Has anyone had superior capsule reconstruction?
Posted , 10 users are following.
Hi all!
Long time lurker, first time poster. I've had just about everything in my arms done at the point; right shoulder decompression (2006), bilateral carpal tunnel and ulnar nerve release (2016), and most recently left shoulder decompression, calcium removal, and rotator cuff repair (Jan 2019). 6 weeks after this last surgery the RC repair failed. Now I'm scheduled for superior capsule reconstruction in 2 weeks. For those who don't know that is where they go back in and do another full repair, then place a donor skin graft over the repair that will eventually fuse with the tendons to give the repair an added layer of protection and better chance at healing.
Everything I've read online says nothing but good things about this procedure. I'm just curious if anyone has experienced it personally. The recovery for my last repair was so easy. I had some improvement in pain almost immediately. ROM seemed to be getting better very quickly as well. But that was actually to my detriment. I was out of my sling too soon, and using that joint too much. That's how I ended up tearing the repair. All it took was the tiniest movement, then "POP!" excruciating pain and my shoulder was worse than it had been before surgery.
I have a lot of cervical issues, as well as chronic migraines. So the sling is not a friend of mine. My neck can't support the entire weight of my arm for long before I start getting spasms and severe pain in my neck and/or head. But I realize I HAVE to keep my shoulder immobile for 6 week, at the very least, if I want things to work this time around. So any tips on how to deal with sling pain is greatly appreciated as well. I've already ordered a sheepskin sleeve for the strap on my sling. But I think the only real answer to avoiding neck pain and migraines is to avoid letting that arm hang too long each day.
If you got this far, thanks for reading. And again, any stories, tips, or suggestions are welcomed!!
0 likes, 28 replies
cynthia50 Blondi940
Posted
I've had the SCR surgery. I had it may 3rd. that's after just having a failed rotary cuff repair in January. im going into my 5th week post OP. I thought everything was fine but note there's a catch in my shoulder every few minutes it'll pop send then releases the catch. I have no idea that this is or why it's doing it. very painful to say the least. im only 50 yrs old..I wish you luck with your surgery. im just praying that mine actually is a success. but I'm getting worried.
dee34567 cynthia50
Posted
Any updates? How are you now!!?
tom6565 Blondi940
Posted
I am debating right now whether to get SCR. I’m only 54 years old, but both tendons are gone from years of activity. i have full range of motion and some pain. i take 800 mg of ibuprofen per day and get shots of kenalog about every year. Too young for a shoulder replacement and somewhat of a unique case since i have full range of motion without too much pain. Not sure if the minimal risk outweighs the reward at this point. I would be out of work for 6 months as well.
cynthia50 tom6565
Posted
I had full range of motion as well. now I wish I had never had the SCR done. I'm only 50. Work related repetitive actions is caused mine..I would've never had it done had I known what the first dr had caused in there. please don't me deter you but please get 2nd send 3rd opinions please. I WISH YOU ALL THE LUCK
dee34567 tom6565
Posted
Curious what you decided!?
How do you sleep? Booked the surgery because the pain keeps me up at night. I'm scheduled March 2020 but scared of the recovery time and risk also!
tom6565 Blondi940
Posted
I am debating right now whether to get SCR. I’m only 54 years old, but both tendons are gone from years of activity. i have full range of motion and some pain. i take 800 mg of ibuprofen per day and get shots of kenalog about every year. Too young for a shoulder replacement and somewhat of a unique case since i have full range of motion without too much pain. Not sure if the minimal risk outweighs the reward at this point. I would be out of work for 6 months as well.
JayEee Blondi940
Posted
As I commented before I had SCR. That was more than 7 months ago, and I'm currently 69 years old. SCR in right dominant arm was after two failed (re-tears) arthroscopic attempts to repair all three -- supraspinatus, infraspinatus, and subscapularis. The subscapularis tear rendered my not a good subject for SCR, plus I had pseudoparalysis above 55 degrees. With a good or reparable subscapularis, the prognosis with SCR is much improved forward flexion -- say 135% or higher. Nevertheless, I convinced a surgeon to give me SCR even if it would not result in forward flexion above say 90%, on the basis that the SCR with its added superior limiting of high riding humeral head would prevent further worsening arthritis (normally ensuing from unrepaired massive tears). Two other surgeons, prior to my getting the SCR, said my only option for worsening arthritis/pain was reverse total shoulder arthroplasty (RTSA) down the road (never even mentioning SCR). Not wanting to face RTSA because of inherent risks and limitations and my being too active, I researched online and sought out the SCR surgeon.
The result of the surgery is significantly greater stability and improved range of motion, including forward flexion to about 80-85 degrees. But most importantly, the SCR should deter worsening arthritis by providing a padding and spacer between the rising humeral head and the acromion, albeit not enough of a spacer to allow me forward flexion above 90% (because of the severity of the high rising humeral head).
Since you, tom6565, have pain, I'm thinking/assuming that is from developing arthritis. In any event, getting SCR should both stop/greatly reduce further arthritis, and, likely avoid the necessity of ever having to get a shoulder replacement (presumably a reverse-RTSA).
SCR is an extremely low or no risk surgery (with the right surgeon). So, if a surgeon deems you a candidate for and who can benefit from SCR, I'd say, most definitely get that surgery. From what you say, you'll even have a better outcome than me (you have no torn/irreparable subscapularis plus currently full range of motion).
Morever, SCR better sooner than later because increased arthritic damage can render you no longer a candidate for SCR.
JayEee Blondi940
Posted
...and I have no pain whatsoever from SCR other muscular pains now and then, since need to develop use/overuse of biceps and deltoid and another muscle to supplant my defective shoulder insofar as extending it fully and raising it to the 85 degree limit.
JayEee Blondi940
Posted
typo correction
...and I have no pain whatsoever from SCR other THAN muscular pains now and then, since need to develop use/overuse of biceps and deltoid and another muscle to supplant my defective shoulder insofar as extending it fully and raising it to the 85 degree limit.
cynthia50 Blondi940
Posted
This surgery has been horrific.. when the specialist got in there ti do the SCR he found that 3 out of 4 of mu tendons were mush. also my bicep had to be repaired. It was mo where near this bad before the first dr got in there. If her hadn't started off by treating me for the wrong thing then this probably wouldn't be this way. He didn't do army test or listen to what I had to say. He automatically assumed it was bursitis.. gave me 2 steroid shots in 3 weeks. After that I even went to another dr wanting a second opinion and he said he wouldn't do anything because the other dr had given me a shot. that should've been my first red flag. needless to say, there was no arthritis in my joint so I was lucky on that part. I'm 9 weeks out from this SCR, I'm really not seeing its gonna work. the pain is absolutely terrible. as of right now, I am going tooi physical therapy 3 times a week and it's just getting worse. I am a unhappy camper...
dee34567 cynthia50
Posted
Hi There! So sad to hear about your experience!! I see you post was 5 months ago...how are you doing now? Please search for my SCR Shoulder Surgery Experiences group on facebook and join it!!
dee34567 Blondi940
Posted
Hi there!
Having this surgery March 2020 and REALLY wish there were more forums of people sharing recovery experiences. I created a facebook group. Please search for it on facebook and join.! Its a public group.
Its called "SCR Shoulder Surgery Experiences"
Thank you!!