Has anyone had pain in there tongue ??
Posted , 8 users are following.
:cry: I have read lots of peoples experiences but have yet to see anyone mention pain in the tongue.
I have had TN now for 7 months, oh what joy !!!
Most of my pain has been in my tongue and lower jaw, I have the usual problems that go with it ie eating talking etc, but I have stabbling pains in my tongue all day and then I get the double wamme of a full blown attack.
I would be intrested to hear if anyone else has had the same experience.
I was pleased when the mail on sunday newspaper (england) did an articale on TN as before then I thought I was being a baby about the pain as Im sure people looked at me when I told them it was agony and thought me a wimp.
0 likes, 9 replies
Guest
Posted
I have had TGN for five years and have recently developed pain in the roof of my mouth and in the back of my tongue - it is really painful when eating but not heard of many others with this although the maxillary branch nerve does sit over the top of your mouth so i presume that is what is causing it
good luck with any treatments
sara07461
Posted
Dragon67 smf
Posted
I too suffer the same painful experience mainly in my lower jaw , tongue and by my ear, along with the whole miriad of others starting to creep into the maxilliary branch it is now becoming difficult to even blow my nose !!!. I have just had to change tablets and my goodness had I forgotten how bad TN can be, I feel your pain trying to eat, talk, brush teeth, just move your tongue in general brings such fear of potential pain. I was on 600mg per day of carbamezapine and pain started again, so doc said to change rather than increase dose... well all I can say is BIG MISTAKE.... I am on my 2nd lot, tried Topomax, they made me feel very low, and now I am on Lyrica, having to start on the lowest dose(75mg am/pm) as this is all the doc would prescribe... If only they knew how it felt!!!!. Like you i think people don't bel;ive me when I try yo tell them how bad it feels, I have now started asking " Have you ever accidently electricuted yourself?" when they say yes 9 as most people seem to do.. I then say... " well imagine not been abel to take your hand away to stop the pain!!!! .. I hope you can find some peace, remember all on here know the pain you feel as we all feel something just like yours.. keep smiling ( providing thats not one of your triggers
)
sally90 smf
Posted
I also have MS which is not very compatable with the drugs. Do see a neurologist
and try different drugs. Good luck
debbie38683 smf
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Dragon67 debbie38683
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cassie0313 smf
Posted
My other symptoms include buzzing on the upper lip and nose tip plus pain and headaches surrounding my right eye. The tongue pain is by far the worst. On top of that, the last two times I've needed dental work done, it has been awful as the vibrations irritate the nerves andade me feel like I'm not numb at all.
meredith_nz smf
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bill56363 smf
Posted