Has anyone experienced severe joint pain from taking levothyroxine?

In addition to all the other horrible side effects remaining from the Levo, it seems I have chronic pancreatitis. My guess is the pancreatitis causes malabsorption and nutritional deficiencies which worsen the thyroid disease.

Just throwin’ it out since I figure other people may have similar combinations of problems.

how long did it take before your joint pain disappeared? I have been suffering extreme pain for six years and just 8 months ago i realized that the Levothroxine was making me feel worse. I've since been on Amour, but when i went from my family doctor to an Endo she refused to give that to me and put me on Tirosint which is just another name brand of Levo. About a week ago i stopped taking the Tiro and im feeling ok so far as for depression and fatigue issuses, but the pain in my body especially my legs is horrible. I dont know where to go from here. I too went from 165 pounds to 215. It hurts to shower, wash my hair, stand up, walk, load the dishwasher, you name it. I pray daily to have my life back, and could use any and all suggestions. Thank you so much.

I have 5 autoimmune diseases and treat them holistically

with the exception of my thyroid because no matter what

I have done, nothing has worked unless I am watching my

diet along with taking a thyroid supplement. I was taking

armour for nearly 20 years but last year it stopped working.

I was told by my dr. when one of your thyroid levels-your t3

I believe it was-gets within a certain range, armour will no

longer work. So, he placed my on both levo and synthyroid

at different times and I suffered for months until I couldn't

handle it any longer and removed myself. During the time I

was taking this my joints hurt so badly that even after I was

removed from the meds it never went away. Thinking it was

my lupus giving me flareups because of taking something new

I was obviously having an allergic reaction to it, so, I had blood

tests done and to m,y surprise it wasn't my lupus but sjogrens

that had been causing my flareups.

I told the dr. I have had sjogrens for years with little issue

UNTIL he prescribed levo and synthroid. I believe those drugs

instigated my sjogrens into a fulltime flare up mode and

in the one year time frame of nothing working, I went back to

the drawing board. Doing my own research and tired of suffering

I went on a very strict diet which prior to last year I was already

following with a gluten free, wheat free, yeast free diet. But I

looked at everything I was doing since I couldn't take armour

and the other thyroid meds would only make me have flare ups

again and decided to remove lechtins, histimine and salicylates

from my diet as much as I can (I eat either none or very low)

which basically means I can only eat certain fish, no dairy at all,

only certain nuts, grass fed meat (not a big meat eater though) etc.

It is an incredibly limited diet, however, within one weeks time

of getting on it I was nearly symptom free. Eventhough I have a

food list I work off off, some of the "yes items" I am finding still

don't agree with me so once I find out i can't have them-when I get

a flare up-I eliminate it and move forward. Should I experience

some joint pain I will take a pain reliever but I can only speak for

me in that removing these inflammatory items from my diet it has

helped.

Unfortunately, many of the thyroid meds prescribed are high in salicylates, which compounds the issue. I know what is working

for me, so I have found that diet, seemingly more than meds is

helping me live a more pain-free life. I am not completely without

the pain, but from one year ago to right now, huge difference.

Do your research. Find what inflammatory items are in the foods

you eat, even the healthy foods that may not bother other people,

but may be bad for you. Look for alternative thyroid supplements

(I am currently doing this) and most of all don't give up hope. It's

difficult to stay positive but I am sure with perseverance there is something you can find that can work. As always, any thing new you

do, check with your doctor.

Good luck,

T.L.

hi I just read your post and i was wondering if you found anything g other than levothyroxine to help you? i am on 50 daily and my left arm and shoulder are so messed up. my arm was hurting so badly my doctor said its tennis elbow and gave me a shot of cortisone. now my shoulder hurts constantly

Hi,

I just saw your post. My arms, shoulders specifically are in

a lot of pain, especially firs thing in the morning. Stretching,

a hot/cold showers seem to help, and if needed OTC pain med.

Still looking for a thyroid alternative but nothing as of yet.

Good luck in your journey to wellness,

T.L.

I take essential amino acids and phenylalanine. Be careful with the phenylalanine, as too much can cause headaches. I also do acupuncture. 

Some people find ThyroGold works great. My mother takes this and is doing extremely well on it.

HYPO2019,

Thanks for posting. I've had severe water retention, bloating and weigh gain with the levo, along with the inducement of fibromyalgia and lupis.

I had such severe gut problems that I wasn't able to ear grains or raw vegetables for many years.

Now, off the levo, the gut issyes are healing.

But, because I was on high doses of levo, I've had multiple bone breaks, mostly hand and foot bones. It's pretty horrible. I can't do much to exercise because my bones are so fragile.

My conclusion is that levothyroxin does more harm than good. It should be taken off the market.