Has anyone found the root cause of their hypersensitive vasculitis?

Posted , 7 users are following.

This discussion has been locked due to a period of inactivity. Start a new discussion

I've had this for almost 2 years now and this past year I've had my blood drawn 20+ times for a variety of test. I'm negative for everything that I've been tested for. The only thing that came back unusual was my sediment rate being too high for an unknown infection in my body. I have a really weak immune system and is always sick with a fever, sore throat, & sinus infection. Long story short, I have vasculities and I'm currently taking pills to keep my spots away, kidney from leaking protein, & illness away. I want to know if you've ever been diagnosed with vasculities, found the root cause why you were having it, and if your spots completely disappeared? I'm 30 and could possibly be on meds for the rest of my life. Just wanted to know if there was any lucky people out there who's had it suddenly vanish.

0 likes, 10 replies

Report

10 Replies

  • Posted

    are you referring to red or purple spots or the ones left after pressing?
    Report
  • Posted

    This sounds like GPA you should requet a ANCA - C & ANCA - P Test.......I have GPA.....for the past 3 years its controlled with steroids......

    Report
  • Posted

    Hydroxychloroquine-Plaquenil was originally used to treat malaria. For several decades it has been used to treat autoimmune diseases such as lupus, rheumatoid, vasculitis, and Sjogren's to name a few.

    Hydroxychloroquine is a DMARD, a disease modifying anti rheumatic drug. Drugs in this class literally change disease. It is possible to push autoimmune disease into remission.

    If one drug is not successful on your body, several other DMARDs are available, so do not give up.

    Nothing you did brought this on you. Literally millions of people have a deficient immune system that does not recognize the very body it lives in. Our immune system thinks it has been invaded abd mounts a defense against the perceived invader.. think friendly fire.

    I hope medication holds your immune system at bay until the full repair of the immune system is learned.

    Report
    • Posted

      There is usually a cause for autoimmune disorder. Commonly genetic disorder is the cause. However, infections or chemocals/dtugs are commonly cited as the causes. 
      Report
  • Posted

    Hi. I was diagnosed with Behcet's disease about 13 years ago. Think zi have had it all of my life with periods of remission. I know there is currently no cure for Behcet's and it is a case of managing the disease. Not easy for many of us but I have just had a very good long term of treatment and I am cuurently without symptoms.

    Did they say what type of vasculitis you have? You say they tested for everything. Unfortunately there are still no conclusive tests for things like Behcet's Lupus Sjogren's etc. But there are sometimes supporting results in the blood work. Like you my blood work was often unremarkable. I was diagnosed after a year of monitoring of symptoms. My diagnosis finally came after a bout of uveitis.

    I hope you get a proper diagnosis and can get on with treatment. There are meds which can help greatly. Where are you based? Are you in the US?

    Report
    • Posted

      Behcets' is a type of vasculitis from mostly mediterranean origin. Would be interested to know what kind of treatment are you getting to manage this disease. Thanks

      Report
  • Posted

    The cause for me was viral illness. Either of viral infecions EBV, CMV, hepatitis B or C or sometimes chemicals or drugs can cause vasculitis from hypersensitivity type 3 reactions resulting in leukocytoclastic vasculitis. Most physicians do not give importance to the cause which is frustrating sometimes. 

     

    Report

Join this discussion or start a new one?

New discussion

Report as inappropriate

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up