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hi im having test next week for autonomic neuropathy possible POTS and nerve conduction test at the autonomic unit queens square london. it is as an out patient over 3 days. im having to travel aprox 6 hrs ( patient transport as i have severe balance and vision problems ) i live in the north west and there is no other autonomic unit than in london so they are providing NHS hotel accomodation which seems to be the norm. im very worried about this arrangement now as my health is bad and i never go out without family or friends (even then not far from home) im concerned i will be having test during the day then sent off to a hotel feeling unwell on my own as no one is able to go with me due to work/family commitments. if anyone has been could you please let me know what to expect. i realy dont want to put myself through this but my health is in decline and my doctor believes this is my best hope of a diagnosis after 3 years of going round in circles here. the consultant i saw in june was excellent and actualy listened to my extensive list of neuro problems for over an hour. its just so far to travel and not as an inpatient which i would be more comfortable with.
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