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Has anyone had a brain shutdown/brain fade ?

Posted , 6 users are following.

Flutterbie57
Flutterbie57

I have PMR (diagnosed 5 months), Fibromyalgia ( 18 years). Dr says i am not reacting to Pred as I should. I have many new weird health problems come and go. Dr always looks vague about them. Recently I had a very scary 'brain shutdown'. I had no concept of going to sleep, or waking up, but I suddenly did not know where I was, or who I was with. Friends were with us - someone said something which bought me around. They all thought I was sitting there quietly. I believe I was out of it for approx 40 mins. I had no conscious memory of what happened in that missing time, but when told about it I was aware of it. When I told Dr, he said "now that is a Pred problem". It does scare me - I have not seen anyone else mention it - I was under stress at the time. He has been really reluctant to refer me on to a Specialist, but has now done so, because of it. Has anyone experience this ?

 

0 likes, 12 replies

12 Replies

  • constance.de
    constance.de Flutterbie57

    Posted

    Poor Flutterbie!  We've all heard of brain fog, but this is something else.

    Do go and see that specialist.

  • MrsO-UK_Surrey
    MrsO-UK_Surrey Flutterbie57

    Posted

    What a horrid experience that must have been, Flutterbie.   Hopefully, it was just a one-off event, but your GP is right to refer you just to rule out anything more serious.  It might have been a touch of transient global amnesia, and I'm sure Eileen will be along shortly to advise you following her experience.   

     

    • MrsO-UK_Surrey
      MrsO-UK_Surrey

      Posted

      PS:

      "Transient global amnesia is a sudden, temporary episode of memory loss that can't be attributed to a more common neurological condition, such as epilepsy or stroke.

      During an episode of transient global amnesia, your recall of recent events simply vanishes, so you can't remember where you are or how you got there. In addition, you may not remember anything about what's happening in the here and now. Consequently, you may keep repeating the same questions because you don't remember the answers you've just been given. You may also draw a blank when asked to remember things that happened a day, a month or even a year ago.

      With transient global amnesia, you do remember who you are, and recognize the people you know well. But that doesn't make your memory loss less disturbing.

      Fortunately, transient global amnesia is rare, seemingly harmless and unlikely to happen again. Episodes are usually short-lived, and afterward your memory is fine.​"

       

  • panamabob
    panamabob Flutterbie57

    Posted

    Hello Flutterbie57

    I am on Pred and have had PMRfor about 2 years.I am also Diabetic 2 and various other conditions.

    About an hour or so after a meal I tsart to fall asleep.It happens instantly and can last for a few seconds to a few minutes.It never happened pre PRED. Could there possibly be a connection? Oddly enough whilst 'asleep' I am aware of sounds but my family swears I am fast asleep.THey often wake me up so I don't really know how long I would be 'out of it' if left alone. Very worrying.

    • constance.de
      constance.de panamabob

      Posted

      You're lucky!  Several times in early PMR I fell asleep whilst eating (can be messy).
    • karen28161
      karen28161 panamabob

      Posted

      Hi Panamabob,I like you instantly fall asleep 30 mins after a meal ,it is like I have been drugged and just cannot keep my eyes open. My hubby recons I only sleep for about 10 mins ....but it is such a deep sleep .
    • LayneTX
      LayneTX karen28161

      Posted

      Karen,

      that's exactly what happens to me if I eat sweet or carbs or a high glycemic veggie, like carrots, or potatoes (which I don't eat now).

      THen after I lay down or doze like you say for 10-20 minutes then I'm ok.

      But, I've had this for years! before PMR.  But I bet Pred could make people more suseptible.

      FYI

      Layne

    • Flutterbie57
      Flutterbie57 panamabob

      Posted

      Oh no, we are all experiencing some weird things. Do all you people who nod off instantly, feel like you went to sleep ? I didn't have that feeling, or a feeling of waking so I got anxious about where my brain had been. Those around me thought i was awake.
  • LayneTX
    LayneTX Flutterbie57

    Posted

    Could it be related to blood sugar?  A serious drop after a high, Pred really elevated my blood sugar.  If I eat something sweet (natural or sugar or fake sweetner) I have quick high then want to pass out.  For me its defined as reactive hypoglycemia.

    i do not think you have that but others wrote here that I wondered about.

    i had anesthesia last week for edoscopy and days later I got in car, put keys IN ignition, STARTED IT!   Then looked around for my keys so I could start car... Needless to say... I stopped car and went back in to house!  

    I hope hope you are ok and it stops for Ya. 

    On other forums here a guy talks about importance of our breathing... Belly breathing verses chest breathing and since we can experience anxiety more easy... Maybe look in to that to.

  • jo42444
    jo42444 Flutterbie57

    Posted

    Diagnosed Dec 2014 with PMR and Fibromyalgia. Two or maybe three times recently I have driven to town and on the way have had to stop the car as I cannot remember where I was going. Now that you have posted this problem and I really think about it at the time I was hurrying which is stressfull. Not sure if its the disease the Pred or stress. Also are you taking any of the Fibro drugs. Gabapentine and Lyrica were given to me over a period of months but I stopped both as they play havoc with thought and memory for me. Hope it was a one off for you. Joanne
  • Flutterbie57
    Flutterbie57

    Posted

    Thanks to all you lovely people who answered and gave me some ideas to try. I have been consistent on my dose for awhile now, but I still havn't had consistent days health wise. I am up and down like a yoyo energy wise, pain wise and weird problem wise. I hope we all learn to manage our erratic health a little better.
  • panamabob
    panamabob Flutterbie57

    Posted

    One thing reading this forum has taught me Flutter  is that we all seem to react differently to PRED.It's not an exact science.Strange that. You would think that a particular chemical would produce the same reaction.Just demonstrated how complex we humans are.  Not quite like Hydrogen plus Oxygen equals water.
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