Has anyone experienced sc jt pain
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I am a 52 yr old male and have been dealing with pmr for 2 1/2 years. Initially my pain was in my hips and legs and eventually moved into my shoulders. I have been on prednisone for 27 months now at various levels. My latest taper brought me down to 2mg. I am currently experiencing pain in my sternoclavicular joints and across to my ac jt on the left side and have a little swelling anterior to my trapezius muscle in the hollow area above the clavicle. Lifting my arms is difficult and causes pain in my sc joints and on the left side across to my clavicle. Also when lifting my left arm I have pain that shoots up the side of my neck and behind my left ear. I called my rheumatologist and she moved my dose to 4 mg which has helped some but still having some pain. It is worse with inactivity which is consistent with the pmr but just wondering if anyone has had similar symptoms as I am a little concerned that it is unrelated to the pmr. I appreciate any input.
0 likes, 9 replies
pparker1213 william9999
Posted
I am still dealing with the pmr and down to 8 mg but that shoulder feels fine. Not sure this relates to you but I really felt the pain in that shoulder was nothing like the pmr pain and I guess I was right.
Good luck.
william9999 pparker1213
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shawn99 william9999
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I am a 60 year old male with PMR (for 18 months).
Originally my pain was in my hips and legs like you.
It spread to my upper body after 6 to 7 months and is still with me.
I was stuck on 15 mg of Pred until recently and have now been able to reduce to 13 mg and hopefully lower, albeit very slowly.
I too had pain that shot up my neck, although it was intermittent. Every day was different as the pain made it's rounds.
My GP/Internist told me that I was exercising too much, even though I was execising only when the pain levels were very low. He thought that maybe if I were to slow down a bit it would help.
I do feel better after execise, mentally and physically the day of the exercise.
So I don't know for sure if the exercise is causing the PMR to last longer than normal, what ever normal is.
Currently I have trouble taking a deep breath and doing any kind of chest related exercises. The area around my rhomboid muscles are frequently affected, pretty much daily. My leg pain has slowed down thankfully and occasionally shows up.
After reading and listening to other PMR sufferers it seems very hard to compare and generalize with anybody else as we are all so different in how we get affected.
Shawn
william9999 shawn99
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EileenH william9999
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The "too much exercise" is directed at the fact that in PMR your muscles have become intolerant of exercise - and that means it doesn't make a lot of difference waiting for a good day to exercise - it is the recovery time afterwards that is extended. Doing what previously was a moderate amount of exercise is now a lot - and you will suffer the same aftermath that you used to experience after running a marathon-type run for example.
I don't know if you have been reading other current threads but this is something I have addressed multiple times. It is not uncommon for something called myofascial pain syndrome to appear alongside PMR. Google it for more details. It is now known that the trigger points they describe are concentrations of the same cytokines that lead to the pain and stiffness in PMR. At higher doses of pred it becomes or is less noticeable but as you reduce the dose it can reemerge. Or you can trip, hit your head getting out of the car or something like that and you effectively experience a whiplash injury type spasm in the back muscles. This can pinch nerves - causing sciatica and referred pain in the upper legs, round the ribs and into the shoulders and neck are the other common areas affected.
It can be addressed with cortisone injections - or massage can mobilise the trigger points which are in some ways adhesions between the layers of the muscles. Some people also find Bowen therapy is very beneficial.
vanessa66630 EileenH
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EileenH vanessa66630
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tina-uk_cwall william9999
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pauline36422 william9999
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