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Has anyone out there had a parathyroid problem?

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mvwaugh
mvwaugh

I have had a raised parathyroid hormone blood result recently also a raised calcium in the blood result. I had raised calcium levels several years ago but after a scan of my parathyroid glands which showed no growths it was put down to lack of Vitamin D and called secondary parathyroidism

I was told to increase my Vitamin D levels which I did and my calcium level dropped. I have continued on the supplementation. I have severe sleep problems, am tired and grumpy, my hypothyroidism been under control for the last 8 years. I am border line diabetic. Almost 73 years old. Any suggestions welcome

2 likes, 143 replies

143 Replies

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  • paula40538
    paula40538 mvwaugh

    Posted

    I have had severe soine issues and was going through my hospital records since I was in the hospital in August.  I found that a doctor did a PTH test and it showed high.  I contacted my family physician and he redid the calcium and PTH tests that showed high.  I went to a specialist he had me do more blood work 2 weeks later and mmy PTH keeps doubling.  Today I visited the doctor and he said he has to schedule an appointment with a surgeon.  I am so tired of being sick.  I have checked medical records and my calcium has been high for quite a few years.  I just want to know I will feel better after this procedure?
    • robyn55925
      robyn55925 paula40538

      Posted

      I just had the surgery to remove 2 of the pt glands 3 weeks ago. I am feeling like a new person.  I had been feeling like I was rapidly aging and despite telling my doctor about it, routine tests did not show anything unusual. Then my kidney function declined. A nephrologist said the calcium was too high and the pth should be checked. An endocrinologist did tests and found high pth and osteoporosis. Next stop: surgeon. Now the surgery is behind me. I am sleeping, not depressed, have more energy, better short term memory. I'm told that I will continue to feel improvements over the next 6 months.
  • patricia11863
    patricia11863 mvwaugh

    Posted

    Yours does sound like secondary hyperparathyroidism as your Calcium has fallen with vit D.  Mine didn't fall although it is at the top end of normal and I take no supplement. My parathyroid level is 11 so is not very high but I have been put on waiting list for surgery since two scans have shown up one adenoma on the right side. I also suffer from osteoporosis and had a vertebral crush fracture three years ago. I am 75 and worry about recovery at my age but if I don't I may suffer more fractures in the future. I don't know which way to jump - could anybody help me make this big decision ??

  • MichelleRA
    MichelleRA mvwaugh

    Posted

    This not really a response to mv - apologies - but I have just joined this site, have no idea how to start a new thread and do have a question on hypercalcemia/hyperparathyroidism. I live in Canada and there is a year's waiting list for surgery.

    Can anyone recommend an excellent surgeon specializing in parathyroidectemies, working out of a hospital in London? I realise I will have to pay privately, which I am sure will cost a fortune. However, I would prefer to come back to my home town rather than going to the states. I would be very grateful for any comments or info you could provide

    Many thanks.

    Michelle

  • alan65290
    alan65290 mvwaugh

    Posted

    You should both join Sallie Powell's Facebook site " Hyperparathyroid UK Action4Change".  You'll get all the information and help you could possibly require there.  Alan.

  • carroll71162
    carroll71162 mvwaugh

    Posted

    U obviously in my opinion got a parathyroidoctmy adenoma...my scans showed no growth either...I just kept pestering them...they opened up my neck and found a parathyroid adenoma removed it and my knees and aching bones have been brilliant ever since kindest regards Carroll
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