Has anyone out there had a "Prostate Artery Embolization??

Posted , 210 users are following.

I had one on September 10th, 2014 and would love to compare notes with anyone else that has had one.   Thank You.  ChuckP   PS Some people just call it a "PAE" for short.

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  • Posted

    I agree that the uroligists have a great industry going.  They push what they can do, not what is necessarily best.  The interventional radioloigist that I saw said the urologist sees a nail (problem) and uses his hammer (his procedure) regardless what is truly best for the patient.  I still think PAE has the best upside and least downside.
  • Posted

    Hi fellow prostate sufferers!

    I live near Canberra in Australia, but first, a brief history of my condition. 

    Out of the blue about ten years ago, I was having a few beers after a conference in another state capital when suddenly I found I could not "void" (technical term I have just learned...).  Long Story short, in 10 minutes flat I was up in the Emergency Dept of the main public hospital roaring with pain until they got a catheter into me.

    Voiding returned to normal right away, but as a slightly evolved male I paid the GP a visit the next week.  He had me into a Urologist's quick smart, who wanted me on the operating table the following week.

    Being a male (as aforesaid), what did I do?  Went away and did something else for ten years of course.  Don't we all?  Besides, I remember being spooked by the side-effects described by the urologist (although I think he was consciously underplaying them) and thought I did not have a burning urge to be both incontinent and impotent for the rest of my days.

    In the interim, I have been told I have an enlarged prostate. But as the symptoms were easy to cope with, I soldiered on.  I sometimes had to get up twice during the night, more often once and frequently not at all.  I made no attempt to limit my fluid consumption during the evening, and at least five nights a week drank 2-4 glasses of red wine with a similar quantity of fresh rainwater (did I mention I'm slightly evolved?)

    In the mornings I occasionally had to void several times in the space of an hour, and even more occasionally had to leap up from the dinner table, cutting my wife off in mid-sentence (to her great consternation - but she's a wonderful gel) and rush off for a pee. I might do that four times over dinner.  The other 360 days in the year, business as usual except that I often had a feeling of not having emptied the bladder, as well as occasionally experiencing some minor leakage (generally between the "urgent" signal and getting to the toilet bowl.

    So - nothing I coudn't live with as life ain't supposed to be perfeck.

    Then six months ago I stepped off the second leg of a flight to the UK, sat down in the kitchen with my oldest pal and we shared a small glass of John Jamieson's finest whiskey before turning in for the night.  Alas!  I awoke early and went for a pee.  Nothing!  Tried repeatedly, but nothing happened.  Then in the morning it all came out in the normal way (the odd part of this was that my old chum, who claims to have no prostate problems at all, said he had had exactly the same experience during the night (he has an ensuite, so our paths never crossed).

    Again, I assumed this meant that whatever it was had resolved itself, so I left well enough alone.

    Then a week ago - after driving down to Melbourne (about 7 hours), I had a similar blockage overnight but this time it didn't resolve itself.  I found myself in hospital with an indwelling catheter.  This was removed the following morning with no success so another one was inserted.  This remained in place for a week, after which it was removed with a similar lack of success.  I wound up on morphine whilst they tried to get a new catheter inserted, and an antibiotic drip.  Wouldn't recommend the experience even if the doctors and nurses were absolute darlings.

    So - it's probably time to do something...

    Thank you all for your very frank contributions - this is the first website I have read, and I found it amazingly useful.

    I have to say that I am dumbstruck by the lack of progress in treating BPH considering the high proportion of men all over the world who suffer from it in varying degrees.  It's not exactly a 21st-Century disease, yet the best the urologists can come up with is a range of treatments which have a high chance of totally unacceptable side effects.  If you want a good laugh, have a look at the position paper of the Urological Society of Australia and New Zealand.  It strikes me as a textbook case of the profession trying to pretend there's nothing happening whilst they try and work out how to keep patients out of the hands of the radiologists who are going to take away all their money. Here it is for those interested: http/www.usanz.org.au/uploads/65337/ufiles/LUTS_SAG_Position_Statement_on_PAE.pdf

    And so to PAE.  While clearly still in its infancy, it seems to be showing great promise of delivering to men the treatment they should have had available years ago, if not decades.

