Has anyone had Microsurgical Denervation?

Hi Everyone,

I recently came across this site after lots of googling and saw a lot of the people in the forum seemed to suffering from similar symptoms I had been suffering from. Pain in my testicle, which in my case was usually brought on from sexual arousal or having a painful bowel movement. Really bad, chronic constipation. I had blood tests, urine tests, and even a ultrasound and everything came back clear. I was convinced something was going wrong with my cremaster muscle as I would usually get pain after my testicle would retract, but couldn't figure it out and obviously seeing the issues people in this thread were experiencing with getting diagnosed I was really concerned. I am 36 years old and had no issues like this before so that seemed really odd to me. After going down the google rabbit hole I came across something called, Chronic Pelvic Pain Syndrome (CPPS) and it was a real eye opener. This disorder is usually associated with women but it can also happen to men as well. At first I thought it was bogus, but then found loads of youtube videos and lots of different websites talking about this issue, and how it has all the symptoms doctors would normally associate with prostatitis and epididymitis. I would implore anyone, who is still not convinced what is causing their pain (ie antibiotics and other treatments have not worked) to look into this. I am just beginning this journey myself so I'm probably not the best person to speak to about it, but all I can advise is, look it up for yourself and see if any of it makes sense for your particular situation. If it does it may be worth finding a specialist in the field who could help you. I'm actually at this stage now myself and plan to find a therapist who can maybe shed some light on my situation and confirm whether I do indeed have this condition. Anyway, just wanted to share that info, as I realised when I was going through the thread that a lot of people still don't seem to have any answers and yet I didn't read anything about CPPS in the thread. What was quite telling when I was on the various CPPS sites I found, was that all the therapists would say how it usually took years for people to reach out to them after going down the medical route of various drugs and surgeries with no results, and I felt that resonated with some of the stories I had read on here. Again, I do not know if this is the answer for everyone, but it definitely won't hurt you to have a little investigation for yourself. Anyway I wish you all luck and hope that this may prove to be helpful to some of you. Good luck!

Hey Everyone,

Like almost everyone here, I have been suffering severe and chronic ongoing pain due to some as yet undiagnosed cause.

Treatment has focused on symptoms rather than eliminating the cause and I am approaching the end of my tether.

My symptoms are ongoing left flank pain radiating from above behind left testicle to left kidney with quite severe pain over kidney, hip and lower outside back. With associated nausea and fatigue.

Also a feeling of congestion and pressure over left side.

Pain worsens on activity and position. Elevation of my hip when lying down or laying on my right side do provide some alleviation of worst pain.

I have taken to sleeping with left leg elevated where possible.

The effect of the pain post being upright and even slightly active renders me effectively bedridden.

Be it just sitting in a car or even a short walk. As an example on the 28th June I went for a walk of @3.5km, and I spent the next 2 days trying to alleviate the pain and pain up.

Even just sitting upright or standing can worsen the pain to an extant that it rapidly becomes unbearable.

My days are currently planned around what needs to be done, how can I manage the pain and fatigue issues aling with will I need to take pain relief.

Ice packs over my flank and on my inner groin also help.

I try to mitigate as much as possible via jock strap and frequent rest stops, but my quality of life and by extension its inpact on my family are massive.

Pain relief from Ilioinguinal rhizotomy lasts @8 weeks.

Relief from nausea with rhizotomy of hypogastric nerve lasts about 4 months.

This has been ongoing since Jan 2019 with no real diagnosis or mitigation other than pain relief.

Imaging has confirmed a thrombosed varicocele above left testicle and a grade 2 bozniak cyst on my left Kidney that has some calcification.

According to 2 Urologists, neither pathology is causing my pain issues.

I have been told lots of what my issue isn't, but no actual diagnosis as to what it is.

It is incredibly frustrating and disheartening.

Associated issues?

Low level tachycardia and raised BP, 100-125pulse and BP of 150/90.

2 ECGs in past 2 weeks during Dr/Hospital (April 2021) visits returned with no cardiac issue apparent.

Treatment options?

From reading this thread, I am hopeful that a spermatic cord block might be useful in at least allowing some diagnostic assistance and potential relief.

I have asked my Pain Management Specialist if this is a procedure he offers and am awaiting his update.

