Has anyone had Microsurgical Denervation?

Thank you for your reply .I cried when I read it .I cannot seem to find any one who will do the Spermatic cord block and I want him to have this so desperately .The only place seems to be the private clinic in Harley Street London but the reviews done seem good .Has anyone used it ? I have asked for a second opinion and made a complaint about the pain management team but heard nothing yet .I am willing to pay if I can find someone in UK to help .All our lives have been badly affected by his pain and he deserves help .

Are you able to travel with your son to the US? There is a wonderful doctor who specializes in microsurgical denervation. I can provide you with his email and you could write him about your son and perhaps he has some ideas for you. It is costly but I am sure in situations like yours he would work with you on the costs. Let me know. He responds well to emails.

Hello, I know how your son is feeling. I had prostate pain for 15 years. I had the block and surgery 5 years ago. It change my life and Life with no pain. If you can make the trip to American please go to my Doctor in Orlando Fl. Dr. Zamip Prakash Patel. 258 S. Chickasaw Tr. Orlando Fl 32825. 407-303-6865. Ona this blog I think I am the only one who had the surgery. Any questions please ask. I hope your son is healed soon.

Thank you all so much .I want him to have the Spermatic cord block as a test to see if the denervation will work .I am still making enquiries here and cannot believe how hard it is to get help in the UK .I would love to hear if anyone has used the International Andrology Clinic in London .The reviews are mixed and there are none that specifically mention the block or denervation although the do offer those procedures

The only place I have found who will offer the block and denervation op is a private clinic in London .There are no reviews for this procedure there although I have spoken to them and they do both , other work they do has mixed reviews. I am scared in case it makes his pain worse as this is what the pain management team say may happen .They have my son seeing a psychiatrist and a psychologist and taking medications which may be the right way to go I'm not sure .My son wants an operation to fix things but it may not and I don't know which is the best path .

Good for you for getting it done. My urologist who specializes in MDSC told me it can up to 3 months for the benefit of the procedure to kick in and until then the pain can be just as bad. I can find an article he wrote about that for you. So do not be discouraged as it should work over time and fix the problem for you. I have put mine on hold for a year as the botox injections he has given me work nicely for 6 months. Once they wear off I will get your procedure too. I live in Canada.

Thank you so much for giving me some hope. I've had quite a few injuries in my lifetime, but this is the hardest thing I have ever had to deal with. I sure would appreciate it if you can find the article.

ok - glad to be of help. If you can send me your email in a private message I will send you the article. You do need to give it more time and it will work. With me I tried botox jnjections into the spermatic cord. My urologist told me it would hurt more for a few days and then I would feel better after one week . But instead it hurt awful for 2 weeks and then after 3 weeks I was pain free for 6 months. So everyone responds differently to these treatments.

How come it can take up to 3 months after MSCD to have a total effect?

Is this because the severed nerves are still functioning in some way?

Ah might have read this wrong. Has bob01550 had the MSCD or cord block procedure?

There is a great deal of cutting of nerve fibers and their ligation. These take a long time to heal which includes a lot of inflammation around the various sites just like any other wound. Not all the nerves are severed - just the main ones that come out from the scrotal region so the no-severed ones still pick up some pain messages until the healing is complete. I do believe Bob had the full MSCD procedure.

Hi Bob

Please let me know where you live and had the operation and your progress.Wishing you the best result ever .

I live in Southern California and had the cord block and surgery done at U C Irvine. Tomorrow will be 2 weeks and there are times when it seems like it feels a little better, but most times it feels the same. I left an email for the Dr (he is out of town for the Holidays), and he responded that it could take a month due to the surgery and inflammation. If I knew the pain would eventually go away, it would be a lot easier to take. Guess I have to have faith in the fact that the 2 cord block tests I did lasted 12 hours and 2.5 days.

You are in our thoughts .Let us know how things progress .

Hello Pauline - you never responded to my offer to send you the email for Dr. Kovac in the US who developed the MSCD procedure. He is a very nice man and would review your son's problems with you via email or on the phone. Please let me know as I think you are missing an opportunity here.

Hi Mr Jim, Today I had my follow up with the urologist as I postponed the varicocele embolisation procedure, as I wasn't keen of having the metal coils. Thankfully he has now offered me the varicocelectomy procedure, and he also wants me to have the pulsed radiofrequency embolisation nerve block, he also spoke about acupuncture. We spoke about MSCD and he said the UK is behind with this procedure, its rarely performed here in the UK. I said I am keen to have the procedure done, but he said that he has only performed the procedure twice, one was a success and one failed. He said if I end up needing the MSCD done, that he would find a surgeon for me, even if its in London he said, he is such a nice caring guy. So all I need to do now is wait for the pulse radiofrequency nerve block and the varicocelectomy appointments, plus consider acupuncture.

I am sorry I will send you my email .Thank you

Hi everyone, I had a thought, could hemorrhoid's (piles) causes testicle pain?

Hemorrhoid's are basically varicose swelling veins within the anus, could this be a hidden problem?

I myself have hemorrhoids, they swell from time to time, I had them treated years ago and was told they would come back, so I wondered could they be causing testicle pain.

Obviously the anus and scrotum share the same space, everything is in close proximity, so I wondered if certain nerves are connected?

Does anyone else here suffer from hemorrhoids who also suffers testicle pain?

