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Has anyone tried Accutane for HS?

Posted , 6 users are following.

maggie03951
maggie03951

My Dermatologist wants me to try Accutane. I've had HS since I was a young girl. I'm 55 now

0 likes, 7 replies

7 Replies

  • amy61071
    amy61071 maggie03951

    Posted

    My dermatologist put me onto accutane about 8 months ago now. I feel like it has kind of kept the lesions under control, but not stopped them! I get fewer sores, but they still arise. I am actually thinking of going off it. I don't know if my dermatologist or many dermatologists in fact know exactly how to treat HS, and probably don't follow up and try to figure out how to treat it. I often feel my dermatologist just thought this medicationg MIGHT work, but in fact hasn't really changed much. That's just me though smile Make sure you stock up on good moisturisors and creamy lip balms as this medication totally dried out my skin!

  • gregory4312
    gregory4312 maggie03951

    Posted

    My dermatologist who has a specialization in HS has told me that accutane doesn't help much and in some cases actually makes the flares worse

  • james46698
    james46698 maggie03951

    Posted

    Have to agree with most of the replies Accutane is a last resort for hackney in teenagers, it has little or no effect on HS. I was put on it and it had no effect for me, the only way to go is find a surgeon who can perform plastic surgery which i did and have been free for over 12yrs.
    • Debbon
      Debbon james46698

      Posted

      So glad to hear you have been free for so long .do you mind me asking I'm assuming that it was very bad for you to have surgery?

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