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My doctor gave me Gabapentin 300 mg capsules for lumbar nerve pain in 2008. The first capsule made my hands shaky, but it resolved by morning. I decided to try one more capsule. Within an hour my arms started punching like a marionette. That night, continuous shoulder shrugging began and my head began shaking from side to side. I also experienced a visual disturbance of seeing many bright dots of lights during the onset and I had several laughing spells that didn’t fit the situation. I still laugh a lot even though it’s a difficult condition to live with.
I have found some people who have had jerky movements resolve, but my condition worsened.
My doctor sent me to a new neurologist who recorded that I was a diagnostic dilemma, since I had a normal neurological exam, with a normal appearance six months earlier.
Even though my new doctor has been diligent about searching for help, I don’t think any doctor has ever seen anyone like me.
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