx - which recurs on one hand on side of one finger. I also have a diffusesmall fibre neuropathy. But now they have turned hard, numb and pitted - as if dunked in super glue. I don't have severe Raynauds in my hands, it mainly affects my toes. Could this be limited Scleroderma?

I am to have a nailfold cappiliary test in six weeks time but can see nothing untoward on my nailfolds apart from thin, pale, shiny crocodile skin and dry cuticles. My fingertips are really bothersome though. Typing is very unpleasant! 

1 like, 13 replies

13 Replies

  • Posted

    I have the same issues. I have psoriatic arthritis. See a rheumymfor treatment . There is treatment to help the nails get back to normal and slow down the bone damage. Bio drugs have been helpful in my case. See your doc and discuss what is right for you.

    peace and healing.

    • Posted

      Are you sure you have the same issues? Is your skin on fingertips hard and shiny? I have no flaky skin and I do also have Raynauds and chilblains. I was thinking more of Scleroderma than Psoriasis - which I've never had anywhere else? I have a long history of eczema and related Pompholyx rather than Psoriasis. The pitting is mostly in the tips of my finger rather than in my nails although they do have a hard yellow brown overgrown on the cuticles on some of them so maybe Psoriasis is a contender.

  • Posted

    https://patient.info/health/psoriatic-nail-disease-leaflet

    see alsoatient info for exzema 

    • Posted

      Thanks I've read this but still don't think it describes my finger problem. I don't have lesions- just some pockets of Pompholyx fluid filled tiny blisters but don't think these would explain the extent of the pain - although I could be wrong as they are in the very tips too now.

    • Posted

      Not sure what to suggest other than ray area causing these issues. I have not had raynards. But you can address this with a specialist .

      i wear gloves to protect my fingers and steroid injections help to.

      i also have psoriatic arthritis causing the fing tips and bone issues a lot of pain. 

      I am am sorry I am not much help, but I do understand the pain how it effects so many daily tasks in our lives.

       

    • Posted

      You are very kind. I've had eczema all my life and later on I was diagnosed with RA so always think Psoriasis and PsA sound miserably hard to live with. My diagnosis changed to primary Sjögren's last year because of +ANA and lip biopsy but not entirely confident that my Sjögren's is primary. I am to attend the Scleroderma clinic next month to have a nailfold capilliary test but hoping i don't have this disease too. I'm already on the right immunesuppressant now though so it's just a question of wait and see. X

    • Posted

      Eczema is really hard to control  what do you do to help with it. There's all kinds of creams and diets that help some. It just finding the magic bullet. Not sure if any od the injections would help steroids. It calmed the swelling in my feet and hands.

      I hope ur not in the Scleroderma range, it effects the whole body! 

      There a whole FB GROUP that all have 

      SJOGERNS can really be tough in cold weather especially. I wonder if the immunosuppressant you taking is helping  and a biological drug. Many designed to slow down the disease and block the advancement of RA as well.

      i hope your mobility is not effected, it can make life a challenge.

      i have has some luck feeling better with PSA /psoriasis and arthritis with diet changes.

      wish you well and a sunny warm day!

      It's  freezing today here in the NORTHWEST of US. It's been a record breaker cold winter everywhere. Which of course doesn't help our poor bones. WHERE are you from?🌞

       

    • Posted

      Scotland! I think it's a mix of Pompholyx blisters, Raynauds and small fibre neuropathy all waging war with each other on my fingertips! I read that my drug, Mycophenolate/ Cellcept is one of the drugs occasionally used to tackle severe Pompholyx. So maybe it's a mix of all three problems as I've only got the odd cluster of semolina/glass like tiny blisters but they are set deep into the skin so could be setting off tiny nerve fibres I'm guessing? I've asked on loads of the Sjogrens forums but no one seems to know. I've had Pompholyx coming and going all my life but it's never been this painful with just the odd patch! X

    • Posted

      That is painful on tips of fingers. I had Psoriasis so bad on the bottom of my feet I barely could walk for months.

      so I can understand how this can be a combination of pain and each disease taking its toll on your poor fingers. It's difficult to about anything. Even cooking the simpilist tasks .,I hope you have help and above all keep your hand out of water. It's like acid with Psoriasis and eczema.

      i am not familiar with pomphlox. I hope you find some comfort from this disease soon. 👍

       

    • Posted

      It's quite a rare form of eczema - mainly affects younger people during warmer months. So I'm a rarity in this regard, afflicted at 54 during the winter months! 

    • Posted

      My plalmplanter and bottom of feet is seasonal. I get it every winter. 

      There are two forms of psoriasis that can be seen on the palms of the hands and soles of the feet. A milder form causes the feet or hands to be dry and scaly, and a more severe form causes pustules to form on the feet or hands. The severe form of foot (or hand) psoriasis is called palmoplantar pustulosis.Sometimes it is confused with what you have .

      You have a great attitude seem very positive and very informative. I like that about your posts.👍

    • Posted

      It sounds very close to the type of Psoriasis I have and it seasonal every winter I get it.

      "There are two forms of psoriasis that can be seen on the palms of the hands and soles of the feet. A milder form causes the feet or hands to be dry and scaly, and a more severe form causes pustules to form on the feet or hands." The severe form of foot (or hand) psoriasis is called palmoplantar pustulosis.

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