Has anyone been diagnosed with hemiplegic migraines in late 20's and what was your symtoms?

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Hello I am 29 years old and recently was told that I have hemipligic migraine...i was at work started feeling a little weird then my eye went blurry and then my right arm started to tingle and heart rate was 120 (maybe anxiety at that point) and then my speech was gone for only a brief moment this all was gone well within 40 min....i have had just about every test to rule out tia ...but I have read alot about hemiplegic migraines and I am not convinced that's what is going on😊any advice is appreciated

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  • Posted

    Hi Amanda,

    I have had the exact same thing happen to me many times. Sometimes I entirely lose vision in one eye, I see blackness. I have been to emerg several times, various hospitals, thinking that's it, I'm having a TIA and nothing. I've had the tingling, numbness, and speech impairments. My speech becomes garbled. I can recall one time where not only was my speech affected but I could not write. My hand was jerking every time I went to write something down. I thought for sure I was having a stroke. I understand it is pretty scary as they tell you that seconds count if it is truly a stroke but then again, migraines can mirror stroke symptoms. I have family history of stroke so I never know if I should be worried or not. It doesn't happen often, but when it does, it's scary. Just keep up with your regular family dr/specialist visits and glad to read that you are doing your research. I hope you are feeling better soon Amanda.

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    • Posted

      Hi marie!

      Yes it has been a rollercoaster to say the least .It's just all so strange since I have no underlining health issues ....i have every test and still nothing ...im just not convinced that I have this hemiplegic migraine...and I'm apprehensive to take any medications ...thank you for your response ...hope you're doing well

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    • Posted

      Me too, I am hesitant in taking any meds. I am now taking a low dose of a migraine preventative and I refuse to go higher. Be your own advocate, some drs are quick to hand out the meds. without truly listening to their patient's concerns/symptoms. I think I have run the gamut with tests, all coming back normal. 

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    • Posted

      Strangely enough, no official dx of hemi migraines and believe me when I say that I have seen my fair share of drs in a variety of specialties. I tick off all the symptoms of hemi migraines but they seem to come back with silent migraines. Perhaps that I do not get the vision/weakness issues with every episode. Not sure if you read my other posts, but I did lose consciousness for several hours with one episode. Something that can happen, although rarely, with a hemi migraine. And the crazy thing is the drs I have seen just kind of shrug that episode off as something that can randomly happen to anyone/anytime. Their answer is, well I didn't witness that so I can't tell. Even the emerg dr said it was a strange thing what happened. He said you were fine one moment (well, fine in his eyes), and the next u were unresponsive. My gut def tells me something is not right, but good luck getting the drs on board with you.

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    • Posted

      Sorry to hear that ..your situations seems pretty scary I hope you find a dr who will listen and help you find answers ...my issue is this was a one time occrence and I don't trust the dx

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    • Posted

      Oh, that sounds like a pretty extreme dx for a first time occurrence so yeah, I can see why you would be questioning that. Sounds like a typical migraine aura that occurred. Hopefully this won't be too much of an issue for you. Does anyone in your family suffer from some form of migraines? Could be related to so many different things (hormones, weather, something u ate, stress), so keep notes if this happens again, hopefully not. Try not to stress too much about it. I know, easier said than done.

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    • Posted

      That's what I was thinking basically the neurologist thumbed through my er reports and was like it was a hemiplegic migraine ...no family hx three cousins on my father's side have migraines but nothing debilitating ..moms side no one...its very strange to me ..im hoping for am isolated incident their were alot of variables that day...i had a large coffee with two shots of espresso and within the hour a five hour energy ...my mri showed a developmental venous anomaly and a pineal cyst both supposedly benign

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    • Posted

      Whoa! That's a lot of caffeine within that short period. I truly think it was your body reacting to that level of caffeine, especially if you're body is not used to that level. That def can set off a migraine. Some say caffeine can ease a migraine, yet for others it sets off a migraine, especially in large quantities. Hopefully that was the reason why u had that episode.

      Take care and have a nice day Amanda.

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    • Posted

      Marie I've been seen by some of top headache specialist on the east coast. Fortune they are in agreement that you can have multiple types of migraines. Getting properly diagnosed is critical.

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  • Posted

    I suffer from hemiphlegic migraines. I usually get symptoms on my left side. Mostly my symptoms mimics a stroke. I loose feeling in my left side arm, leg, face droops, I can't talk or write. I get really anxious and frightened. Heart rate and blood pressure are off the charts. Time limits vary. Longest was 48 hours and I was hospitalized. I still have episodes but I'm not as frightened anymore.

    My suggestion would be to see a headache specialist who knows about hemiphlegic migraines, because they are very difficult to diagnose if you don't understand them.

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    • Posted

      Hi Joyce!

      The person that dx my is a neurologist that specializes in migraines...i can recall the events from that day and to me they don't seem the same as what I have researched ....do your symtoms vary each time ...its been two months and I haven't taken any of the prescribed meds and I haven't had another episode...so that is a bit strange to me

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    • Posted

      Yes they have but one thing is constant and that's the overwhelming feeling of fear when I can't talk when people are looking for a answer.

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