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Hi All .... this is my first post here.. I've had TM for 6 years now and it has gone in and out of remission many times.. I've had an MRI scan and all was clear so cant avail of decompression surgery, also tried every medication on offer but nothing has made any lasting effect on the condition... I recently noticed that terifying stab of electrical activity in my right temple starting up again and it's gradualy got worse each day for the last few weeks but with the added exception that this time it is far more painful than I've ever had it before. I have a pretty good tolerance for pain and I've been able to manage all the past episodes reasonably well but this time it feels different, like it's kicked into a new state or level where the pain is just beyond anything I could imagine anybody being able to cope with !!! it is literally bringing me to my knees everytime it strikes and all I can do is drop to the floor holding my head and try not to cry out too loudly it's taking all my energy to try and not be in constant terror of the next shock.. I have also developed a strange sense of pressure and movement in the nerve all around the temple / ear / eye area which arises and lingers for a while and dissipates after electrical strikes ...
has anybody else here had this experience with TM of the severity of the pain worsening after a couple of years? and / or developing a strange sensation in the nerve even when there's no pain ?
sorry for the long post and thanks for taking the time to read, if you are suffering TM right now please know you are not in hell alone !
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