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Has anyone had surgery for Lichen Sclerosus.

Posted , 11 users are following.

domino58
domino58

My gynaecologist says that my Lichen is so advanced that I may need surgery.  Has anyone had this done.  None of the medications have worked.  

0 likes, 10 replies

10 Replies

  • hanny32508
    hanny32508 domino58

    Posted

    I've had dilation procedure done, which is less harmful than surgery.  Ask your doctor about this possibility. 

    • hanny32508
      hanny32508 joan64786

      Posted

      The tiny opening still left will be stretched.  After that you will have to keep it open yourself with a dilator of various sizes. 

      ​Together with baking soda baths and rinses, later borax baths and rinses,  I managed to become fully functional again.  The fusing gradually disappearing altogether. 

      ​I still follow the same routine, though less frequent than in the earlier stages and have kept LS very manageable. 

    • joan64786
      joan64786 hanny32508

      Posted

      How long and often did you do the dialatores and the baths. How long doing the baths before you saw infusing occurring . 
    • hanny32508
      hanny32508 joan64786

      Posted

      Immediately after the dilation procedure at the hospital I was so afraid all would fuse again that I did my dilation four to five times a day.  I was also afraid of possible infection, that's when I started with baking soda rinses.  Gradually I gained the confidence to go to three times a day, then two times and so on.  Once a day for a long time, then every other day.  I'm now at -  once in three days.  And it is still necessary that I do this.  I think I'm in my fourth year with this LS, after official diagnosis.  Spread that out over a beginning period where I only used clobetasol.  Then became totally fused up.  Dialation procedure followed and I went from there.  As lubricant I used coconut oil. 

  • andrea44258
    andrea44258 domino58

    Posted

    Hi

    I am trying to find out more about how to unfuse.

    Andrea

    • hanny32508
      hanny32508 andrea44258

      Posted

      For me the use of baking soda and later borax worked for the unfusing.  See the discussion "An Experiment with Borax."

  • fran24104
    fran24104 domino58

    Posted

    My clitoris has disappeared.  The gynaecologist says the only way I will ever see it again would be if I had surgery.  I don't intend to do that.

  • Deeaitch
    Deeaitch domino58

    Posted

    Yes I had a Fentons procedure where they surgically enlarge the opening, it was ok & not too painful, unfortunately though for me it didn't make much improvement & eventually healed up / shrunk again & I've never been able to insert the larger two dilating 'tubes' without splitting my skin I was offered the operation again but have declined this for the time being 

    It can lie dormant for up to ten days between flare ups but I'm resigned to never having interckourse again

  • marilyn90869
    marilyn90869 domino58

    Posted

    Hi all nothing has worked for me that's far all of the barrier things, ointments even some steroids. I'm in so much pain from The Ripping and the tearing and the bleeding I don't know if anything can be done surgery. I have been told that I have vaginal occlusion in the back it has not reached my clitoris or my urethra yet but I am told the surgery cannot be done until my flare-up goes away almost a year and I cannot get it to go away. I am at my wit's end. Somebody please help me

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