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Has anyone been misdiagnosed with IBS ......?

Posted , 4 users are following.

Alison9908
Alison9908

My 13 year old daughter has been diagnosed with IBS - I have my doubts ??She has had a colonoscopy and endoscopy - but doctors say not Crohns or Colitis - even though she has all the symptoms (except the bleeding). 

Has anyone been told they have IBS and later been told it was actually Inflammatory bowel disease? 

0 likes, 9 replies

9 Replies

  • marlene21102
    marlene21102 Alison9908

    Posted

    Does she say it's achy to sit down. Like it's a pressure feeling ,and uncomfortable .? 

     

    • donclaudio
      donclaudio marlene21102

      Posted

      Sorry, Marlene, fingers much more quick than my foggy brain...Need to know Allison's country for available trials...and she should do the berberine evaluation...science daily may also have berberine info in addition to plos one...Claudio
  • donclaudio
    donclaudio Alison9908

    Posted

    Alison,

    the chances are quite slim...the diagnosis of IBD be it colitis or crohns,

    requires "inflammation" and if the Gastroentroloist did a colonoscopy, the diagnosis of either can be confirmed or ruled out.

    Treatment differ's for IBS vs IBD.

    FMT appears to be the most effective treatment for either UC, C, or Crohns. But I see some FMT trials for IBS.

    If you have an interest, check for Free Trials. a few weeks ago, found one in Sweden that was yet "recruiting" for IBS...to qualify for any trial, a diagnosis must be confirmed.(reconfirmed)

    In the mentime, check out berberine search as follows

    berberine IBD, plos one

    not your common Internet sites

    it has demonstrated improvements in both colon inflammation and visceral hypersensivity.

    Not expensive and can be found without prescription.If you cannot access plos one or your national institutes of health, ask your chemist/pharmacist.

    claudio

    • ann_and_nick
      ann_and_nick donclaudio

      Posted

      Hi Donclaudio,

       "Treatment differ's for IBS vs IBD"..looks like "Conventional" was missing..i.e.  Conventional treatment differ's for IBS vs IBD"....

      I see a few  IBS trials having  been completed, but  cannot find reports/outcomes.  if you should find a preliminary please let us know.. . Ann

    • donclaudio
      donclaudio ann_and_nick

      Posted

      Thanks Ann, must slow down.

      Do you and Nick have the NY FMT study that was conducted in 2013?

      It appears at first glance, few and far between trials for children and IBS...FDA refuses to permit treatment unless "approved conventional treatment" has Failed...typical of so many gov agencies..keeps them from "thinking" and doing basic homework...some arrogance as well.

      Claudio

  • Alison9908
    Alison9908

    Posted

    Thanks Claudio - I will research.

    Marlene - not achy to sit down ?

    • donclaudio
      donclaudio Alison9908

      Posted

      Marlene,

      you do the berberine, I'll do the trial research if I know what country? Noticed last week the trials fill really fast...Claudio

  • donclaudio
    donclaudio Alison9908

    Posted

    Hi Alison,

    what were the upper endoscopy results? all clear?

    Reason: often (not always) IBS can be associated with other

    issues. Too often, IBS developes from one to two weeks post an infection and/or antibiotics.

    You might consider giving her fermented foods (if tolerable) dairy, yogurts/kefir, miso soup, fermented cabbage. Use either or both

    science daily or plos one for "lactic acids" and colon/intestinal disorders. Claudio

  • sarah87162
    sarah87162 Alison9908

    Posted

    I was originally told I might have IBS. Doctor thought it was either IBS or gallstones. I had a scan and the result of that was I have gallstones. Obviously the initial symptoms are similar.
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