Has anyone used Metosyn 0.05%?

Posted , 6 users are following.

Hi everyone, I was prescribed Mometason Furoate last week for my groin area. I have been using dermovate for 3 months prior to this and thankfully my Dermatologist told me last Thursday I was in remission in my vaginal area.. but very strangely a few days before my hospital appointment my groin area had now begun to show vertical red marks and was very sore (the seam of my pants lies directly above where these marks are. The consultant prescribed mometason furoate as she thought my dermovate would be too strong for the groin area. She said I could use this also on the labia 2 x per week just as a maintenance dose but every night on the sore bits of groin. Within 24 hrs of using this new steroid I felt burning and the problem had spread to my buttocks - appearing just like nappy rash. I persisted with the MF but 4 days later I was on fire and stopped using it. I couldn’t wear pants or tights for 4 days sad. I turned to anti histamine and sudocrem (very soothing) and rang the dermatologists’ secretary. I was told to ask my gp for Metosyn 0.05% instead and the instructions on this say to use 3-4 times per day. Things are healing anyway now - I think more down to the sudocrem than the Metosyn to be honest. I am just left with hard and cracking skin (just like the aftermath of a burn). Anyway, I am desperate to know if the Metosyn is also suitable to use in my labia too for my maintenance of twice per week? I have rung the dermatologists secretary again who just said due to the doctor being on annual leave after today I would have to ask my gp’s surgery. I have rung them and they aren’t helpful either saying I need an appointment but the first they can offer is in nearly 2 weeks. My next hospital review isn’t for 4 months and I don’t want to be using this Metosyn on the labia if it’s unsuitable for those bits. Any advice anyone could offer would be greatly appreciated. KR., Jill

0 likes, 13 replies

13 Replies

  • Posted

    Hi Jill, you sound to be having a rough time. Have you thought of trying your local pharmacist for advice. They probably have somewhere of private to chat. Good luck.
    • Posted

      Thank you Ann. Yes it’s been traumatic but a lot better now thank you. The groin is healing so I’m at least able to wear pants again which is a relief in this freezing weather! 
  • Posted

    Hi there, What I found was that I could use the steroid cream for areas like my clitoris and on my labia minora with no problem.  But, when I used steroid cream in other areas (like the crack of my butt for example) it had a reverse effect and made things worse!! much worse, like you describe, a rash would spring up from nowhere.  In the end I used baby creams like Desitin for areas away from my Vjay.  

    Your situation is tricky because you have had a bad reaction to Metosyn, but it could be just that you react the same as me.  In your shoes, I think I would use the dermovate if you still have some left over for maintenance.  If not, try putting a tiny tiny bit on your labia minora and see if you react to it and then you will have your answer.  If that is the case your GP should be able to prescribe more dermovate for you I would have thought.

    • Posted

      HI Guppy

      Yes it was very strange as the appeared in places I’d never seen before within 24 hours of using the Mometasone. However the Metosyn seems fine but.. just not sure if I can use it on the labia. I suppose as it’s 0.05% it’s a lot weaker than the monetasone. The rash on my buttocks has almost disappeared anyway but that’s down to using sudocrem. Thank you for your advice.. everything helps. 👍🏼

  • Posted

    Hi Jill I used Mometasone Furcate ointment 0.1% for 4 months. It is considered a strong steroid. During he first month of daily use on the genital area it was extremely raw and sore but then it calmed down. After a month it was alternate nights. The area improved immensely however twice daily as I did sitz baths with epsom salt, baking soda and a drop of lavender essential oil. There was no way I could wear pants for two months so lived in skirts. It's important to lubricate the area during the day. Organic cold pressed extra virgin Coconut oil or emu oil works very well. You have to use the mometason sparingly. Different health care professionals give different directions. Some ladies on this site rub it in for a minute or so while my NP told me to dab it on. I'm sorry you are having such a difficult time getting the LS under control. I did use the ointment in the labia. From my experience the professionals don't give enough information (or none) and we are left alone to find what works best. I am now on a milder steroid as the gyne said the area looked healthy after treatment and the mometason was too strong. Perhaps you should go back to the GP for a recheck. Good luck.

    • Posted

      Hi Dam

      Yes it sounds like I had the same reaction as you to the MF but I was a bit of a wimp and couldn’t stand it. I’m surprised I was given it to be honest as it seems to be of a similar strength to the Dermovate but my consultant said that the Dermovate  would be far too strong to use on my groin area and prescribed the MF instead. Thank you for your advice, it’s all so much appreciated. 

  • Posted

    Hi Jill, there is a natural way to deal with LS. Try soaking in a bathtub with 1/3 cup of baking soda.  It works for itching and burning.  Also, read the thread, "An experiment with Borax". There's a wealth of information in that discussion.  I've regained areas that had fused, replaced the white areas with healthy pink tissue, and even gotten rid of scar tissue.  It doesn't work overnight, but with baking soda, sodium borate (borax), and keeping moisturized, alternating with emu and coconut oils you will find healing and relief.  Many women on this site have reported positive results on the borax discussion.  Also, only wear cotton panties, and no tight pants.  It seems like a lot, but once you get used to it, it becomes second nature.

