Has anyone had Microsurgical Denervation?

Posted , 5 users are following.

Has anyone had Microsurgical Denervation to help with chronic testicle pain?

Seems like a better solution than removing the testicle but has potential issues given the nerves are tightly integrated with muscle, blood vessels and tissue.

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  • Posted

    I've been suffering testicle pain for what must be 12 years now, tried all the medications which only help a small amount. Its the side effects I cant deal with, so I only take Tramadol now and then, I don't seem to get any side effcts from Tramadol, thankfully.

    I'm due to go and see a specialist to discuss Microsurgical Denervation next month, my urologist referred me as she doesn't seem to think removing my epididymiss will solve anything.

    I myself reckon its a cysts that is causing my pain, I have a cysts on the head of the epididymiss, but urology say its too small to be causing the pain???

    I have to be real careful, I can only wear certain jeans/trousers, as most will aggravate the pain more.

    So are you going to have Microsurgical Denervation done?

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    • Posted

      Thanks for the info. I have similar issues..inflamed testicle and epididymis with possible tissue damage either due to past infection or injury. Right side is about 2-3 times larger than left. Several rounds of antibiotics and high dose of Advil not working. Dr wants me to do several months of pelvic PT. If that does not work, then see a pain management specialist. Last option is removal of epididymis or entire testicle, which I am willing to do at this point.

      I cannot sit long (driving, work etc) or do much physical activity. Once inflamed takes a while to bring pain down.

      Was reading about Microsurgical Denervation as a better solution. There are short term procedures to see if it will work first, before doing the permanent solution. But all these surgeries in this area sound risky.

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    • Posted

      Wow! your situation is so very similar to my problem, and I thought I was the only fella suffering this awful right side testicle pain.

      Doe's your right tesctle pain go down your right leg to your foot?

      Does your pain stop when you lay down for an hour or so?

      When you wake up in the morning is your pain gone, but soon starts once you get dressed, sit down or start walking etc?

      Have you had any ultrasound scans done, my scans showed two small cysts and some varicoceles. I was told these are too small to cause any discomfort, but I do have my doubts about that.

      When my pain first started I was treated for epididymitis, I was given antibiotics which did work, but once I finished the course the pain would soon come back.

      I first started to get right side testicle pain when I worked in the warehouse environment, I would be stood on my feet all day lifting heavy boxes, and by midday I would always get a dull heavy ache in the right testicle groin area which would go down my leg to my foot. The pain would get so bad that it would often cause me to limp, just as it does now.

      I have now seen urology three times, and they say they do not want to operate as they don't see anything sinister to give them concern. I have pleaded with them on all three occasions to either remove the epididymis, or the whole testicle, but they still say no. They say these types of operations have a high failure rate and will often leave the patient in worst pain.

      I was so ready for an operation, whip the dam thing off I thought. But the problem I have now is... I have been told so many times by different doctors that any operation can make the pain worst, that I have now become scared of having anything done.

      TBH, I really don't understand how one small testicle can cause so much pain, the pain is disabling at times, sitting, standing, walking, gardening, DIY is all so very difficult.

      I feel your pain buddy, there must be some help out there for us suffers.

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    • Posted

      I have the same problem. The only drug that helps me is Percoset which is Oxycodone plus Tylenol. I take 2 pills and all the pain is gone for 24 hours which breaks the cycle for me until the next trigger which is sex.

      I also was given many courses of an antibiotic initially 2 years ago for my epididimytis. It was Cephalexin. It worked great for a few months but then it started to actually make my pain much worse. I think it started my nerve pain in my back which goes down my leg (sciatic nerve) and paralyzes me.

      It is all nerve pain which is the worse pain. Maybe you could ask for a Botox injection into the spermatic cord. I had that and it helped for several weeks. It only took a minute and was painless. Good luck.

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    • Posted

      We5t,

      Yes, my symptoms are exact! I'm ok when I wake up but as soon as I stand and do anything it comes right back. For work, I sit all day and now I cannot sit more than a few minutes when spikes of pain set in. The pain can travel into lower ab, hip, down inside of leg, but mostly in scrotum. Pain feels like someone kicked me in the groin, but pain never went away. Everything is swollen and painful to touch. It is disabling as I cannot do much physical, drive, sit, staff meetings, social events. For work, I have stand up desk, and pack cooler of ice packs and elec heat pad to help get through the day. Have custom seat cushions, larger pant etc.

      This has been a 2 year journey full of misdiagnoses from a handful of doctors.

      1. First they said it was a UTI but test negative (have been tested 12+ times)
      2. Then they said it was enlarged prostate and told me to "deal with it" - it is normal for middle age men.
      3. Another dr diagnosed me with hydrocele, which I just found out a year later is wrong diagnosis.
      4. Another dr said it was prostatitis and overactive bladder and gave me 3 meds - did not help
      5. Another dr said it was epidimitis and took Cipro - did not work.
      6. After 2 years of this, now driving to big city hospital 5 hrs away and being diagnosed with both epididymitis and orchitis.

