HAS ANY BEEN TO ID AT ITHER ROYAL LIVERPOOLHOSPITAL OR NOTH MANCHESTER GENERAL
Posted , 2 users are following.
After an initial referal to north manchester general infectious disease in april this year a letter came back to my GP stating i did not have lymes and they saw no point in seeing me in clinic but my local MP got involved as i had a positive result for a lymes co infection (anaplasma) ive just got an appointment there for the 28th oct but in the meantime my GP had refered me to liverpool as all my symptoms are progresivly worse now an apt letter has arrived for 16 th nov im now unsure if i should attend both apts and hope one will consider treating me or to cancel the manchester one as they were very dismisive and maybee only seeing me due to pressure from my local MP. if anyone has been to ither would you recomend them. any advice to help me make this hard choice
0 likes, 8 replies
maisie05 vicky89033
Posted
If it was me I would go to both appointments! At least you will have two opinions and options of the way forward? Good luck and stay strong x
vicky89033 maisie05
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vicky89033 maisie05
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hi maisie i went to mancester ID and thank god i decided to keep the liverpool apt aswell the doctor knew less than me about lymes. he couldnt answer how i could have a co infection in my system if i didnt have lymes and hadnt been bitten by a tick. he agreed i had to have been bitten by a tick as anaplasma is a tick infection but then said " if you dont remember a bite and didnt see a rash its not lymes" it didnt make any sence he was contradicting hiself. Its no wonder people realy struggle to get a dignosis and any form of treatment. I think doctors need to look at these forums and see the same stories and symptoms over and over again!
maisie05 vicky89033
Posted
Hi Vicky. So was the Liverpool visit any more helpful? Are you having any treatment?
One of the GP's at my surgery works at the ID clinic at Manchester part time. I saw him last week and showed him my photos of the rash I had. He said it would be a very brave man to say it wasn't Lyme but he thought it more likely to be a fungal infection from an insect bite. And that I'd had the correct treatment if it was Lyme. Doxy for 3 weeks. The rash is just about faded now, I've been using an antifungal cream.
So many of the symptoms are similar to anaemia and menopause which I'm struggling with at the moment. So I'm trying to concentrate on dealing with that but it will always be in the back of my mind that it could be Lyme.
Good luck
vicky89033 maisie05
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maisie05 vicky89033
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vicky89033 maisie05
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maisie05 vicky89033
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Thats's good Vicky. It must be a relief for you to be listened to. Hope you get some treatment that helps you feel better soon x