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Has anyone tried Low Dose Naltrexone for PMR?

Posted , 5 users are following.

shelley45866
shelley45866

I just started LDN, am down to 2 mg of Prednisone, but still having muscular pain. Has anyone else tried it? I found a discussion from 8 years ago, but nothing current.

0 likes, 7 replies

7 Replies

  • audrey80537
    audrey80537 shelley45866

    Posted

    I have been taking LDN for about 6 mo.

    I have noticed a tremendous difference

    No more pain or fatigue. For the first time in three years I have been able to

    Drop my dosage of pred without flares

    And pain not to mention the fatigue

    I started with 1.5 mg for a week then went to 3 and after about a month went to 4.5.

    I also use Pulse electro magnetic field

    Therapy twice a day for 8 minutes and I

    Feel like a normal person again.

    Audrey

    • shelley45866
      shelley45866 audrey80537

      Posted

      Audrey, thanks for the info! I started at 1.5mg just two days ago, on a schedule to get to 4.5 in a month. Your information is encouraging.  How long was it before thought you could feel some results of the LDN? 

      Also, I tried PEMF therapy for a couple of weeks, but stopped it because the treatments were $75 each and the improvement seemed to only last for a day or so. Have you found a cheaper way to get PEMF therapy? If you own your PEMF machine, which one did you buy?

       

    • audrey80537
      audrey80537 shelley45866

      Posted

      If you can figure out how to

      Personally reach me I'll give you all the info

      In the meantime I'm off to Costco but I will get back to you

    • EileenH
      EileenH audrey80537

      Posted

      If you click on the envelope icon next to the person's name you can send a private message.

  • audrey80537
    audrey80537 shelley45866

    Posted

    In addition to my previous post it is

    Important to take the LDN at night

    around 9:00 on an empty stomach

    for it to be most effective.

    An on line friend with PMR introduced

    me to it and she is also having good

    results She also uses PEMF therapy.

    I think for me the PEMF eliminated the pain and the LDN eliminated the fatigue.

    • shelley45866
      shelley45866 audrey80537

      Posted

      I did not know to take it on an empty stomach - thanks. 

      ?If you do not mind communicating with me directly, I would appreciate your sending the info about the PEMF (and any other info you might have on LDN) to: 

      ?Thank you!

      Moderator comment: I have removed the email address as we do not publish these in the forums. If users wish to exchange contact details please use the Private Message service.

      http://patient.uservoice.com/knowledgebase/articles/398331-private-messages

    • audrey80537
      audrey80537 shelley45866

      Posted

      Shelly

      I sent you my address on

      messenger. Took me awhile to figure it out. At least I think

      I figured if out.

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