I had one on September 10th, 2014 and would love to compare notes with anyone else that has had one. Thank You. ChuckP PS Some people just call it a "PAE" for short.
You are evidently one of the early ones. This is from the Southampton University Hospital web site. It sounds a promising method.
" PAE is a non-surgical way of treating an enlarged and troublesome prostate by blocking off the arteries that feed the gland and making it shrink. It is performed by an interventional radiologist, rather than a surgeon, and is an alternative to a TURP (trans urethral resection of prostate) operation. PAE was first performed in 2009, and since then over 200 men have had the procedure performed predominantly in Portugal and Brazil. University Hospital Southampton has been offering a PAE service from April 2012 and is the first UK centre to perform this procedure"
Hi chuck, sorry you havn't seen much improvement following PAE.
I underwent PAE last month and had immediate improvements. Just 2 hours afterward, first visit to toilet, flow rate about doubled. I guess this immediate change must be due to the prostate no longer being inflated so much by incoming bloodflow.
I've had no bleeding and little discomfort. Just some tightness in groin around artery where catheters inserted which mostly eased off after 2 weeks, and a feeling of lower stomach cramp or trapped wind starting to ease off towards 3 weeks.
My main problem, Nocturia was 5 or more visits a night, now mostly 1-3 visits but 3 nights I've slept through for 7-8 hours.
I was also suffering retrograde egaculation which was quite uncomfortable. There's been some improvement here, more would be good but at least it's not as uncomforable anymore.
I'm in Scotland and went to Professor Martins Pisco in Lisbon.
Southampton is only place in UK doing the procedure, but their charges are much higher, Lisbon total PAE prices plus flights and 11 day stay (for two) cost less!
I was PAE patient 723 at Hospital St Louis.
From the CT scan I appeared to be a straightforward case, but ended up taking longer than expected as one artery turned an acute angle. They had to use a special catheter to get around the corner, this was their first case where that catheter was ever necessary. It sounds that Southampton would probably not have been able to complete the procedure, so very glad I chose Lisbon.
Hospital St Louis in Lisbon is a centre specialising in uterine fibroid embolisation, a procedure that's been around since the 70s. I guess experience in that would also help in PAE.
Found your post when looking for place to get my 1 month checkup done. Required checks are flow rate; residulal urine volume ultrasound scan, trans rectal ultrasound scan of prostate (dimensions and volume); PSA blood test. Ive put up a new post looking for place to get the trans rectal ultrasound. Also you have to fill in questionairres including IPSS and IIEF.
They ask for these at 1 month; 6 months; 12 months then yearly as it part of ongoing research.
The incentive is that provided you return the results you can get the procedure re-done, I think at no cost or possibly for just the materials cost (1500 Euro) the pagagraph isn't clear. Says this depends on if your prostatic arteries have too much atherosclerosis, if bad then not free.
Before you had PAE did CT scan show atherosclerosis (tortuous or highly divided) to be a problem? more lightly in smokers and as you get older.
At my checkup after six days, Prof Pisco said the next day he was doing an 80year old smoker with atherosclerosis, he'd been advised of low chances of success but patient wanted to proceed.
After PAE were you told if embolism had been sucessfull on both sides?
Have you had results from any follow up checks yet? Would be interested in any changes acheived.
My pre procedure t-r ultrasound results were: dimensions 66x64x74mm; volume 162cc; median lobe 12mm.
There's a google group you may have seen, someone else with good result, try search "Prostatic Artery Embolization, Prof. Pisco in Lisbon"
The hospital site http://martinspisco.hslouis.pt/en/ has a large testemonials section - good reviews but I trust reports on independant sites more.
Hi Everyone, On November 21st 2014 I had a Prostatic Arterial Embolization procedure at Kaiser Hospital in Oakland CA. I found that there is little information about what to expect after the procedure. I know of one other person who had the procedure and he had a vastly different result. He had a very painful 5 days after the procedure but then had a total relief of BPH symptoms and a return to normal PSA.
For me the procedure itself was easy. I was aware but drifted in and out of sleep. It took 2 and a half hours. I had significant bruising after the procedure that did clear up in about two weeks. For the two and half weeks after I had a very small amount of blood in semen and a couple of times after a bowel movement but never during urination. My pain level was minimal even right after the procedure but I was taking Naproxin for the 10 days after the procedure. By one month I felt normal again but have had only marginal improvement in flow. As of today 1/6/15, I still need to take .8mg Flomax every day but I can almost sleep through the night getting up only once so things are better, but not as good as I have hoped. I really wanted to be off the drugs. I don’t know how long it can take to get the full effect of the procedure so maybe it will still get better.
I should note that my stream slowed very suddenly at age 25. Literally overnight I had a 25% reduction in flow. I saw urologists for two years, had a meatodomy and a complete urodynamics test. It showed a constriction at the bladder neck but none of the doctors could explain why. The only drug at the time was minipress and I didn’t want to take it. and I figured I could just get used to peeing slower. It was fine until I hit my 50’s when it started to get worse and I go to the point where I could barely pee at all, especially late at night. This is what drove me to try the PAE procedure.
I sincerely hope all of us get better. I am willing to talk to anyone who has questions about my experience.
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