I suppose its a difficult one to diagnose, I guess there are lots of guys who suffer testicle ache/pain who dont suffer from hemorrhoid's, and then there are guys who suffer from hemorrhoids, but not testicle pain. We are all different I guess, what effects one man, may not affect another man in the same way... What I do know is, this year 2020 is the year I'm going to do my best to get fixed, my wife has promised me that I will be pain free... My wife has been terrific all through this, she has attended many of my urologist visits with me, and the most recent urologist visit which was last week. My wife reminded me only this morning what my urologist said to me, he said we will do the simplest thing first, and work our way through the list, he seems to be a wonderful caring man who finally wants to help me. I guess the varicocele embolization was first on the list, but I cancelled due to the use of metal coils, so the next procedure is a varicocelectomy, which I am currently waiting for. If that doesn't work, then we will be looking at removal of part or all of the epididymis, MSCD and the bottom line will be orchiectomy, I am so ready to have this done.

bob01550 how are you feeling now ?

How are you feeling now better I hope ?

I am doing well on the Botox injection supplemented with Percoset as needed which is only once a month or so. So I am holding off on the MDSC procedure for now.

How is your son? Did you ever get to correspond with Dr. Kovac?

Hi Glad you are doing well .I was wondering how bob01550 was getting along after his operation . My son is up and down .He's had some good days but some awful .He's still not at school and its a critical l time with exams coming up. I havent emailed your Dr yet .I will do it today .I've been very depressed my self and I must get motivated .

Hi I've had a reply from Dr Kovac .He's suggested Flomax which isn't available without prescription here and isnt used on people under 45 years .He was very sympathetic though .

Howard DR Kovac was amazing .What a caring man .He sent me an article to take to a doctor and I could believe it but I have already read it and taken it to the pain management team ages ago .They arent interested of course as they don't offer cord blocks or surgery here .Has any one read any reviews about the London Andrology Clinic ? We have a second opinion with a Urologist at a different hospital on Monday and if they cannot help Im taking my son there .

Pauline there is a place called Hertfordshire Pain Consultants and on their website it says they perform "pulsed radio frequency deneravtion of the spermatic cord" plus they have a case study on there about it. Maybe it's worth a shot and I am seriously considering going there as my NHS pain specialist appears to only want to give me drugs for the rest of my life.

Thank you so much !! I will have a look .We are going for a second opinion with the NHS tomorrow but I don't hold out much hope I was going to ask about that procedure then I'm going to my MP on Friday.If no one helps him quickly I will try that place .He can't go on like this he has no life .I was thinking of the London Andrology Clinic but cant find any reviews for spermatic cord blocks or denervation surgery although they do it.Now we are at the stage where I would sell my home to help him .

Is there any possibility of you taking your son to Dr. Kovac in the US and have him perform the procedure?He invented it. Bless you.

Bob01550 how are you doing .I think I will pay for the surgery for my son and wanted your advise

Hi Pauline:

I apologize for not updating the forum. It is because I am not sure what to say. I wish I could say I was pain free, but I am not. It has been 2 and 1/2 months since my surgery. I am over the surgery pain, and met with the Dr. at the 1 month mark (at which time I was still in major pain). The Dr. was absolutely shocked to hear that I still had pain. Because I passed the Cord Block test twice, he was sure I would be pain free (there is a 90% chance that it works in that case).

He felt that I may need more time as everyone is different. I met with him last week at the 2 month mark and we discussed my situation. When you have had pain for a long time, it is sometimes difficult to differentiate the pain. At the 2 month mark, I really think that much of my pain was gone from the testicular area. What still hurt was the bottom area called the perineum. It also seemed to radiate the pain outwards to other areas, sometimes making it difficult to determine exactly where the pain was coming from.

We decided that the operation did what it was supposed to do, but I had 1 or 2 underlying issues:

1. I also had nerve pain from the Prudendal Nerve. This is located in the perineum area, and in my case causes pain when sitting (also feels like you are sittin on a golf ball, and is almost gone when you are standing). I am actually scheduled for a Prudendal Nerve block on March 16th. If it stops the pain, they can do an RF abalation, and I am good to go.

2. He also thinks that I may have Prostatitis , from my hernia operation 3 years ago. This is an inflammation of the Prostate that also causes the symptoms that I am having. The Dr directed me to buy a product called Prostate PQ (it is an over the counter natural herb pill that reduces inflammation in the prostate). I took my first pill today, and will see how that goes.

I'm sorry I can't be more definitive, but this seems to be a complicated process that I am still navigating. I guess the bottom line is that I am glad I had the surgery, as I think it eliminated many of my issues, and I can now focus on the remaining ones hopefully.

Bob

Pauline:

I forgot to mention that the Dr also highly recommended that I go to physical therapy for "Pelvic Floor Exercises". I thought this was for women, but he said that they have specific exercises to help men with this type of pain. This may be a less expensive direction for you to try with your son as a first step. I will be trying it after I see the results from the Pudendal Nerve Block.

Thank you for your feedback .I'm sorry that it hasn't fixed your pain .That's what concerns me for my son .I did look up information about the pudental nerve myself and thought that he might have an issue with this .The difficulty seems to be getting someone to listen and investigate . We had a second opinion with a different urologist last week and he thought my son would be a good candidate for the MDSC surgery and he is writing to another urologist to ask him to see us .We were pleased initially but I'm worried again now .I will ask about the pudental nerve and RF abolation when we get the appointment. He has been to physio but gave up doing the exercises . Being 16 there are hormonal issues and he wont always take good advise .

Hello Bob which doctor did for you the injections and the denervation surgery ?

Hello again Howard which doctor did for you the botox injections ?

Hi Yossi - my doctor is Dr. Jarvi at the Mt. Sinai Hospital in Toronto. I had spoken with Dr. Kovac by phone and was going to have him do the MDSC procedure on me in Indiana but he said I had a good doctor close to home in Toronto with Dr. Jarvi. I had scheduled the MDSC procedure with Dr. Jarvi over a year ago but he wanted to try Botox on me first and it worked great. So right now I get that injection every 6 months which is very easy. However because of the virus I missed my injection 2 weeks ago so I take percoset for the pain which also works great.