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Has anyone with AS developed Chrohns or Colitis?

Posted , 6 users are following.

Lainey8
Lainey8

Hi

I have been diagnosd with AS and have psoriatic arthritis. I have a strong family connection with chrohns and colitis. As I have the gene HLA-B27, I was wondering how much more likely it would be for me to develop these too. Thanks in advance. x

0 likes, 13 replies

13 Replies

  • dr-haidar
    dr-haidar Lainey8

    Posted

    Hi Lainey8

    I have developed AS a few months ago , there is no AS cases in my family but there is UC , i have recently suffered from abdominal pain and diarrhea, but it is not bleeding , may it could be an IBS flare .

    I think The possibility of developing UC is about 20% .

    Bloody diarrhea is the diagnosed sign .

    Best wishes

    • Lainey8
      Lainey8 dr-haidar

      Posted

      Thank you

      Sorry you are suffering with your stomach.

      20% sounds a bit scary!

      Cross fingers that you dont develop UC

      Thanks for your reply x

  • gloria55119
    gloria55119 Lainey8

    Posted

    Hi Lainey, I have AS and my daughter has psoriatic arthritis so I know there is a connection. I have heard that bowel problems are sometimes  connected to all this too. Best to ask your specialist their opinion on it all. Hope you find the answers to your questions....best of luck and hugs too.
    • Lainey8
      Lainey8 gloria55119

      Posted

      Hi Gloria

      Thank you very much. I wondered if the HLA-B27 gene linked them all up? Shall be seeing my specialist in a couple of months, so will ask him.

      best of luck for you too xx

  • hjane74
    hjane74 Lainey8

    Posted

    I have AS and was only diagnosed a almost 2 years ago when they finally tested me for HLA-B27,  but I have had UC since I was 17,  my father had UC and now my daughter has UC.  I also have had Iritis which is another autoimmune disease.  Once your body gets full of inflammation it can start to attack anywhere. sad 

    Wishing you all the best!

    • Lainey8
      Lainey8 hjane74

      Posted

      Oh my goodness. Thats awful. Have your daughter and Dad had the gene test? I have heard of Iritis. That affects your eyes doesnt it? I only got diagnosed with PsA a year and a half ago. They now think its in my spine. I have always had problems with my stomach and my Dad and Nan had UC and my cousin on my Dads side has it along with MS. My Dad also suffered from psoriasis and so does my Mum. I didnt stand much of a chance of avoiding some of that lot!

      Wishing you and your family well xx

  • Valleydachs
    Valleydachs Lainey8

    Posted

    Hi Lainey!  Yes, only I have the opposite.  I was first diagnosed with Microscopic Lymphatic ( I think that's how you spell it ) Colitis by a colonoscopy FIRST.  I FINALLY, after three years of chasing doctors for a diagnosis, have an appt with a Rheumotologist next month.  I have just done the blood work and tested positive for the HLA-B27 and ANA.  I had an ANA last year and it was positive but none of the doctors I saw then ever mentioned it.  I am the one who requested the repeat ANA test in addition to the HLA-B27.  I am also the one who requested a referral to a Rheumy, and I have no medical training....and neither does my doctor, it seems.  Sorry for being snarky but most of the doctors in my area are pretty worthless.  The one Rheumy we have is supposed to be excellent, so I've heard.  Can't wait for my appt because of the lower back pain, swollen feet and hearing loss.  I've read that, yes, even hearing loss can be a symptom and I've been wearing hearing aids for as long as I've had the colitis.   I'll almost bet money I have A.S.  The MC is alive and yucky.  I've been in diapers for a year now.

    • JenInCali
      JenInCali Valleydachs

      Posted

      Hi with your symptoms and the positive ANA you very well may have lupus. Hope you get some answers. Where do you live? I've lived in an area that had terrible medical services too.....Yuba City, CA. fortunately I don't live there anymore.

    • Valleydachs
      Valleydachs JenInCali

      Posted

      OMGoodness!  We almost moved to Yuba City many moons ago.  We've lived in San Luis Obispo, CA for 13 years.  Considered a rural county, Medicare does not pay out well to the doctors so we get the dregs.  Lupus?  I'll research it.  My Mom suddenly got debilitating RA when she was 40.  Really bad!  I'm 54 now.

    • Lainey8
      Lainey8 Valleydachs

      Posted

      Hello

      I am so sorry that you are having such a rough time. I have also had awful trouble with consultants. I have been seen by Locums and they were terrible! What is an ANA test for? I didnt know about the hearing loss!!! I went to my GP complaining about ear ache and a struggle to hear last week!

      Can they not give you any treatment for the MC? Have you tried changing your diet? i wondered if it was worth doing this myself.

      Wishing you well xx

    • Lainey8
      Lainey8 Valleydachs

      Posted

      I was diagnosed at 44, but had flare ups in my right knee and right ankle for the first time when I was in my early twenties. They only prescribed nurofen back then and drained off the fluid and injected cortisone. Treatment has really changed a lot since then. What meds do you take? 
    • Valleydachs
      Valleydachs Lainey8

      Posted

      I am eating dairy and gluten free. Some days it works better than others.  I am also pretty much urine incontinent, also.

       

    • gloria55119
      gloria55119 Valleydachs

      Posted

      Just had a thought...the jaw can be affected by AS..it feels like toothache but it's in the joint of the upper jaw. Also AS being an autoimmune disease has a connection with allergies...food allergies, drug allergies etc....worth thinking about the effects it has on everything in the body.

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