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Has anyone ever had (and recovered) from oscillopsia/retinal slip/"bounding" vision?

Posted , 10 users are following.

dee50000
dee50000

It's almost undescribable, and no one can fully grasp what it is unless they have been affected by it. It isn't really dizziness, although I feel like I am way off-balance, and often veer to one side or another. Only one other people that I have known that had it (and actually got over it) were my cousin, who is quite a bit older than me, and my physical therapist who was treating me for BBPV (vertigo with the CaCO3 crustals that are out of place in your inner ear); she said hers was from an antibiotic she was on, and when her dr. gave her another antibiotic, it stopped.

I don't fit into any of the categories of people who get this rare condition... I never took medicines that may cause it, I don't have an auto-immune disease, a brain lesion, etc. and the neurology specialists I ahve seen can't figure it out either. MRI showed no problems, but ENG testing (calorics test,, where they blow warm and cold air into your ear and you are supposed to get dizz) I had at the ENT office showed I had a moderate deficit in both ears.

I've been doing vestibular rehab training (on my own) for over 7 months with no change. I've had this for just about a year now, and would appreciate any similar stories, what caused it, what did you do to get over it, etc.!

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  • dee50000
    dee50000

    Posted

    P.S. The main symptom is whatever I am looking at, moves when my head moves, such as walking and looking at the horizon, or looking at lights and when I move my head but keep my eyes fixed on the light; these objects finally "catch up" with my head after about 1/2 second. The calorics test showed there there is little communication between my inner ears, my eyes, and my brain (visual-ocular reflex). I was doing some reading on it, and it sounded like vestibuar neuritis but the ENT doctor said it would be unusual to have that in both ears. I also have low vitamin B6 and D levels, for which I am being treated.
  • rocksolid
    rocksolid dee50000

    Posted

    Look into  Vertical Heterophoria 

    Symptoms of Vertical Heterophoria 1. Vestibular Symptoms a. Dizziness / lightheadedness / disorientation with varying degrees of frequency, from occasional episodes to daily awareness. Triggers to Dizziness: 1. Side to side head movement 2. Up and down head movement 3. Getting up quickly from a seated position 4. Bending over to retrieve an object and getting up quickly 5. Riding as a passenger in a car, especially in the back seat 6. Going around curves while in a car 7. High speed expressway driving with fast moving vehicles passing on either side b. Nausea c. Motion sickness and car sickness, often since childhood. d. Unsteadiness while walking. Develops a slower gait to feel steadier on feet and to avoid falling. e. Falls often (with occasional breaks to bones) due to being unsure of their footing. f. Drifts to one side while walking down a hallway. Unintentionally moves in to someone else’s space while walking next to them. Feels like their midline or body center is shifted to one side. Walks in to door frames, edges of tables, corners of counter, etc., often with the same side of the body each time. These symptoms are similar to those seen in patients with MS, sequella of a stroke, inner ear disorder or Meniere’s disease. 2. Head, Neck, and Shoulder Pain Symptoms a. Headaches with varying degrees of intensity and location. Most common locations: forehead, temples, back of head. b. Pain with eye movements. c. A felling of pressure and heaviness on top of the head. d. Facial / “sinus” pain, pain in the jaw region. e. Severe neck and shoulder discomfort due to an accompanying head tilt (frequently obvious). Neck pain described as a neck headache or neck migraine. These symptoms are similar to those seen in patients with sinus problems, migraines, TMJ problems, spinal misalignment issues. 3. Driving Symptoms a. Difficulties with stopping at traffic lights and stop signs. The signs seem to move due to the underlying dizziness. It can sometimes feel like the car is moving backward even though the foot is on the brake. b. Images are seen moving in the peripheral vision that aren’t really moving.

    • dee50000
      dee50000 rocksolid

      Posted

      Thanks! Some of these definitely apply to me. Others not. Las tnight I bent down to read a pricetag and it wasn't while I got up, it was while I was trying toread. The room was spinning. But that ertigo. Maybe the oscillopsia IS related, altho doc says no. Thank you, will look into it.
  • rita52071
    rita52071 dee50000

    Posted

    Honestly I never heard of this....What exactly is it.......I have been terribly dizzy for over a year year and I am going to say no one knows why...although they say it migraines associated with vertigo........medication seems to have stopped working to a degree.....ok just read main symptom......
    • dee50000
      dee50000 rita52071

      Posted

      Hi again Rita. I am going to ask doctor about migraine-related vertigo. Although I've had migraines all my life, but this just started a year ago. I emant to say "Bouncing" vision... Not bounding. lol. And the objct finally reached where it should, not where my head is moved to. Like if I look at a light and move my head to the left, I see a streak of light until my head stops (to the left). Then a slit second later the light stops where it should be (to the right of where my head is pointed. Hard to describe, but there is a video of it on you tube, under oscillopsia.

      The medication takes your vertigo away, or takes the headaches away? The medication has stopped working or stopped the vertigo. Good luck to you, it's frustrating isn't it!

    • rita52071
      rita52071 dee50000

      Posted

      wasnt getting headaches  just vertigo...you dont need to have headache with this......When did you get you eyes checked last????   It was taking away the vertigo.......WAS key word  LOL
    • rita52071
      rita52071 dee50000

      Posted

      there is no specific test....they rule out everything else........kinda messed up.....almost 10:30 pm here  time for bed....up early this morning......Have a good night
    • dee50000
      dee50000 rita52071

      Posted

      About 3 weeks ago... 20/20 vision. which makes me wonder why they thought it was eye-related, except for the migraine headaches. Another appointment for eyes in a week, with my regular eye doctor. I asked him about a year ago and he looked at me as if I was outa my mind, connecting vertigo with eyesight. That's what the neuro told me to ask him tho. Bounced around. Thanks again, I will keep following this board.
    • rita52071
      rita52071 dee50000

      Posted

      I keep calling this opthamologist office up for any cancellation......Beed getting very dizzy tonight.......They have me on two doctors cancellation list....If this is not the problem I dont know what else to do...saw so many doctors........who knows maybe I was born with something to do with my eyes...Been trying to find any information on computer but nothing really.......thinds are blurry now with my glasses on   I hope they find something so at least we can correct it...Going to see headache doctor tomorrow...........Last time I saw her she wanted to refer me over to another ENT  OK granted the first one was an idiot........Never seen so may doctors in my life...
    • dee50000
      dee50000 rita52071

      Posted

      Do you have diabetes, Rita? High blood sugar can affect your eyesight, making things blurry temporarily, and can temporarily damage your vestibular nerve, making you dizzy.
    • rita52071
      rita52071 dee50000

      Posted

      no I dont....I am in good health except for this..........Told dr when I got dizzy it seemed like things were moving...Wiping down bathroom sink  got dizzy  thought sink moved.......at times tingles only in hands...........but all these symptoms have 100 diagnoises.....just so nervous now
  • candim
    candim dee50000

    Posted

    Hi, Dee50000, have you found any answers yet?

    I was first diagnosed with bilateral vestibulipathy, which made no sense because I was only feeling off balance when driving. I didn't even have too many vision issues. It wasn't until after I went through VRT that my retinal slipping began as well as choppy peripheral vision. (I also have streaks in my vision, after images, trails, etc.)

    I went and seen a different specialist who gave me a rotary chair test (this is gold standard to rule in or out bilateral vestibulipathy) it came back showing my inner ears were working perfectly.

    • dee50000
      dee50000 candim

      Posted

      Oh hi, from Facebook group! Yes I answered you and we also chatted in a private message. Hope to hear back from you if still have a question biggrin
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