Has anybody tried remicade for there RA

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Has anyone tried remicade for their RA ? How is it ?

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  • Posted

    Hi Ted,  tI took Remicade for almost 2 years and then it quit working.  I really liked Remicade. Did not have any reactions only good things.  When I had my first dose all the swelling in my hands went down and they did not bother me while I was on it.  I did the starter dose 3 mg. But I had to go to the 5 mg and stayed there for about a year and a half and then went to 10mg. stayed on that until it quit working. I hope it works as well for you as it did for me.  Good luck, Jo
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    • Posted

      Hey Jo, question for you.  What are you on now?  Just curious because I have been told that the Remacade won't last forever so I wonder what will be my next drug of choice?  :-)

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    • Posted

      Hi Cindy, right now I am on Oriencia.  It takes about 3 to 4 months to kick in and I have been on it for 5 months and no pain. I am also on 10 mg. methotrexate  ( 4 pills once a week) and 2mg. Prednisone daily.  I hope I will be able to get off the Pred. one day, but the dr. doesnt think so, but I keep trying.  I have tried to just cut the pill in quarters , they are 1mg pills but my hands begin to swell and get very painful and then it's back to the pain medication.  One day------- The nurse where I go has been on Remicade for over 7 years, so u never know.

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    • Posted

      Thanks, yes I'm hearing good things about Oriencia.  I'm so sorry you have to be on pred!  I just take methotrexate, 6 pills once a week and the remacade and it seems to do the trick for me.  I hope you can get off the pred soon, horrible stuff, all of it!

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  • Posted

    Hi Ted, I've been on it for over 2 years and I love it!  I just hope it keeps working for awhile longer.  No side effects at all.  They said my immune system would be affected but I have to say, nothing so far.  Good luck but I think you are really going to like it.

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