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has anyone taken the medication Stelara

Posted , 6 users are following.

Gloria814
Gloria814

   I have RA and crohns diseases and my doctors want me to start a new biologic called Stelara.  I looked at side effects and like the other biologics they are pretty scary.  Anyone know about this drug?   I did not tolerate humira or cimzia both biologics due to serious side effects

0 likes, 8 replies

8 Replies

  • ollieb
    ollieb Gloria814

    Posted

    I can't comment on any side effects.  I've had two doses without any problems.  I've not seen any improvement either.  My consultant thinks after 8 weeks I would know if its working, however the home nurse told me some of her patients have taken 5 doses to respond.  I take an injection every 8 weeks.

    • Gloria814
      Gloria814 ollieb

      Posted

        I hope it works for you.   I still haven't decided if I want to try this drug 

      Keep us posted on how you are doing.   Good luck!   Gloria

  • KillerKlown
    KillerKlown Gloria814

    Posted

    Hi. I started this drug in december 2017. One infusion in hospital, then self inject every 8 weeks. Only side effect I've had is the first couple of times it made me really fatigued. Apart from that, nothing. The home delivery firm is rubbish and was getting them a month late which had now caused my fistula to reopen and abcess come back. It was a 15cm pelvic abcess. Had a drain in for 6 months....

    • Gloria814
      Gloria814 KillerKlown

      Posted

      oh, that is terrible about the late delivery.   I hope the drug works for you.

      Best wishes   Gloria

    • KillerKlown
      KillerKlown Gloria814

      Posted

      It was working fine until the late deliverys started. Hope all works well for you.
  • jack50715
    jack50715 Gloria814

    Posted

    I received the Stelara initial infusion dose 16 weeks ago and self administered the second dosage 8 weeks later. I will shoot the third dose this week. I had been on Humira for the preceding 18 months, achieving nearly symptom free remission when a colonoscopy revealed significant narrowing at the Iliam, prompting my GI to recommend the switch. after starting the Stelara initially I continued to experience only slight Crohns symptoms (some occasional BM irregularity, little pain) which have seemed to worsen in the past couple of weeks, perhaps indicating that the Stelara one ml. dosage is insufficient for the 8 week period between dosages. I will see my GI in another three weeks to assess this and other issues regarding my care.

    • Gloria814
      Gloria814 jack50715

      Posted

      Hi Jack

      I never did start the Stelara but decided to try Cimzia once more after a year off of that due to some palpitations. I don't know about the 1 ml dosage but perhaps your GI doc will increase the dosage. I hope it works for you. It may take a bit longer to take effect

      If Cimzia is not effective the GI doc wants to go with Stelara since it works differently than the TNR blockers.Please post again to tell us how you are doing and what your consultant decides.

  • Twiglet.12
    Twiglet.12 Gloria814

    Posted

    Hi all, I have Crohn's disease, I was taking inflixamb but has stop working after 16 months, I will soon be starting Untekinumab any feed back would be great, I have tried Humira and Methotrexate, Thanks Twiglet,

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