    I will be doing something about my condition now, but I don't think I'll be starting with the urologists.

    Keep the discussion flowing (sorry...)  Great site!

    kermac

    • Posted

      Hi Kermac, I'm in Sydney. Ignore that position statement ...its just the greedy urologists protecting their lucrative monopoly on prostates. There is an interventional radiologist in Sydney who does PAE's . I was all set to have one but I'm allergic to contrast dye....and that put an end to that. 

      If you like I can put you in touch with him ....he is very approachable and best of all you can get it for FREE!

      Im very disappointed that I can't have it ...may go with HoLEP. 

      Contact me privately for contact details. 

    • Posted

      Have you checked with Pisco in Portugal to see if there's a workaround?
    • Posted

      Not yet Mike...I don't fancy my chances...Contrast dye is an integral part of the process.
    • Posted

      I agree,  Dr. Pisco has done so many of them, he can give you the best answer.  I would verify this with him.  He has always replied to me quickly.  
    • Posted

      Thanks for your concern Mike and Camster....I will contact him. I guess I just google him for his contact details?
    • Posted

      Mike, were you able to send him Dr. Pisco's email address?  I tried and the post was deleted.  We have major problems on this website with over-censored monitoring of vital information that is public information.
    • Posted

      Yes, I sent him the contact page link.  You have to send stuff like that through private messages or they get moderated.
    • Posted

      Thanks Camster....Mike sent me the contact and I've written to Dr Pisco. Thanks a lot...I appreciate your concern. I agree about the censorship thing...a bit overzealous in my opinion. 

      I'll keep you informed about what he has to say. 

    • Posted

      Mike, how do I private message on this site?  I'm still relatively new to this site.
    • Posted

      No problem.  Find a post a person has made.  Click on their name.  Then on the next page, you'll see "Message" right under their username.  Click that.
    • Posted

      Hi Caringbah,

      I'm in Sydney too. I've been trying to contact your radioligist through his radiology firm, but to no avail. The receptionists tell me he's booked out and there's no reply to my emails. I sent a letter to radiology at Liverpool Hospital yesterday and am hoping he receives it. My prostate is about 100mL in volume and one urologist has suggested TURP while another has offered Urolift as an alternative. Both want me to take Duodart, but I'm staying on the Flomax for now. The possible side effects of Duodart sound drastic! I definitely want to try PAE and would be extremely grateful if you could help put me in touch with your radiologist.

      Cheers, Mitch

    • Posted

      Is there a possibility you mean "Avodart"????  
    • Posted

      Duodart is a combination of Dutasteride 500 mcg and tamsulosin HCl 400 mcg
    • Posted

      OK Thank you.  I didn't know that.  To be honest I hate all these drugs because of their side effects.  I was on a bunch of them over the years.  Atleast a half dozen different ones.  From Finisteride to Tamsulosin to Avodart to Jaylin to  Meyerbrig to "God Knows What".  Hated them all.  Really screws up (no pun intended) your sex life.
    • Posted

      Hi Chuck,

      The medication is called Duodart. It's a capsule containing dutasteride combined with tamsulosin. The combination of the two in some cases increases the possibility of side effects.

    • Posted

      I found out the radiologist is currently overseas, so I'll catch up with him when he's back.

      Thanks, Mitch

    • Posted

      Hi Mitch, sorry I didn't reply to your earlier message...fact is this thread is getting quite long and try as I could I couldn't find it. FOUND it now obviously.

      I'm seeing him on the 4th may. I hope to have the PAE shortly after.

      I think he's keen to get some runs on the board. I'll be the third one he will have done.

      If you haven't heard from him by then I'll let him know you want to.see him.

      Cheers

    • Posted

      I understand completely. It's great that things seem to be moving ahead for you. I've been given an appointment for May 11th, so hopefully won't be too far behind you.

      Thanks for getting back to me!

    • Posted

      Hi there I live in  Sydney Australia and Im seeking a urologist or surgeon that is performing PAE in Sydney or Australia do you know of anyone please .

      Thank you so much for your help

    • Posted

      Hi there I live in  Sydney Australia and Im seeking a urologist or surgeon that is performing PAE in Sydney or Australia do you know of anyone please .

      Thank you so much for your help

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