      I also want surgery, but keep getting told "no". No has mentioned the denervation procedure so wanted to throw that out there for feedback.

      Yes, also glad to find someone else with same issue. I have been scouring the internet for months and months without much feedback from someone that actually has what I have. Feels like a rare club.

      So currently being referred to a pelvic pain specialist, but they are very hard to find and many are "women only". Will be driving 10 hours for each appointment.

      Howard here is a big help!

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    • Posted

      Hi Howard,

      Isn't the oxy stuff addictive?

      Have asked for different pain meds, but they tell me to use Advil for the anti-inflammatory. 2400mg/day is not reducing the inflammation.

      Thanks for all your valuable info! Feels like a rare club here.

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    • Posted

      Hi gg,

      Oxy is addictive if taken to excess so you need to take it sparingly. Also the stuff you get back prescription is much better than the stuff you get on the street which really is addictive. Having said that, really and honestly when the severe back pain sets in from the swollen testicle I really cannot survive it. I thank God and my doctor I have the Percoset which lets me breath again after an hour. I do suggest you ask your doctor and let them know you understand the risks and will manage them.

      In the meantime, I got another article today by another urologist who specializes in scrotal pain. He actually invented the microsurgical denervation procedure. He lives in Chicago. I wrote him just now and asked if we can do a phone consultation. If you and We5t send me your email by PM I will send you this paper. It is worth reading - we are not alone. Good luck.

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    • Posted

      Yes, Howard is very helpful, have you tried his home remedy mix? A number of spices mixed which kinda help to a small degree.

      What puzzles me about these urologists... is the fact they all say 'No' to surgery, they don't recommend surgery in this area, not unless they find cancer. If any of us was found to have testicle cancer, they would soon whip it off without question. But because they cant identify what is causing the pain, we are made to suffer, being turned away time and time again in excruciating pain. The cancer suffers tend to have a painless lump and are treated ASAP, they go on to live a good quality of life, and us testicle pain suffers are made to suffer where everyday is a living hell... its so unfair.

      I believe my condition is either these small cysts that I have, or the vaircoceles. I can pinpoint my testicle pain to the top of the epididymis, the pain somehow refers along the nerve and down my leg into my foot. My scan has shown a cyst on the head of my epididymis, so this makes sense to me, but they will not do anything about it???

      Its only because I have kept on and on to them, and explained to them I am at the point of being housebound, they are now finally referring me to a different hospital to discuss about Microsurgical Denervation. But I feel this will not work, I have read that if the pain is not localized to the testicle they don't recommend the surgery???

      I'm 47 years old, 6ft tall of athletic build, I don't smoke, I don't drink, I like to eat healthy, so why am I suffering like this? its crazy. 😦

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    • Posted

      Have you asked them for a spermatic cord block? This is quick and simple and cheap - they just inject some Lidocaine into the spermatic cord to see if you get temporary relief. If you do then they say you are a good candidate for the denervation procedure. They can also inject Botox into the spermatic cord which acts to deaden the nerves for a few months. I had that done in April and it did help for a while. We are in the same boat - I am also house bound too. Ask them for a Percoset prescription - it is my only salvation and has few side effects. Send me your email and I will send you the paper I mentioned. Good luck.

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  • Posted

    Dear Friends,

    I have read the post below to, so this will apply to them to. Like West gg78506 I had pain for 15 years. His story mirror mine. Yes I had the surgery and it work. The doctor can do a test to make sure its the surgery you need to heal you. My doctor gave me a shot on each side of my spermatic cord. I forgot what it was but I think it was Novocain. He said if the pain stop and last for 12 hours the surgery will work. Well after a few hours and the pain stop. He did the surgery 6 years ago and been pain free since. The next step was to get off the Percocet. It took a year for me to get off them.

    Anyone please email me with questions or call my cell. I live in California.

    God Bless and heal all who have this problem.

    Michael

    407-376-2822

    PS. If I dont pick up phone leave me a short text to call you.

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    • Posted

      Thank you Michael for sharing this good information. I have a few questions:

      1. Did you take Percoset every day for pain so you got addicted?
      2. Was your scrotal pain caused by a varicocele or something else?
      3. Did you have severe pain in your lower back and down your leg?
      4. Who did your procedure in California?

      Thank you again and all the best to you.

      Howard

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    • Posted

      Hello,

      I did respond to your question but the moderator deleted it. Let me try again.

      1. I took it every day for 15 years. Yes I did get addicted
      2. Not by varicocele. All I known is he did the block test and went ahead with surgery and I have been pain free since.
      3. No pain in lower back or legs.
      4. Dr. Zamip Prakash Pate. Orlando Florida.
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  • Posted

    Thank you for your post MichaelJc.

    Have you suffered any side effects from having the Microsurgical Cord Denervatio, I understand this operation can cause other problems?

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