    • Posted

      Hi Anna

      Thank you for your reply. I do use bicarbonate rinses and find them so soothing when I’m sore. However the dermatologist was shocked when I said this method is popular with a lot of LS sufferers. She couldn’t understand how it would be of benefit as it’s ‘alkaline’ and would be likely to cause other problems like thrush. I did also touch on the subject of borax but she also said this could cause more problems long term. I have tried to use a borax rinse in the past but sadly it caused me to burn. I may try it again but with a more dilute solution and see how I get along. My vaginal area is in remission LS wise but when I flare up again I will give it another go. Thanks again Anna. 

    • Posted

      Hi Jill, Because you are so raw from the steroids, you may not be able to tolerate borax for a while.  You didn't mention what strength you were using, but when applying, it should only be a very light saturated solution (stirring borax into a container of water until it no longer dissolves).  I use 1/6 cup in a bathtub a few times a week as well. 

      Regarding your doctor's comments, unfortunately, most doctors don't know very much about treating LS.  They give you a prescription for powerful steroids, and that's that.  The reason why baking soda and borax work is because they help bring the vaginal tissues back to a healthy  ph balance.  They don't cause thrush.  Speaking of causing more problems in the long term, I've been using both for almost 2 years now with no problems. My healing has been phenomenal.  So you have 2 choices, you can try the natural healing route and see for yourself, or you can follow the advice of a doctor who doesn't appear to know as much as we know on this site.  This is not a knock on your doctor - most of them have no information on alternative choices.  Although a few women have reported that their doctors had either heard of the borax treatment, or were so impressed with their progress they told them to keep up whatever they were doing.

      It's a challenging situation, but I've learned the hard way that you have to take your healthcare into your own hands.  Listen to your doctor, but do research.  Check out side affects, etc., then make an informed decision.

      Best of luck to you.

    • Posted

      HI Anna

      Thank you for your advice. My buttocks are now clear and my groin is peeling and showing new skin - just like the aftermath of a burn. This is definitely from the Mometason Furoate. I have logged my allergic reaction on the NHS yellow card website.  During my appointment last week the consultant said my LS is thankfully in remission on the labia 🙏. I have previously tried the borax .. it seemed to be too harsh for me and caused me to be very dry and sore. I initially tried a level teaspoon in a small drinking water bottle. Then reduced the amount to a half a teaspoon and then a quarter in the same amount of water and sadly still had the same reaction. Because I had an appointment pending with the hospital I decided to wait and do as instructed by them. But.. I am so encouraged by yours and everyone else’s positive stories about the borax so when I have another flare up I will definitely give it another try as I’m not happy with the thought of long term steroid use. The consultant did say that it doesn’t cause the skin to thin within the vaginal area but would do on the groin or normal skin? 

    • Posted

      Hi Jill, I don't use steroids, so I can't comment on their various affects depending on location.  The only thing I can tell you for sure is to stay vigilant. LS, as far as I know, seems to be something that will return, if we aren't careful.  Some people have warning signs, like burning and itching, but some have no symptoms at all except for a loss of "architecture".  Crazy. 

      If you can't tolerate borax at the moment, you might still want to do the bicarbonate rinses (a couple of pinches of baking soda in an 8 oz squeeze bottle) after every trip to the bathroom.  It's like a mini-bidet.

      So glad to hear that you are healing!

    • Posted

      Thank you Anna, yes I ‘investigate’ downstairs once a day just to make sure! I am one of the folk who don’t have any symptoms ie., itching or burning but do have the white areas and fusing of the labia just on one side. I am told the slight white patch I still have is just atrophy - I am hoping this is correct as with the lack of any other symptoms I wouldn’t know either way! I have used bicarbonate rinses in the past and will do so again, just after bathroom visits - against the advice of my dermatologist but I’m now convinced with this particular condition the doc doesn’t always know best! 
    • Posted

      Hi Jill,  I had white areas and fusing too.  After I heard about borax, I gave it a try, and just swabbed on the solution 2 times a day.  It took many, many weeks to see a change happening, but now the fused parts have returned and the white area is pink again.  It's like a miracle. So, I'm not sure if you can call the white area "atrophy", but whatever it is, I can tell you it's reversible.

      Alistar recommends taking pictures so you can see how much progress you are making.  Great idea because, in my case, the progress was so slow I forgot how bad it was to begin with.  Hopefully you will be able to try it, once all your inflammation has died down.  One last thought - Since you are so sore, you could try swabbing just one small section, instead of immersing the entire area in a tub or sitz bath.

       

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