Has anyone here dealt with any surgeon or urologist in the Republic of Ireland that undertakes Spermatic Cord Denervation surgery?

I am trying to find one offering the procedure, and have my Health Insurer looking too but as of yet, no joy.

If anyone here can point me towards someone?

I would appreciate it greatly.

Hello All,

I'm a 35 year old male from Florida and would like to share my story thus far. I too have had chronic testicle pain since February of this year(2021). Came home from work one day and noticed my left testicle had dropped much much lower than normal and I had pain in both testicles. It progressively got worse(to the point where it seems like everyone here is. Feels like they are in a vice with constant pressure and they feel like grapefruits down there).

Urologist did every test under the sun, diagnosed me with epididymitis. Put me on antibiotics for 2 weeks, pain was unbearable and no change with antibiotics. Went back, more ultrasounds, no problem, more antibiotics. 4 weeks in, unbearable pain, no change. More ultrasounds, comes back and tells me I have a variocele that could be causing the pain and gives me a 60% chance for this to fix it. I go ahead with the surgery, no change. I actually think this made it worse.

At this point, the Urologist had pretty much given up on me. He sent me to a local disease specialist for IV antibiotics. Again, no change whatsoever. That's when my wife found out about the Denervation procedure on google. I was able to find a doctor in Miami who specializes in these procedures. He did the initial cord block on the left side which took the pain away immediately for about 3 hours and then the pain was back. A month later I had the Micro Denervation surgery on the left testicle only. After surgery I had about an 80% improvement. I was never fully back to normal but was willing to live with it because of how much improvement I had.

I'm not sure if this is related or not but I will add this. A couple weeks after surgery my stomach/gut started having problems. I was extremely distended, bloated and had bad diarrhea, reflux, heartburn etc. I was taking quite a bit of ibuprofen which could have been the cause of the stomach problems. I just recently had a endoscopy and colonoscopy which only showed a mild case of gastritis. I am feeling somewhat better and have a follow up with GI on Wednesday this week.

Now, here is where I have problems. About 2 weeks ago, I felt my testicle pain coming back. It wasn't as bad as before, but it was there. Each day it got progressively worse and today as I type this, I am very close to the same amount of pain I had prior to the Denervation surgery. The problem is I think it's coming from my right testicle now where I did not have the surgery. The pain always radiates back and forth but I feel like the right side is what's causing it this time. I have an appointment setup with my doctor on October 21st to see what's going on. I assume he's going to do a cord block on the right side now to see if that takes care of it. I will update once I figure out what he says.

I know how all of you feel. It's an absolute gut wrenching feeling that you have no control over and very little amount of Doctors are aware of. I was out of work for 3 months, pretty much laid up in bed. The only thing that worked for me was ice packs. 15 mins on, 15 mins off. Constantly. It takes a toll on your mental health too because you feel like there's no one that understands. When the doctors you go to have no more ideas, you're left to becoming a doctor yourself to try and self diagnose. It's beyond frustrating. But, there are fixes. I wish all of you the best of luck. If you have any questions feel free to reply or reach out. I'll try my best.

-Chuck

I am scheduled this Tuesday on both sides.

I'm new to this and I'm looking for information about Microsurgical denervation. I had a Varicocele Embolization 8 months ago that didn't solved my Left Testicle pain. I went to another Urologist and told me that a Vasectomy Reversal was going to help me so I did the reversal 6 1/2 months ago. It got me back to being able to have kids again but it didn't solved my testicle pain. I'm currently doing Pelvic Floor Therapy, it's helping me a little but my testicle still hurts. I just found out about Microsurgical denervation, It's devastating that my urologist didn't tell me about this. I am going to schedule that spermatic cord block test to see if I can do that procedure. It's been a year and 3 months of pain, Anxiety, depression for me. I just want to hear about any luck with this procedure.

Just came across this topic after suffering for the last 3 years with possible nerve damage after vasectomy reversal, pain is in the scrotum and spreading to the leg. Anyone could please share their experiences with spermatic cord nerve ablation?

After microsurgical denervation do the testicles still have feeling or sensation, or are they numb?

Does microsurgical denervation make the testicles numb after the procedure?